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Ocrevus
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Ocrevus and MORE disability
I started O in March, stopped driving by May, had my first full dose earlier this October, and have an electric wheelchair coming next month. WTH? This is crazy and I’m just told my “MRI’s look fine”. Is my body not doing what it’s supposed to do with O or will it just get it eventually if I hang in
I started O in March, stopped driving by May, had my first full dose earlier this October, and have an electric wheelchair coming next month. WTH? This is crazy and I’m just told my “MRI’s look fine”. Is my body not doing what it’s supposed to do with O or will it just get it eventually if I hang in
MSohio2021
in
My MSAA Community
3 years ago
Greetings!
DX’d with MS 25+ years ago with very slow progression until I started on
Ocrevus
2 years ago. After using Copaxone, Rebif and now
Ocrevus
I'm back in the search for an MS med that’s ‘right for me’.
DX’d with MS 25+ years ago with very slow progression until I started on
Ocrevus
2 years ago. After using Copaxone, Rebif and now
Ocrevus
I'm back in the search for an MS med that’s ‘right for me’.
Peddler
in
My MSAA Community
3 years ago
Prednisone and ocrevus?
Does anyone know why a person on
ocrevus
shouldnt take prednisone? A doctor, not my usual one said not to take them together. Does anyone know why? I will call my neurologist tomorrow. Thank you Jenny
Does anyone know why a person on
ocrevus
shouldnt take prednisone? A doctor, not my usual one said not to take them together. Does anyone know why? I will call my neurologist tomorrow. Thank you Jenny
jkdavid99
in
My MSAA Community
3 years ago
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Ocrevus round 8
Sitting in the infusion center starting my treatment. Second time I’m getting O at 5 month intervals definitely seeing the benefit no crap gap. I was starting to see a few gap blips but nothing bad. Hate I have to do this DMT. Woke up angry and having a really bad dose of poor mes. How many people here
Sitting in the infusion center starting my treatment. Second time I’m getting O at 5 month intervals definitely seeing the benefit no crap gap. I was starting to see a few gap blips but nothing bad. Hate I have to do this DMT. Woke up angry and having a really bad dose of poor mes. How many people here
NanaCC
in
My MSAA Community
3 years ago
Feeling defeated
I guess no more
Ocrevus
for me, I’m wondering what they will put me on now. My lesions attacked vertebrae C1-C3 and my last relapse C5-C6 and a larger lesion 1-3 which affects your ability to breathe which I why I think my hospitalization, My chest feels heavy, praying I keep breathing.
I guess no more
Ocrevus
for me, I’m wondering what they will put me on now. My lesions attacked vertebrae C1-C3 and my last relapse C5-C6 and a larger lesion 1-3 which affects your ability to breathe which I why I think my hospitalization, My chest feels heavy, praying I keep breathing.
NanaCC
in
My MSAA Community
3 years ago
Any suggestions on how to work on getting my legs up on the bed? Sometimes it’s just not possible without help.
Greetings everyone and I just published another book on my experiences with MS when taking
Ocrevus
.
Greetings everyone and I just published another book on my experiences with MS when taking
Ocrevus
.
positiveness
in
My MSAA Community
3 years ago
Boost
How long after getting
Ocrevus
infusion do you feel a ‘boost?’ (For those that feel it wears off at around 4 months or sooner.) I asked my doctor and she said a couple of weeks. (I had my infusion this morning and im not feeling too much of a ‘boost’)
How long after getting
Ocrevus
infusion do you feel a ‘boost?’ (For those that feel it wears off at around 4 months or sooner.) I asked my doctor and she said a couple of weeks. (I had my infusion this morning and im not feeling too much of a ‘boost’)
Neworleanslady
in
My MSAA Community
3 years ago
My Dr Visit
Have any of you stopped
Ocrevus
? Why? And what meds do you take instead? Thank you and peace
Have any of you stopped
Ocrevus
? Why? And what meds do you take instead? Thank you and peace
NanaCC
in
My MSAA Community
3 years ago
My dearest Lonely person 6 Oct 2021
It is our only hope right now, so do take one, I do not mind which, but in my opinion,
Ocrevus
might be your best bet. Wish they had it back when I started my long ms walk. Enough lecturing. Have a great day and be gentle with yourself. "YOU" honestly are strong enough to live with ms. Royce
It is our only hope right now, so do take one, I do not mind which, but in my opinion,
Ocrevus
might be your best bet. Wish they had it back when I started my long ms walk. Enough lecturing. Have a great day and be gentle with yourself. "YOU" honestly are strong enough to live with ms. Royce
RoyceNewton
in
My MSAA Community
3 years ago
sucussful ocrevus
had a successful
ocrevus
2 hour treatment yesterday,no problems,i was running 1 month behind no problems.my husband had his conference with his heart valve problem and his dr. said he cannot, have it now,he needs to get his health back further,he was honest and told us if he repaired it now,he is afraid
had a successful
ocrevus
2 hour treatment yesterday,no problems,i was running 1 month behind no problems.my husband had his conference with his heart valve problem and his dr. said he cannot, have it now,he needs to get his health back further,he was honest and told us if he repaired it now,he is afraid
pamgarner
in
My MSAA Community
3 years ago
Attack
Sorry I’ve had it for 20 years but don’t really want to drag myself to the hospital for steroids as I do have my
ocrevus
on Sunday but also don’t want to risk the leg any advice?
