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Re: discussion on Paddison Program
Clint, I saw your comments to several people and I have some questions. I was diagnosed with RA 23 years ago. I was on Enbrel for 14 years till I started developing infections, including pneumonia. Just this year I have tried Orencia and Actemra. Neither worked for me. Next the Dr. is recommending Rutuxin
Clint, I saw your comments to several people and I have some questions. I was diagnosed with RA 23 years ago. I was on Enbrel for 14 years till I started developing infections, including pneumonia. Just this year I have tried Orencia and Actemra. Neither worked for me. Next the Dr. is recommending Rutuxin
Hidden
in
NRAS
9 years ago
Pain
Hello, I was diagnosed with PSA about 2 years ago after being in so much pain that I wanted to actually die. I have been on MTX for 3 years and prednisone for 2 1/2 of of those years. I tried Humira in March but was not effective so I switched to Enbrel. I have also added Cymbalta, in which I am now
Hello, I was diagnosed with PSA about 2 years ago after being in so much pain that I wanted to actually die. I have been on MTX for 3 years and prednisone for 2 1/2 of of those years. I tried Humira in March but was not effective so I switched to Enbrel. I have also added Cymbalta, in which I am now
dazzlebandit
in
Pain Concern
9 years ago
Effects of coming off Enbrel?
I have had to stop taking Enbrel for 2 weeks before a forthcoming operation, which I have done any time before, but this time I feel dreadful. It is impossible to sleep yet I am tired and I get the "runs". Has this happened to anyone else? Muffin
I have had to stop taking Enbrel for 2 weeks before a forthcoming operation, which I have done any time before, but this time I feel dreadful. It is impossible to sleep yet I am tired and I get the "runs". Has this happened to anyone else? Muffin
muffin
in
NRAS
9 years ago
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Bad batch??
Do you suppose that there could be bad batches of Enbrel? I ask because I had a flare that came on slowly and became progressively worse over 4 weeks time. This corresponds to the # of pens in a box. Once I started a new box, my flare gradually went away over the next couple of weeks. I feel in great
Do you suppose that there could be bad batches of Enbrel? I ask because I had a flare that came on slowly and became progressively worse over 4 weeks time. This corresponds to the # of pens in a box. Once I started a new box, my flare gradually went away over the next couple of weeks. I feel in great
shareasmile
in
NRAS
9 years ago
The news just gets better
Had my rheumy visit yesterday and I got there to be told my liver functions are off the charts again. Groan. the only new drug is snadomigran which GP prescribed after a couple of strange loss of vision in my right eye episodes. He thought it may be migraines related to blood flow restrictions. So off
Had my rheumy visit yesterday and I got there to be told my liver functions are off the charts again. Groan. the only new drug is snadomigran which GP prescribed after a couple of strange loss of vision in my right eye episodes. He thought it may be migraines related to blood flow restrictions. So off
Someonesmother
in
NRAS
9 years ago
RA or Fibromyalgia?
Please help me figure this out.....I have had a flare for about 4 weeks now. I am currently on Enbrel and sulfasalizine. My blood tests since being diagnosed with RA have always been negative with the exception of a positive ANA. At my appointment this morning, my doctor had me fill out a questionnaire
Please help me figure this out.....I have had a flare for about 4 weeks now. I am currently on Enbrel and sulfasalizine. My blood tests since being diagnosed with RA have always been negative with the exception of a positive ANA. At my appointment this morning, my doctor had me fill out a questionnaire
shareasmile
in
NRAS
9 years ago
Rituximab
Morning. I have just stopped Enbrel injections and am now injecting Methotrexate which I've had to go back on due to having to have Rituximab infusion. I was meant to have the infusion last Thursday but I have postponed it. I want to have my blood test in two weeks to see if my ESR has reduced it was
Morning. I have just stopped Enbrel injections and am now injecting Methotrexate which I've had to go back on due to having to have Rituximab infusion. I was meant to have the infusion last Thursday but I have postponed it. I want to have my blood test in two weeks to see if my ESR has reduced it was
d-creasey
in
NRAS
9 years ago
It just never stops does it?
Gee second bout of bronchitis and severe asthma after being back on enbrel for 6 weeks, I am really hoping this isn't becoming a 'thing'. So I have had neck problems recently had an mri and I have damage which is causing a great deal of pain and restriction in what I can do. Not much they can do so I
Gee second bout of bronchitis and severe asthma after being back on enbrel for 6 weeks, I am really hoping this isn't becoming a 'thing'. So I have had neck problems recently had an mri and I have damage which is causing a great deal of pain and restriction in what I can do. Not much they can do so I
Someonesmother
in
NRAS
9 years ago
Biologic dilemma!
I've been on Enbrel and Humira and had adverse reactions. Saw my Rhuemy this morning and she's asked me to decide which one I want to try next. My options are Simponi, Cimzia or Remicade. Enbrel caused facial/lip swelling after the 5th injection and Humira caused high BP and palpitations. I'm really
I've been on Enbrel and Humira and had adverse reactions. Saw my Rhuemy this morning and she's asked me to decide which one I want to try next. My options are Simponi, Cimzia or Remicade. Enbrel caused facial/lip swelling after the 5th injection and Humira caused high BP and palpitations. I'm really
bernese1225
in
NRAS
9 years ago
Some success with breathing excercises and new meds.
I have also been having adverse reactions to both Symbicort and Seretide, my doctor has changed me from a combined inhaler to two seperate inhalers a steroid (Alvesco) and a LABA (
Onbrez
). As soon as I took the
Onbrez
I knew we were onto something.
