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Post 727 ms Month 2021 1 Mar 2021
Ocrevus
as I understand it is currently the strongest that “YOU” can take. Seriously if “YOU” know better please share. This is a lifelong illness, it is best for “YOU” to start out STRONG. Remember always it will be “YOU” that suffers in the longterm, not me, not your doctor.
Ocrevus
as I understand it is currently the strongest that “YOU” can take. Seriously if “YOU” know better please share. This is a lifelong illness, it is best for “YOU” to start out STRONG. Remember always it will be “YOU” that suffers in the longterm, not me, not your doctor.
RoyceNewton
in
My MSAA Community
3 years ago
Ocrevus and Covid
Has anyone been given advice from your doctor to not take
Ocrevus
while Covid is around?
Has anyone been given advice from your doctor to not take
Ocrevus
while Covid is around?
chairbear
in
My MSAA Community
3 years ago
MS, Ocrevus And Timing Of Covid Vaccine
PostID=1062 I am on
Ocrevus
and have read many articles about getting the Covid vaccine. A neurologist from Yale, Dr. Richard Novak, recommends that people on
Ocrevus
get the vaccine within two weeks before their next infusion. I get my next infusion in June.
PostID=1062 I am on
Ocrevus
and have read many articles about getting the Covid vaccine. A neurologist from Yale, Dr. Richard Novak, recommends that people on
Ocrevus
get the vaccine within two weeks before their next infusion. I get my next infusion in June.
Midsomer1
in
My MSAA Community
3 years ago
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Unnumbered post YOU add by just being 12 Feb 2021
Ocrevus
is your best bet for Relapsing-Remitting ms (RRms). It will have aide effects but they can be managed. Talk to your doctor, ask questions, do your research, ALWAYS do your research. Become knowledgeable about your RRms. Try hard not to be a sheep, just following the herd.
Ocrevus
is your best bet for Relapsing-Remitting ms (RRms). It will have aide effects but they can be managed. Talk to your doctor, ask questions, do your research, ALWAYS do your research. Become knowledgeable about your RRms. Try hard not to be a sheep, just following the herd.
RoyceNewton
in
My MSAA Community
3 years ago
??? Labs for ocrevus
Per webinar Dr Thrower indicated because somewhat increased risk covid severity on B cell depleted (
Ocrevus
, rituxan, kisimpta), you should have your immune function assessed. He suggested the following labs: cd19/20, T cell subsets, lymphocytes, IgG and IgM. I wondered what others were doing ?
Per webinar Dr Thrower indicated because somewhat increased risk covid severity on B cell depleted (
Ocrevus
, rituxan, kisimpta), you should have your immune function assessed. He suggested the following labs: cd19/20, T cell subsets, lymphocytes, IgG and IgM. I wondered what others were doing ?
erash
in
My MSAA Community
3 years ago
Can I expect "ANY" relief after 1st infusion?
Then an infusion of
Ocrevus
by the end of March. Can I expect any improvement in even a few symptoms? I need hope on the horizon, ya'll. My neurologist is a young, healthy, false eyelash kind of gal, who hasn't a clue how upside down MS makes one's life. Thanks!
Then an infusion of
Ocrevus
by the end of March. Can I expect any improvement in even a few symptoms? I need hope on the horizon, ya'll. My neurologist is a young, healthy, false eyelash kind of gal, who hasn't a clue how upside down MS makes one's life. Thanks!
Mollyabigail
in
My MSAA Community
3 years ago
ocrevus and covid vaccine
my neurologist just texted me and told me,the ideal time to get the covid vaccine is 4 months after treatment,but you may take it 2 to4 weeks after treatment since there is limited supplys.take it as soon as you have access to it and if you are going to get it before treatment,perferably 2 to 4 weeks
my neurologist just texted me and told me,the ideal time to get the covid vaccine is 4 months after treatment,but you may take it 2 to4 weeks after treatment since there is limited supplys.take it as soon as you have access to it and if you are going to get it before treatment,perferably 2 to 4 weeks
pamgarner
in
My MSAA Community
3 years ago
NMSS Guidelines for Covid vaccine posted
There are general guidelines that apply to most, if not all, MS’ers and guidelines specific to those on B-cell depleting therapies like Rituxan and
Ocrevus
.
There are general guidelines that apply to most, if not all, MS’ers and guidelines specific to those on B-cell depleting therapies like Rituxan and
Ocrevus
.
Raingrrl
in
My MSAA Community
3 years ago
Ocrevus at home?
Has anyone had their
Ocrevus
infusion at home? How did it go?
Has anyone had their
Ocrevus
infusion at home? How did it go?
erash
in
My MSAA Community
3 years ago
I got it the 2 hour infusion with ocrevus!
