Feeling defeated: Last week I had my 8th... - My MSAA Community

My MSAA Community

9,407 members21,192 posts

Feeling defeated

NanaCC profile image
27 Replies

Last week I had my 8th infusion as usual I feel off for a few days to a week after. Now I am in the hospital for a five day stay on IV steroids and another mri to see what ms has done to my spine. Another relapse this year, I’m really scared. I guess no more Ocrevus for me, I’m wondering what they will put me on now. My lesions attacked vertebrae C1-C3 and my last relapse C5-C6 and a larger lesion 1-3 which affects your ability to breathe which I why I think my hospitalization, My chest feels heavy, praying I keep breathing. Finishing first round of steroids wide awake at 3am, prayers please.

Written by
NanaCC profile image
NanaCC
To view profiles and participate in discussions please or .
Read more about...
27 Replies
jimeka profile image
jimeka

🙏 going up. I hope the steroids work. Blessings Jimeka 🤗

kdali profile image
kdali

🙏 I hope you’re breathing better soon, how frightening!

Kenu profile image
Kenu

Prayers are with you and may you recover quickly 🙏🙏🙏 Hang in there 😉 Ken 🐾🐾🐾🐾

bxrmom profile image
bxrmom

I'm sorry you are going through this, hopefully your neuro can find something that will keep you from going into so many relapses. Prayers and good thoughts are with you. Keep us updated when you can.

greaterexp profile image
greaterexp

I'm praying for a swift and complete recovery from this. I'm sorry you're struggling.

falalalala profile image
falalalala

Will do

🙏

carolek572 profile image
carolek572CommunityAmbassador

My prayers are with you, NanaCC , and I hope that you are on the road to recovery. :-D

twooldcrows profile image
twooldcrows

i am so sorry that you are feeling so bad and to have the feeling of not breathing good ...take care and many prayers for a fast recovery on what ever is causing this feeling ...loves...

mm1527mm profile image
mm1527mm

Praying for you that you will feel better quickly!

BlanketTime1 profile image
BlanketTime1

you're in my thoughts. you've been going through it recently! i hope you feel better soon.🤗

Jer29-11 profile image
Jer29-11

Praying for you! I’m so sorry you’re going through this right now. Stay strong ❤️

ahrogers profile image
ahrogers

Prayers up 🙏🙏🙏

leking1 profile image
leking1

Love and prayers for a full and quick recovery.

goatgal profile image
goatgal

You're carried in my thoughts. May you find the answers you seek and steady friends to help you over the rough spots on the road ahead..

JSSimp profile image
JSSimp

Will keep you in prayer

MSohio2021 profile image
MSohio2021

Praying for the steroids and rest to get you through the off days you were anticipating, but more importantly for the DMT to do what it’s supposed to do! I pray that all the strength your body has will switch over to help you heal instead of fight against you!

JTZES profile image
JTZES

Prayers for you. Stay strong and thank your neroligist for running a cervical spine MRI.

DIsneyQueen profile image
DIsneyQueen

May you be safely cradled in God’s arms and he brings you a speedy and full recovery 😇😇🙏🙏🙏

Brindisi1 profile image
Brindisi1

Covering you in prayers. Go away lesions

NanaCC profile image
NanaCC

No new lesions thank god and thank you all for your kind words, prayers and support

mrsmike9 profile image
mrsmike9

Definitely...prayers

Tazmanian profile image
Tazmanian

No lesions is good news 😇🙏

NanaCC profile image
NanaCC

All stress related I have to put me first per dr orders. My husband has Parkinson’s I am his caregiver. Will figure it out

Humbrd profile image
Humbrd

Prayers for you that your breathing improves and that you get some help at home so some stress is lifted.

anaishunter profile image
anaishunter

Sending you a big hug of support. Keep fighting. I hope the steroid and other treatments will do their job and that you'll get a break from this nasty disease.

pamgarner profile image
pamgarner

faith brings hope and you have lots of us praying for you

rjoneslaw profile image
rjoneslaw

sorry 2 hear that

Not what you're looking for?

You may also like...

Feeling defeated

So it seems I’m batting a big fat zero today. I logged in to find my SSDi was denied but I have to...

Ocrevus — dose 1

So had my first dose today , went well no issue little tired but they said it could be the...
Annabal82 profile image

Need Help

Hi Friends, I would appreciate your encouraging words tonight. I found out I have another relapse...
nicoly3467 profile image

Well I saw the new neuro yesterday

Well I saw the new neuro yesterday and got the most involved exam I've ever received from a neuro....
dogdaddy profile image

Relapse

I just had my first relapse since being diagnosed 7 years ago. I had been taking Tecifedera, which...

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.