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was it the wrong time to take myself off ibandronic acid?
Hello folks, feeling a bit out of my depths at the moment. I am now 5 years on prednisolone and, after discovering this wonderful forum was on a very slow tapering, got to 6.5 mgs but a bad cold followed by stressful events and I’m back to 7.5 mgs. My husband has recently been diagnosed with non-hodgkins
Hello folks, feeling a bit out of my depths at the moment. I am now 5 years on prednisolone and, after discovering this wonderful forum was on a very slow tapering, got to 6.5 mgs but a bad cold followed by stressful events and I’m back to 7.5 mgs. My husband has recently been diagnosed with non-hodgkins
allofaquandry
in
PMRGCAuk
9 months ago
Zolendroic acid after discovering compression fractures. Osteoporosis.
This is an update and a thank you really, as well as info for others. Last time I posted I was puzzled about back pain. Later after a scan revealed compression fractures I realised that the digging in the garden in July resulting in back pain which I thought was an old war wound slipped disc, was probably
This is an update and a thank you really, as well as info for others. Last time I posted I was puzzled about back pain. Later after a scan revealed compression fractures I realised that the digging in the garden in July resulting in back pain which I thought was an old war wound slipped disc, was probably
Ebiker
in
PMRGCAuk
9 months ago
What we are up against. Parkinson's Pathology: Alpha synuclein. Lewy Body.
Image credit: [i]Lewy pathology in Parkinson’s disease consists of crowded organelles and lipid membranes[/i] https://www.biorxiv.org/content/10.1101/137976v5.full Numerous genetic mutations can cause Parkinson's[1]. The most potent among them are mutations that cause alterations in alpha synuclein.
Image credit: [i]Lewy pathology in Parkinson’s disease consists of crowded organelles and lipid membranes[/i] https://www.biorxiv.org/content/10.1101/137976v5.full Numerous genetic mutations can cause Parkinson's[1]. The most potent among them are mutations that cause alterations in alpha synuclein.
park_bear
in
Cure Parkinson's
1 year ago
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Waiting for laperoscopy
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
LUCY001
in
Endometriosis UK
9 months ago
Should I be concerned about high levels of Iron
Hello everyone, Following continued hair thinning/loss I had an iron test at the end of July with the results as follows - Transferrin San 49% (16-50) comments were - Consider Haemochromatosis if >40% in females. Ferritin was 142ug/L (15-200) on the same date. My previous test at the end of April
Hello everyone, Following continued hair thinning/loss I had an iron test at the end of July with the results as follows - Transferrin San 49% (16-50) comments were - Consider Haemochromatosis if >40% in females. Ferritin was 142ug/L (15-200) on the same date. My previous test at the end of April
Piglet1956
in
Thyroid UK
1 year ago
Severe RLS Where do I go now?
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
e365
in
Restless Legs Syndrome
9 months ago
PMR Update
Good morning everyone - sunny chilly day here in Devon - uplifting after all the grey and rain! So it’s now 7 weeks since I started Pred at 15mg and after return from golf holiday in Spain which went very well and was in no pain at all - so after 3 weeks cut to 12.5 which also settled well and body
Good morning everyone - sunny chilly day here in Devon - uplifting after all the grey and rain! So it’s now 7 weeks since I started Pred at 15mg and after return from golf holiday in Spain which went very well and was in no pain at all - so after 3 weeks cut to 12.5 which also settled well and body
Sungolfer
in
PMRGCAuk
9 months ago
first lap - nothing found. Please help.
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
GraceElli
in
Endometriosis UK
9 months ago
diagnosed with PMR
quick introduction , am early 50’s contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
quick introduction , am early 50’s contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
Emilydarby
in
PMRGCAuk
9 months ago
GCA. LVV
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Oxfordboy2
in
PMRGCAuk
9 months ago
Omega 3 and Salmon consumption
I eat Salmon once or twice a week. Considering what I've read here, is that something to avoid?. I am 26 months post EBRT. I obtained a rx for androgel for QOL. My latest psa was up to 0.1 after being undetectable. I have discontinued androgel since. Any advice will be much appreciated. Chasu
I eat Salmon once or twice a week. Considering what I've read here, is that something to avoid?. I am 26 months post EBRT. I obtained a rx for androgel for QOL. My latest psa was up to 0.1 after being undetectable. I have discontinued androgel since. Any advice will be much appreciated. Chasu
Chasu
in
Advanced Prostate Cancer
2 years ago
Osteoporosis
I tried once weekly 70 mg Alendronate. Was on it 2 weeks and suffered severe migraines to the point I had presssure in my eyeballs. Anyone had similar experience ?
