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Ocrevus
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My introduction
Just wating to begin the
Ocrevus
infusions (really want to start this one SOON!!) Wishing everyone here well! ✌
Just wating to begin the
Ocrevus
infusions (really want to start this one SOON!!) Wishing everyone here well! ✌
Shannondixon
in
My MSAA Community
6 years ago
Ocrevus discussion with neurologist
I have been on
Ocrevus
for a year with no results. Weaker if anything. Decided not to continue unless I start to slide faster. Did go to Adderall for energy.
I have been on
Ocrevus
for a year with no results. Weaker if anything. Decided not to continue unless I start to slide faster. Did go to Adderall for energy.
Yooper
in
My MSAA Community
6 years ago
Report on my first half of ocrevus
Like a lot of people I was fearful, I hope I can eliminate that some,but everyones experience can be different.My experience was appt. at 7am by 7:15 hooked up to IV. then proceded to give me steroids first and 2 Tylenol in case of headache.the benedryl is in steroid mix.I am allegic to benedryl so the
Like a lot of people I was fearful, I hope I can eliminate that some,but everyones experience can be different.My experience was appt. at 7am by 7:15 hooked up to IV. then proceded to give me steroids first and 2 Tylenol in case of headache.the benedryl is in steroid mix.I am allegic to benedryl so the
pamgarner
in
My MSAA Community
6 years ago
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reporting on 2nd 1/2 dose of Ocrevus
I had my 2nd 1/2 dose of
Ocrevus
yesterday. It was eventless like the 1st one two weeks ago. Already knowing what it was all about made, I had far less anxiety and was more relaxed. Went in at 8:30am, was done at 1:30am. The Benadryl shot hit me harder this time, but I got out of it faster.
I had my 2nd 1/2 dose of
Ocrevus
yesterday. It was eventless like the 1st one two weeks ago. Already knowing what it was all about made, I had far less anxiety and was more relaxed. Went in at 8:30am, was done at 1:30am. The Benadryl shot hit me harder this time, but I got out of it faster.
anaishunter
in
My MSAA Community
6 years ago
Results 😪😭
Went to the doctors they said i cant be without meds cause i they said i have aggressive ms needed to be on a medication so they're going to put me on
ocrevus
while I'm waiting for my insurance to approve it they told me to stay on rebif I am so scared to be on
ocrevus
how is it getting it from yall's
Went to the doctors they said i cant be without meds cause i they said i have aggressive ms needed to be on a medication so they're going to put me on
ocrevus
while I'm waiting for my insurance to approve it they told me to stay on rebif I am so scared to be on
ocrevus
how is it getting it from yall's
Jackjosh
in
My MSAA Community
6 years ago
Anyone with SPMS on Ocrevus?
My neuro said its the only current DMT option for me if I choose but upon discussion of its effects in SPMS, she did not paint a rosy picture of its benefit at this stage. "A few have good results, most no benefit." 🙁
My neuro said its the only current DMT option for me if I choose but upon discussion of its effects in SPMS, she did not paint a rosy picture of its benefit at this stage. "A few have good results, most no benefit." 🙁
erash
in
My MSAA Community
6 years ago
New Here...
Was on Copaxone for years and just moved to
Ocrevus
. Had my first half infusion last Tuesday with moderate side effects. The itching was the worst, but I got through it! Also had some fatigue and body aches, but they didn't last but a couple of days.
Was on Copaxone for years and just moved to
Ocrevus
. Had my first half infusion last Tuesday with moderate side effects. The itching was the worst, but I got through it! Also had some fatigue and body aches, but they didn't last but a couple of days.
miwido
in
My MSAA Community
6 years ago
Ocrevus beginning
Since I received the second IV for the first month of treatment with
Ocrevus
I have it felt right. My throat hurts, I’m very fatigued. I can’t sleep enough which is unlike me. I’m weak and falling everyday. I’ve hit my head twice, which has never happened to me.
Since I received the second IV for the first month of treatment with
Ocrevus
I have it felt right. My throat hurts, I’m very fatigued. I can’t sleep enough which is unlike me. I’m weak and falling everyday. I’ve hit my head twice, which has never happened to me.
Patty154
in
My MSAA Community
6 years ago
OCREVUS
I will receive my 1st half dose of
Ocrevus
on July 5th.
I will receive my 1st half dose of
Ocrevus
on July 5th.
REDLIPS44
in
My MSAA Community
6 years ago
Symptoms Worse After Ocrevus
Received my seond initial dose in May 2018 and my symptoms are worse - balance, walking and pain.
