Greetings!: DX’d with MS 25+ years ago... - My MSAA Community

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Greetings!

Peddler profile image
12 Replies

DX’d with MS 25+ years ago with very slow progression until I started on Ocrevus 2 years ago. After using Copaxone, Rebif and now Ocrevus I'm back in the search for an MS med that’s ‘right for me’.

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Peddler profile image
Peddler
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12 Replies
kdali profile image
kdali

Welcome! I hope you have a lot of meds to choose from, and you can search posts here to see how members like one or not, if it’s been discussed.

Hi Peddler😊

Sorry , I " accidentally", pressed the send button , before I got done🤣It's really up to YOU what DMT'S you are on . Personally , I'm on tecfidera, worked for me for Years .

Good luck🙏💓Lisa💕

ahrogers profile image
ahrogers

Thankfully you have lots of options now compared to 25 years ago. Hopefully you have a good neurologist to go over the pros and cons of all the DMTs. It is more individualized now with so many to choose from and your personal characteristics.

I am hoping Ocrevus continues to keep me stable for many more years. By then there will be even more options. There is so much research going on for MS 😁

Good luck making a decision, I know it isn't easy.

sashaming1 profile image
sashaming1

I've had success with Tysabri, and now , after I tested positive for the JC Virus - which can possibly lead to a serious side effect (ending in death), with Lemtrada.

sapphire65 profile image
sapphire65

Hi! I have used copaxone when I was diagnosed (2001) It worked great at that time. My symptoms went away and I stopped the med. I had a relapse in 2015 and now I take Gilenya (fingolimod) daily. It is a great medication. Maybe you could try that one. Best wishes.

bxrmom profile image
bxrmom

I was on Copaxone (both daily and then 3xs/week). I switched to Tecfidera after running out of places to do injections. Tecfidera is working great for me. My wbc is on low side, if it goes any lower I will have to 'take a break' or switch to something else. I was dx in 2006.

rjoneslaw profile image
rjoneslaw

Good luck on your search

positiveness profile image
positiveness

Greetings! I switched to Kesimpta from Ocrevus about six months ago. Definitely more convenient for me. Especially during the pandemic. I am just hoping for the best.

carolek572 profile image
carolek572CommunityAmbassador

Welcome to the forum, Peddler , and good luck with your DMT research. You can start by going to mymsaa.org. There is a lot of information contained there. I look forward to hearing more from you. Keep Smiling :-D

BlanketTime1 profile image
BlanketTime1

welcome! i hope you find an effective dmt.

hairbrain4 profile image
hairbrain4

I too used Rebif & Copaxone & Ocrevus. I'm going to change to Kesimpta if my insurance will cover it. If not I will go back to Copaxone 3x a week. The only reason I quit Copaxone was I started getting lumps at the injection site on my hips & my arms started to sink in from all the injections. Ocrecus worked great for the 1st year & then it started to stop working. The last infusion didn't work at all. I was having on average 1 flare a week. I've even had 2 new symptoms. Very disappointed. But there are a lot of new drugs out there now for you to choose from. Talk it over with you're neuro.

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