Ocrevus beginning

[Patty154]

Since I received the second IV for the first month of treatment with Ocrevus I have it felt right. My throat hurts, I’m very fatigued. I can’t sleep enough which is unlike me. I’m weak and falling everyday. I’ve hit my head twice, which has never happened to me. It is spring and I do have hay fever. I can’t stop feeling itchy all over. I had a fierce UTI which required Cipro for 7 days, twice a day. Should I be worried or is this usual?!?

Please advise!

Patty

[jimeka]

Hi Patty, you are the second person this week to complain for unpleasant side affects after Ocrevus treatment. Obviously not everyone responds to it in the same way. I do hope that your symptoms improve. Blessings Jimeka 🦋 🍫

[kdali]

I’m sorry you are having a rough time. The UTI is enough to cause a flare, perhaps steroids are needed? I would let my neuro know or if you have, let them know you’ve finished the antibiotics and still feel awful.

[ssdw1958]

I have a question for you and it’s did you let your neurologist know about your issues because those are all allergic reactions. I say this because once you get the next dose that one is going to be a full dose.

[Patty154 in reply to ssdw1958]

Believe it or not, I haven’t told my neurologist! I love the idea of getting a medication that will prevent any and all relapses. I fear my Dr will not want me to continue using Ocrevus. Thanks for the reply you sent me. And thanks to you, I am going to reach out to my Neurologist! Great advice

[lbenmaor]

Patty154,

Have you talked to your Doctor? They are trained on how to manage this.

I'm so sorry you are experiencing this. Please let me know how you're doing.

Leslie

[dallas343]

Patty I also just received my initial treatment of Ocrevus and him doing much worse with my falling instability and walking. I also forgot to mention that I had a UTI as well but I got a lot of great responses from this group and many of them felt that we just had to wait and see and that it it takes anywhere from 3 to 6 months to see the effects of Ocrevus. But again share it with your doctor.

[Patty154 in reply to dallas343]

I will definitely share my experiences with my neurologist! I’ve been documenting! Ive also stayed very optimistic! Never any other relapses! I feel “cured”!!! Thanks for sharing you info

[Yooper]

Patty154: I feel very fatigued after infusions but none of the other symptoms. Make sure you talk to your doctor. You are in my prayers 🙏.

[Patty154]

I’m actually documenting my experiences for my neurologist. I’m still very optimistic. No further relapses makes me feel as though I’m cured!!! Thanks for sharing!