Lemtrada vs ocrevus: Which one is better... - My MSAA Community

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Lemtrada vs ocrevus

jkdavid99 profile image
16 Replies

Which one is better. Its clear I cant swallow big pills, so tecfidera is out. Here we go again

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jkdavid99
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16 Replies
kdali profile image
kdali

That's a tough comparison. Does your MD lean towards one?

jkdavid99 profile image
jkdavid99 in reply tokdali

Not that I know of, but I need to go see him again since I cant take techfidera. I have taken aubagio and those pills are very small so maybe I should get back on that.

kdali profile image
kdali in reply tojkdavid99

Did you fail Aubagio though? Once you have tried a few the waters get muddy and you really need your neurologist to narrow it down to two choices for you to research, and then tell you flat out which one they would choose. I hope you get in to see him asap, as it sounds like you're not able to take your treatment right now 😵

jkdavid99 profile image
jkdavid99 in reply tokdali

I did have a new lesion on aubagio but it seems better than nothing. I just cant take the giant techfidera pill. I am stressed already about trying again tomorrow. I would have never tried this med had I known I couldn't take this dumb pill. Thanks though you are right. I guess I should try another infusion. I wish I wasn't such a big baby

Juleigh21 profile image
Juleigh21 in reply tojkdavid99

Didn’t you have major problems with tysabri? I would think Ocrevus and Lemtrada could be a challenge also.

jkdavid99 profile image
jkdavid99 in reply toJuleigh21

I had a reaction of feeling like I was suffocating and chest pressure. Had pre meds too

kdali profile image
kdali in reply tojkdavid99

You're not a baby, some people just can't take pills. It just doesn't happen, they gag and cry while the pill turns into a soggy mess. You've got two great IV options to consider! It may sound silly, but I recently looked up the data and made a pros and cons list and it helped. My MD agreed with my choices and hopefully #2 will be a winner. GL! Failing a drug and having to pick a new one really stinks, but we still have options🎉

jkdavid99 profile image
jkdavid99 in reply tokdali

Dr is getting ocrevus set up. No pills , hoping for the best with zero side effects. Good luck to you.

kdali profile image
kdali in reply tojkdavid99

Fantastic! 🎉 I hope it goes great, works well, and that you let us know when your infusion day is. Thank you!

Iona60 profile image
Iona60 in reply tojkdavid99

How it works well for you.

I can't tell you, there are many considerations of your medical problems etc, I would discuss with your teams before making a choice. Do your research on both DMTs so you can discuss them with your doctor. I don't take either I'm on Rituxan which is also an infusion every six months and I love it.

Kellyj44 profile image
Kellyj44

My doctor just took it upon himself to do Ocrevus.

So far so good.

Good luck with whatever you decide. I hope and pray all will work out with whichever you may go with.

ssdw1958 profile image
ssdw1958

I want to let you know I was on Tecfidera and I had to get off of it to start the Ocrevus. I don’t know about the other medicine. And the Ocrevus has only been out not even a year. Have you looked into the medicines to see which on you want to have and did you talk with your doctor.

Good luck in which ever one you decide.

Momjules profile image
Momjules

I was on tecfidera for sixteen monthes.

I had my mris and I have many new active lesions.

We believe it never worked for me.

Please watch carefully.

Iona60 profile image
Iona60 in reply toMomjules

What a disappointment. I hope that you are in a new need that works better.

fireeater profile image
fireeater

I LOVE Lemtrada, but had some pretty major reactions when taking it the first time. Fortunately, I was surrounded by doctors! I don't think my reaction was the usual. After the infusion, I had great benefits from it - Lemtrada is the only drug I've tried that has worked for me, and it was #6. But my results are not going to be the same for everyone, unfortunately - I know quite a few who like Ocrevus very much, though I've never tried it. Best of luck to you!

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