I have also been having adverse reactions to both Symbicort and Seretide, my doctor has changed me from a combined inhaler to two seperate inhalers a steroid (Alvesco) and a LABA (
Onbrez
). As soon as I took the
Onbrez
I knew we were onto something.
ck101
in
Lung Conditions Community Forum
9 years ago
Cold sores
Hi all! I am currently treating my RD with Enbrel and Sulfasalazine. It is mostly under good control. In the last few months I have had a couple of cold sores. I get them occasionally anyway but never this often. Is this common with RD meds? How can I treat/control the outbreaks? Please share your tips
Hi all! I am currently treating my RD with Enbrel and Sulfasalazine. It is mostly under good control. In the last few months I have had a couple of cold sores. I get them occasionally anyway but never this often. Is this common with RD meds? How can I treat/control the outbreaks? Please share your tips
shareasmile
in
NRAS
9 years ago
Stopping enbrel
Hi All Feeling really down, after waiting 7 months to start enbrel I have had to stop, pins and needles in feet, side of face and horrible cramps in left leg. Not surprised as I was investigated for MS when I first got these symptoms 10 years ago, but investigations were inconclusive so thought enbrel
Hi All Feeling really down, after waiting 7 months to start enbrel I have had to stop, pins and needles in feet, side of face and horrible cramps in left leg. Not surprised as I was investigated for MS when I first got these symptoms 10 years ago, but investigations were inconclusive so thought enbrel
norton47
in
NRAS
9 years ago
Rash with enbrel
Hi all just started enbrel and after 3 days have got a rash on my tummy. Has anyone else experienced this?
Hi all just started enbrel and after 3 days have got a rash on my tummy. Has anyone else experienced this?
sandyf
in
NRAS
9 years ago
Bronchitis- again
So back on enbrel for about 6 weeks and low and behold I have copped another dose of bronchitis. Aghhh off the enbrel again for a while while I battle this. I hope this is not going to be a 6 weekly event while I am on it.
So back on enbrel for about 6 weeks and low and behold I have copped another dose of bronchitis. Aghhh off the enbrel again for a while while I battle this. I hope this is not going to be a 6 weekly event while I am on it.
Someonesmother
in
NRAS
9 years ago
Back to Humira??
Wondering if one can go back to Humira. Humira was proving ineffective after 14 years of use, had some tough times and was placed on Enbrel 1 year ago plus MTX. This combo is not really that effective and I have a lot of pain and joint damage. Has anyone had experience with going back on Humira, I
Wondering if one can go back to Humira. Humira was proving ineffective after 14 years of use, had some tough times and was placed on Enbrel 1 year ago plus MTX. This combo is not really that effective and I have a lot of pain and joint damage. Has anyone had experience with going back on Humira, I
chuckg
in
NRAS
9 years ago
Delay in repeating Rituximab and total relapse :-(
Hi folks I'm sorry I've not been on ... Sorry for my absence much of which due to my laptop being out of order. Just been looking at recent posts and catching up a bit. I've been in bed virtually at a standstill and mostly housebound since mid June. Seized and flaring the worst I can recall in 20
Hi folks I'm sorry I've not been on ... Sorry for my absence much of which due to my laptop being out of order. Just been looking at recent posts and catching up a bit. I've been in bed virtually at a standstill and mostly housebound since mid June. Seized and flaring the worst I can recall in 20
NeonkittyUK
in
NRAS
9 years ago
day 3 of bad flare
I have been diagnosed for about a year with fibro, about a year and half with RA. I'm On Enbrel, plaquenil, cmybalta and wellbutrin. I am in one of the worst fibro flares I have ever had. i'm going everything I can think of for refielf. i'm taking my pain meds, took a zanex, sat in my hot tub for
I have been diagnosed for about a year with fibro, about a year and half with RA. I'm On Enbrel, plaquenil, cmybalta and wellbutrin. I am in one of the worst fibro flares I have ever had. i'm going everything I can think of for refielf. i'm taking my pain meds, took a zanex, sat in my hot tub for
sally_ward
in
Fibromyalgia Action UK
9 years ago
Drenched with sweat
I'm not talking about a little under-arm perspiration, but head to toe streaming with sweat the whole time. And it's getting worse by the day. I have had a bacterial infection (temperature 102), but that is under control now. I'm off Enbrel and MTX again - but still on 12 mg Prednisilone. My clothes
I'm not talking about a little under-arm perspiration, but head to toe streaming with sweat the whole time. And it's getting worse by the day. I have had a bacterial infection (temperature 102), but that is under control now. I'm off Enbrel and MTX again - but still on 12 mg Prednisilone. My clothes
Jora
in
NRAS
9 years ago
humira causing allergic reaction
hi everyone i haven't been on for awhile. I have been taking humira and it has really helped the RA. BUT I have now been told to stop because I have had a few incidents of swelling and itchy skin. The swelling seems quite strange. It doesn't seem to happen straight after the injection and it isn't on
hi everyone i haven't been on for awhile. I have been taking humira and it has really helped the RA. BUT I have now been told to stop because I have had a few incidents of swelling and itchy skin. The swelling seems quite strange. It doesn't seem to happen straight after the injection and it isn't on
maywing
in
NRAS
9 years ago
Help!
Hi, please can someone help me. I was diagnosed with seronegative rheumatoid arthritis in Dec 2010 and I also have Raynaurds. I am on plaquenil and Enbrel for the RA. Since the beginning of 2012 I have had a problem with my left hand, it started with my little finger and ring finger feel numb and
Hi, please can someone help me. I was diagnosed with seronegative rheumatoid arthritis in Dec 2010 and I also have Raynaurds. I am on plaquenil and Enbrel for the RA. Since the beginning of 2012 I have had a problem with my left hand, it started with my little finger and ring finger feel numb and
Bessieboo1
in
NRAS
9 years ago
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