Sorry I’ve had it for 20 years but don’t really want to drag myself to the hospital for steroids as I do have my
ocrevus
on Sunday but also don’t want to risk the leg any advice?
Sezlatham
in
My MSAA Community
3 years ago
Has anyone with MS receiving Ocrevus every 6 months had extremely bad side effects (flu like symptoms fever fatigue after both 1 f 2 vaccine
MS
Ocrevus
Moderna vaccine
MS
Ocrevus
Moderna vaccine
Smigs
in
My MSAA Community
3 years ago
Great News For Those on B cell depleters!
I’m on
Ocrevus
, and as I posted before, it is doing what it’s supposed to in killing off my B cells. Without sufficient B cells, you don’t produce antibodies from vaccines. So I have no Covid antibodies and remain at high risk for a bad outcome should I get Covid.
I’m on
Ocrevus
, and as I posted before, it is doing what it’s supposed to in killing off my B cells. Without sufficient B cells, you don’t produce antibodies from vaccines. So I have no Covid antibodies and remain at high risk for a bad outcome should I get Covid.
Raingrrl
in
My MSAA Community
3 years ago
MS and Hip replacement? anything I should know?
I was still in denial then, but he's ready to take me on - meeting with my neuro in Oct to understand when should I schedule - right after or before
Ocrevus
and anything else. - I don't mind a 6+ to a year recovery process.
I was still in denial then, but he's ready to take me on - meeting with my neuro in Oct to understand when should I schedule - right after or before
Ocrevus
and anything else. - I don't mind a 6+ to a year recovery process.
anaishunter
in
My MSAA Community
3 years ago
Knee replacement, wound and shingles , what a month!
My next
Ocrevus
infusion is in less than a month. I'm thinking my neurologist will push it back. Anyway, I just wanted to share my experience.
My next
Ocrevus
infusion is in less than a month. I'm thinking my neurologist will push it back. Anyway, I just wanted to share my experience.
Wizardsmom
in
My MSAA Community
3 years ago
Allergic Reaction to Rituximab!What's the Alternatives?
Rheumy is waiting for approval for
Ocrevus
infusion for her. PH Dr mentioned Cyclophosphamide. Rheumy keen for her to start on another biologic as will be better for her PH but haven't come up with any offerings.
Rheumy is waiting for approval for
Ocrevus
infusion for her. PH Dr mentioned Cyclophosphamide. Rheumy keen for her to start on another biologic as will be better for her PH but haven't come up with any offerings.
Wangpaupau
in
NRAS
3 years ago
J&J vaccine effectiveness with Ocrevus
I'm 73 taking
Ocrevus
. Has anyone taken J&J COVID vaccine? If so have you seen any increase in symptoms or disability?
I'm 73 taking
Ocrevus
. Has anyone taken J&J COVID vaccine? If so have you seen any increase in symptoms or disability?
gulfstream40
in
My MSAA Community
3 years ago
Ocrevus
Can anyone on
Ocrevus
please tell me how early you started feeling a crap gap? My infusion was a little over four months ago and my walking and vision is really bad.
Can anyone on
Ocrevus
please tell me how early you started feeling a crap gap? My infusion was a little over four months ago and my walking and vision is really bad.
Neworleanslady
in
My MSAA Community
3 years ago
this has been a long few months
don't get me wrong,time is still flying.i am late for my
ocrevus
treatment by 1 month because just dealing with so much.having it sept. 14th and going to do the 2 hour one again.my broken upper rt arm has healed after 10 weeks and a nasty fall, good news.
don't get me wrong,time is still flying.i am late for my
ocrevus
treatment by 1 month because just dealing with so much.having it sept. 14th and going to do the 2 hour one again.my broken upper rt arm has healed after 10 weeks and a nasty fall, good news.
pamgarner
in
My MSAA Community
3 years ago
Still no B cells 😢
I had antibodies tested —none I had lymphocyte subset test — cd 19 % zero B cells I guess futile to get booster ☹️ By the way last
Ocrevus
infusion November 2020. Moderna vax x 2 completed late April 2021
I had antibodies tested —none I had lymphocyte subset test — cd 19 % zero B cells I guess futile to get booster ☹️ By the way last
Ocrevus
infusion November 2020. Moderna vax x 2 completed late April 2021
erash
in
My MSAA Community
3 years ago
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