Ocrevus User

[Jj12010]

15 years Ms . Started Ocrevus had second infusion 2 weeks ago. I am back to sleeping a lot. Is this normal 9 + hours a day. Nothing dramatic has happen yet. Any comments would be great .

[greaterexp]

I do not take Ocrevus (yet), but many here do. I'm sure you'll get some comments, but you may also look at posts related to your question by using the "Search My MSAA Community" button at the top right of the page.

I do recall several people referring to extra fatigue for a few weeks following their infusions, but feel it's worth it for the benefits.

I hope you feel perked up soon.

[lbenmaor in reply to greaterexp]

greaterexp,

Thanks for the reply. I don't plan on taking any

medication. I'm handling it naturally-diet and exercise.

Leslie

[Kellyj44]

Hi. I'm getting ready to do my third round of Ocrevus on June 26th and each time It seems to take about 3 weeks for me to start feeling better than I did.

Hopefully it will lick in very shortly.

Wish I could you the answer. Not sure. I never sleep long hours. Best for me is 5 hours.

Love & prayers.

[lbenmaor in reply to Kellyj44]

Thanks for the info. I hope you feel well.

Leslie

[Kellyj44 in reply to lbenmaor]

Thank you. Tues is the day! Can't wait. Sure hope it kicks in quickly this time.

I hope your doing well. Take care.

[lbenmaor in reply to Kellyj44]

I'm gathering info on it. Not on it.

Stay Strong!

Leslie

[bavery207]

Jj12010 Once I retired 6 years ago I have slept up to 9 hours a night. Starting Ocrevus has not changed my sleep patterns at all. I have been on Ocrevus a year. My PPMS is continuing to slowly worsen, but I am not experiencing the terrible fatigue now that I had before. This started to happen about 3 months after my first full dose,

[lbenmaor in reply to bavery207]

Thanks for the reply. I'm glad you're not experiencing any fatigue.

Leslie

[Yooper]

I always need 9-10 hours. Plus a 1-2 hour nap. But, it was this way before the Ocrevus. 14 years with the MS monster.

[Jj12010 in reply to Yooper]

Yoooer I’m a Troll. Just thought you would get it. LOL

[JMWCO]

I had incredibly debilitating fatigue pre Ocrevus. I hadn’t realized how much I was trying to do and how truly worn out I was.

I had a headache the first ½ does and some low grade headaches the 2nd. But they subsided quickly.

I tend to be taped out by 9pm most days since determining I have MS and stopped trying to “push” through to get things done. Since Just trying to re-balance my obligations and life. I have my own business and little kids. I tend to get up at 6/7am cause work starts calling but gratefully sleep till 9am when I can.

I avg. 6-9 hours of sleep depending if my kids go to bed when I do and if it is a work day.

Hope that helps! My neurologist says the initial side effects are great (no all day fatigue) but they cannot determine effectiveness until at the minimum 90 days of treatment on the drug. I do have mini flare ups but all short and just annoying.

Looking forward to consistently if it exists. 🤔🤗

[CraigS]

I would kill for a long nights sleep. Most nights I don't get to bed before 2 or 3?am and I'm up at 7. Plus I have to arch a nap or two during the day depending on the heat. Tired is the new norm.

[Yooper]

😉 Life under and over the bridge sure can have its up and downs. God bless 🙏.

[kdali]

I use to sleep that much (whether on a drug or not) and I was not functional unless I did. Most of the time I also needed a nap around 4pm to be able to make dinner. I think it's pretty common.

[Jj12010]

So month 1 down with Ocrevus I can walk and stand for a bit. Hope it gets better

[Jj12010]

So month 1 down with Ocrevus I can walk and stand for a bit. Hope it gets better