I tried once weekly 70 mg Alendronate. Was on it 2 weeks and suffered severe migraines to the point I had presssure in my eyeballs. Anyone had similar experience ?
Coffeelover57
in
Osteoporosis Support
9 months ago
Update 7.7
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
hunter5582
in
MPN Voice
9 months ago
Gastric side effect of PMR medications
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Suobe
in
PMRGCAuk
9 months ago
strontium
I’ve recently finished 2 year course of Teriparatide and have a hospital appointment shortly to decide next treatment. I have discussed possibility of Stontium with doctor. Does anyone have experience of taking this? Are some kinds of Strontium better than others and will I have a choice as to what
I’ve recently finished 2 year course of Teriparatide and have a hospital appointment shortly to decide next treatment. I have discussed possibility of Stontium with doctor. Does anyone have experience of taking this? Are some kinds of Strontium better than others and will I have a choice as to what
Snowybear
in
Bone Health and Osteoporosis UK
9 months ago
How big are AA tablets
I am considering trying weekly alendronic acid tablets but am worried they will be too big for me to swallow since I have dysphagia (difficulty swallowing). Please, what shape and how long/wide are the tablets people take? Note that there are good reasons why I should not have infusions. Meds involving
I am considering trying weekly alendronic acid tablets but am worried they will be too big for me to swallow since I have dysphagia (difficulty swallowing). Please, what shape and how long/wide are the tablets people take? Note that there are good reasons why I should not have infusions. Meds involving
Jubux
in
Bone Health and Osteoporosis UK
9 months ago
Anyone with alendronate side effects?
I was just diagnosed with osteoporosis in July of this year. My physician immediately started me on alendronate. Approximately two months into treatment I began having severe shoulder joint and muscle pain that is making it too painful to do most exercise I had begun. My physician thinks it is unrelated
I was just diagnosed with osteoporosis in July of this year. My physician immediately started me on alendronate. Approximately two months into treatment I began having severe shoulder joint and muscle pain that is making it too painful to do most exercise I had begun. My physician thinks it is unrelated
ohsuzyq
in
Osteoporosis Support
9 months ago
Anyone taking Anticoagulants for AF, together with Alendronic Acid for Osteoporosis?
I've got AF and taking Edoxaban. I'm also taking Atorvastatin, Ramipril, Bisoprolol and Levothyroxine.I've just been told that I have Osteoporosis, which is a side effect of taking Letrozole for 5 years for breast cancer. Alendronic Acid can help osteoporosis, together with taking calcium and vitamin
I've got AF and taking Edoxaban. I'm also taking Atorvastatin, Ramipril, Bisoprolol and Levothyroxine.I've just been told that I have Osteoporosis, which is a side effect of taking Letrozole for 5 years for breast cancer. Alendronic Acid can help osteoporosis, together with taking calcium and vitamin
MrsSuzuki
in
AF Association
9 months ago
t12 and calcium supplement
I have got severe osteoporosis and I am wandering if I would be better off with a calcium supplement, I tried adcal-d3 after my zoledronic acid infusion but I had to stop because it gave me constipation, I don't want to be messing about measuring out calcium and I don't know if I am absorbing calcium
I have got severe osteoporosis and I am wandering if I would be better off with a calcium supplement, I tried adcal-d3 after my zoledronic acid infusion but I had to stop because it gave me constipation, I don't want to be messing about measuring out calcium and I don't know if I am absorbing calcium
Radars
in
Bone Health and Osteoporosis UK
9 months ago
Success with Adderall dependence and changing medications?
Anyone have any luck changing medications while dependent on Adderall? If so, how did you do it and what if any supplements did you use? Even if it was just quitting altogether, that can be helpful too. I am not addicted, but I am definitely dependent on Adderall. Like many others. The chance to stop
Anyone have any luck changing medications while dependent on Adderall? If so, how did you do it and what if any supplements did you use? Even if it was just quitting altogether, that can be helpful too. I am not addicted, but I am definitely dependent on Adderall. Like many others. The chance to stop
HCStymie
in
CHADD's Adult ADHD Support
1 year ago
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