Will my hubby become incontinent? - My MSAA Community

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Will my hubby become incontinent?

JeanieU profile image
10 Replies

I'm curious, I've read a few stories from you here. Is it inevitable? Is there anything we can do to prepare? He's 52, so he's already dealing with an enlarged prostrate. He'll begin his first treatment of Ocrevus in August so we can stop the monster from spreading. TIA

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JeanieU profile image
JeanieU
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10 Replies
RoyceNewton profile image
RoyceNewton

Nothing my dear is inevitable. Just be prepared, wear your depends when you ;eave the house, put a mattress protector on your bed, limit your liquid consumption late at night. Piece of cake, I would be more concerned about the prostrate stuff. Sorry I forgot, you may have an issue with a lack of 16year old hard erections I am very sorry to say.

JeanieU profile image
JeanieU in reply to RoyceNewton

ha ha ha. Since I'm older than my husband, the lack of 16 year old hard erections won't be an issue. Thanks (again) for the support

RoyceNewton profile image
RoyceNewton in reply to JeanieU

:-)

RoyceNewton profile image
RoyceNewton in reply to RoyceNewton

I'm glad :-)

Fancy1959 profile image
Fancy1959

JeanieU, it's Fancy1959. First keep in mind that Ms I attacks no to people the exact same way. We all walk our own path down this winding and twisted road that Ms leads us down. As the old saying go the only thing for certain in life is death and taxes! LOL! Royce gave you good advice just be prepared. Even if that should happen it does not mean you and your husband cannot be physically close. It's up to you to to work out the details and to keep yourself in tune with one another. But understand where there's love, love will find a way to bind and hold you both together! Fancy.

JeanieU profile image
JeanieU in reply to Fancy1959

Hey Fancy - thanks for the reminder. I am definitely going through this with him, he's not tech savvy so I do most (if not all) of the research and try to prepare for everything. I'm sure it annoys him...but deep down I know he appreciates it. I worry about giving him too much information at once, he's teetering on depression right now and I haven't found a therapist he's comfortable talking to (yet). We take it day by day. I feel like a broken record, but, thank you. It means so much to have support.

Fancy1959 profile image
Fancy1959 in reply to JeanieU

Jeanie it's Fancy back. Work slowly but gradually and introduce the idea to your husband that perhaps he might also benefit from being involved in this awesome chat room. As it usually goes with my husband I have to beat around the back door and try to make him feel as if he's making the decision and it's his idea. But I truly believe if we could get your husband involved in the chat room this would be some of the best therapy he could do. He would realize he's not alone in fighting this monster. He could realize that he's not alone in fighting the same fights that everyone else is fighting at the same time and he could ask questions and try to prepare himself for the fight. He could also find out how to use different resources and perhaps beat this monster at its own game in certain areas. And he could truly understand that at one time or another most people in this chat room feel down and fight depression because this monster overwhelms us all from time to time! I cannot think of any better therapy for him than having him talk to people who truly understand what he's going through because they're going through the same thing, at the same time he is.

No matter how good the therapist is if the therapist is not fighting this dreaded Beast we call MS, he really can't comprehend the complexity of this disease and how it affects everyone fighting it. The old saying comes to my mind that unless you've walked a mile in our shoes you don't understand the shoes we fill. Let me know if I can help in any way. Until we speak again please tell your husband to take care and we wish him the very best. Fancy.

JeanieU profile image
JeanieU in reply to Fancy1959

Wise words, and I'll talk to Andrew about it tonight.

ExSoCal54 profile image
ExSoCal54 in reply to Fancy1959

To Fancy1959 I agree with what you said and I will also put my 2cents in.

Depending on where you Live there are Support Groups out there that meet up and share resources and meet for special events I belong to one such group and we meet and discuss how everyone is doing and find resources for everyone, we meet once a Month for a couple of hours. So, this could be a option for your husband and you. If you call the MSAA they should be able to tell you if there is a group in your area.

I have the dreaded IC issue's and it is a reality of this messed up disease that 80% or more of us suffer from.

greaterexp profile image
greaterexp

You're a wonderful support for your husband! He is so blessed to have you.

You've already had responses reminding you that no two MS cases have the same problems or the same progression. We all try to prepare as best we can, but we simply get no planned course. That you show such sensitivity to your husband's need makes you way ahead of the game.

Keep in touch and let us know how you both are doing. Caregivers carry a different type of load, but it can be very heavy at times. We all need a place to vent, and this warm group doesn't mind it in the least when we do.

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