How many MSers have done Ocrevus?

[BalanceRUS]

And..what results have been seen?

[Jesmcd2 CommunityAmbassador]

Hello again BalanceRUS so glad to see you back! ☺ How have you been?

I don't personally take ocrevus but Fancy1959 and Allen5280 do. And so do many others! I just can't think right now.🤔 😐 Story of my Life. Ugh🤣

Pull up a chair, and some ice tea. And cheap things out! 🤗💕

Jes🌠

[Jj12010]

Just started

[Shan58]

I just finished my second infusion ( June 28th ) and feel like I have had the flu all week. Did better with 1st infusion. But I pray it works...

[marigoldg791]

My doctor has suggested switching to Orcevus. I have Secondary MS and am progressing rapidly. I am a bit reluctant because it is a medication that is based on Interferon and I haven't done well on those medications. Feeling like I have the flu all the time is just added misery for me.

There IS a new medication for Progressive forms that was submitted to the FDA for approval earlier this year and the FDA is fast-tracking it for approval. Unfortunately "fast-tracking" is not fast at all. I'm hoping to wait until that medication is approved before I switch, but I may be left with little choice.

I'll be following this thread with interest. Thank you for posting your question!

[bavery207]

BalanceRUS I have PPMS, so Ocrervus may slow progression but it did not get credited with anything else for us , which is hard to judge. I have had the two half doses, and 1 full dose. My next dose is Aug. 1. As far as results...my knees are a bit weaker and my balance seems a bit shakier, and who can say if that is a slower progression??? But I do know that about 2 months ago my extreme afternoon fatigue lifted. I may still have to sit and rest my knees/legs for a bit, but then I can get back up and continue with my chores whereas before, once I sat down in the afternoon I was not likely to get up again. And I would say that that is some progress!

[RobertCalifornia]

I have PPMS. I have had my two initial doses and two full 600 mg doses. Before my second full dose I had a brain MRI. No new lesions. First time without new lesions since diagnosis in 2013. My walking appears to be slightly better. Bowel and bladder slightly better and short term memory slightly better. My neurologist said to give Ocrevus two full years before judging it. My hope is that Ocrevus continues to slow down the progression. It does not claim to improve MS symptoms or cure it.

[Yooper]

I have my 2nd full dose(1yr) at the end of July. So far I don't feel any different. My progression seems to have slowed or stopped but that may be me being optimistic. Any way, enjoy each day and know it's in the Lord's hands. It's a beautiful day for the 4th here in the U.P. of Michigan. God Bless 🙏.

[JMWCO]

I did my first two doses may/June. Next full 1 dose November. My energy is back until 9pm which is he biggest change at this moment as it talked at least 90+ days to know per my neurologist.

Good luck