Received my seond initial dose in May 2018 and my symptoms are worse - balance, walking and pain.
dallas343
in
My MSAA Community
6 years ago
1 month in since Diagnosis - this is the most baffling diease; doesn't help that DR's do not seem to have any answers that are worthwhile.
I have had
Ocrevus
, IV steroids; Modafinil and Baclofen for PPMS. None of these have helped, I'm still exhausted, have dropped 15 pounds (I didn't have to begin w/to lose). I take B12, D3, Niacin, C and Lecithin. Eat every vegetable and fruit I can work into my day in every possible form.
I have had
Ocrevus
, IV steroids; Modafinil and Baclofen for PPMS. None of these have helped, I'm still exhausted, have dropped 15 pounds (I didn't have to begin w/to lose). I take B12, D3, Niacin, C and Lecithin. Eat every vegetable and fruit I can work into my day in every possible form.
Juliew19673
in
My MSAA Community
6 years ago
1st Ocrevus infusion & 1st ms treatment
It was a lot more straightforward and easier than anything I had read about
Ocrevus
. Yes, the Benadryl shot made me drowsy for a few hours but given that I had to be locked on a chair for 5 hours, it was not a big deal.
It was a lot more straightforward and easier than anything I had read about
Ocrevus
. Yes, the Benadryl shot made me drowsy for a few hours but given that I had to be locked on a chair for 5 hours, it was not a big deal.
anaishunter
in
My MSAA Community
6 years ago
How many MSers have done Ocrevus?
And..what results have been seen?
And..what results have been seen?
BalanceRUS
in
My MSAA Community
6 years ago
Lemtrada vs ocrevus
Which one is better. Its clear I cant swallow big pills, so tecfidera is out. Here we go again
Which one is better. Its clear I cant swallow big pills, so tecfidera is out. Here we go again
jkdavid99
in
My MSAA Community
6 years ago
Side Effects of Ocrevus
Can anyone please tell me what side effects they've had from taking
Ocrevus
? Thanks. Leslie
Can anyone please tell me what side effects they've had from taking
Ocrevus
? Thanks. Leslie
lbenmaor
in
My MSAA Community
6 years ago
Ocrevus User
Started
Ocrevus
had second infusion 2 weeks ago. I am back to sleeping a lot. Is this normal 9 + hours a day. Nothing dramatic has happen yet. Any comments would be great .
Started
Ocrevus
had second infusion 2 weeks ago. I am back to sleeping a lot. Is this normal 9 + hours a day. Nothing dramatic has happen yet. Any comments would be great .
Jj12010
in
My MSAA Community
6 years ago
Will my hubby become incontinent?
He'll begin his first treatment of
Ocrevus
in August so we can stop the monster from spreading. TIA
He'll begin his first treatment of
Ocrevus
in August so we can stop the monster from spreading. TIA
JeanieU
in
My MSAA Community
6 years ago
Frustrated lurker finally posting!
Btw, I’m Secondary-progressive and JC+ I would appreciate any words of wisdom or any experiences fighting your insurance, especially regarding the
Ocrevus
. Thanks for reading!
Btw, I’m Secondary-progressive and JC+ I would appreciate any words of wisdom or any experiences fighting your insurance, especially regarding the
Ocrevus
. Thanks for reading!
Hidden
in
My MSAA Community
6 years ago
Ocrevus Press Release
Here is a press about
Ocrevus
(Ocrelizumab). May be interesting for some as it was for me. Please go to https://www.gene.com/media/press-releases/14714/2018-04-22/new-
ocrevus
-ocrelizumab-data-at-aan-demo
Here is a press about
Ocrevus
(Ocrelizumab). May be interesting for some as it was for me. Please go to https://www.gene.com/media/press-releases/14714/2018-04-22/new-
ocrevus
-ocrelizumab-data-at-aan-demo
carolek572
CommunityAmbassador
in
My MSAA Community
6 years ago
First full Ocrevus Infusion
Today is my first full
Ocrevus
Infusion. I’ve been here since 9:00am PST and have a couple more hours to go including the monitoring time. So far, it’s been fine other than I hate sitting still for this long. I’m glad to not have to sit through this more than once in every six months.
Today is my first full
Ocrevus
Infusion. I’ve been here since 9:00am PST and have a couple more hours to go including the monitoring time. So far, it’s been fine other than I hate sitting still for this long. I’m glad to not have to sit through this more than once in every six months.
Raingrrl
in
My MSAA Community
6 years ago
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