hi everyone i haven't been on for awhile. I have been taking humira and it has really helped the RA. BUT I have now been told to stop because I have had a few incidents of swelling and itchy skin. The swelling seems quite strange. It doesn't seem to happen straight after the injection and it isn't on the injection site. I have had one time on the lower part of my face, the evening after my injection. the side of my neck a few days after the injection. Last weekend I had itchy scalp which had some patches of swelling and yesterday the area around my left eye and the cheek swelled up and this morning was much worse and had spread to my right eye. My Rheumy nurse told me to stop the humira last week and take Piriton. Today the Dr at A & E gave me steroids and antibiotics and I have to see my G.P tomorrow. The swelling is not quite as bad tonight. The next drug is Simponi. I have been through Six drugs now. The first ones made me sick and methotrexate made me really ill. Enbrel was working for the RA but then I developed a bad rash so it was stopped. I thought I was getting somewhere with Humira. Because I have had these reactions to the drugs without wanting to be pessimistic I wonder if my body will be ok with any thing. What is left after Simponi and is it not true that the further along you have to go with the newer drugs the less they know about their long term effects. Also does any one know why this swelling and itchyness happens. When I saw the Dr today she asked when I had last had Humira, which was 3 weeks ago. she then said it wasn't the drug but an allergic reaction to something else. I haven't had allergic reactions before taking Enbrel or Humira. Is it another autoimmune response from having RA or do the drugs make your body more sensitive and then react allergicly to things. Any ideas? Thanks for listening. May wing x
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