I was the first person at the infusion center that had ever ask for it,i read about it 6 weeks ago. I called my dr. yesterday and ask him about it and he has to send orders to the infusioin center to get it.it does take 2 hours instead of 3 or 4.it was wonderful .it was 300 drips per minute instead of
I was the first person at the infusion center that had ever ask for it,i read about it 6 weeks ago. I called my dr. yesterday and ask him about it and he has to send orders to the infusioin center to get it.it does take 2 hours instead of 3 or 4.it was wonderful .it was 300 drips per minute instead of
pamgarner
in
My MSAA Community
3 years ago
Covid-19 vaccine
For those of us on
Ocrevus
and who would like to take the vaccine for covid-19, there is very little information if it is safe for us. Since
Ocrevus
wipes out the B-cells and are immune system is comprised. Should we take the vaccine?
For those of us on
Ocrevus
and who would like to take the vaccine for covid-19, there is very little information if it is safe for us. Since
Ocrevus
wipes out the B-cells and are immune system is comprised. Should we take the vaccine?
Dan24melfi
in
My MSAA Community
3 years ago
Personal insights
I’m on
Ocrevus
and didn’t see any of this on it’s side effects.
I’m on
Ocrevus
and didn’t see any of this on it’s side effects.
B3tinha
in
My MSAA Community
3 years ago
Neuro Appt
I’m now on Tecfidera since August 24th, MRI done in Nov that showed one active lesion an one non active and that’s why they wanted to do a quick change, of med to
Ocrevus
, but my thoughts were it didn’t seems like it was enough time to determine and start
Ocrevus
.
I’m now on Tecfidera since August 24th, MRI done in Nov that showed one active lesion an one non active and that’s why they wanted to do a quick change, of med to
Ocrevus
, but my thoughts were it didn’t seems like it was enough time to determine and start
Ocrevus
.
JSSimp
in
My MSAA Community
3 years ago
Ocrevus - balance worse 2 months in. Did it improve for you?? What did you do?
For those of you with similar negative experiences after
Ocrevus
, did symptoms improve when you stopped
Ocrevus
or did it just stay / progress? I'm scared it won't get better.
For those of you with similar negative experiences after
Ocrevus
, did symptoms improve when you stopped
Ocrevus
or did it just stay / progress? I'm scared it won't get better.
Megan33
in
My MSAA Community
3 years ago
Has anyone had Covid while being on Ocrevus?
I just had my
Ocrevus
infusion last Tuesday and am scared about what will happen if I get Covid. I talked to my doctor who said to stay away from my husband, the best I can and wash my hands...a lot. Has anyone gotten Covid while on
Ocrevus
? What was the outcome?
I just had my
Ocrevus
infusion last Tuesday and am scared about what will happen if I get Covid. I talked to my doctor who said to stay away from my husband, the best I can and wash my hands...a lot. Has anyone gotten Covid while on
Ocrevus
? What was the outcome?
Wizardsmom
in
My MSAA Community
3 years ago
Change from Tecfidera to Ocrevus
During the visit my Dr informed me I would need to start
Ocrevus
instead Tecfidera after being on it for 3mths. Labs were drawn and faxed to office Nov 26th. I was advised they would be calling me or
Ocrevus
team.
During the visit my Dr informed me I would need to start
Ocrevus
instead Tecfidera after being on it for 3mths. Labs were drawn and faxed to office Nov 26th. I was advised they would be calling me or
Ocrevus
team.
JSSimp
in
My MSAA Community
3 years ago
Ocrevus infusion
I am starting
Ocrevus
Monday morning and wondered what to expect?
I am starting
Ocrevus
Monday morning and wondered what to expect?
Sunshine400
in
My MSAA Community
3 years ago
Ocrevus : First perfusion next week
First
Ocrevus
perfusion nest week! What should I bring with me? should I be scrared...
First
Ocrevus
perfusion nest week! What should I bring with me? should I be scrared...
charlesmagig
in
My MSAA Community
3 years ago
Late Christmas wishes.
I gonna talk to him about trying
Ocrevus
if him and my insurance will approve. Never know till I try. I certainly hope you all had a happy and enjoyable Christmas. I thank you all for your prayers because as always Jesus heard and answered them again. After all it was his birthday.😇😇.
I gonna talk to him about trying
Ocrevus
if him and my insurance will approve. Never know till I try. I certainly hope you all had a happy and enjoyable Christmas. I thank you all for your prayers because as always Jesus heard and answered them again. After all it was his birthday.😇😇.
Doubled51
in
My MSAA Community
3 years ago
Ocrevus and IgG levels
The physician speaker mentioned checking IgG levels at baseline and yearly with
Ocrevus
. My Neuro has not done this and I was wondering what others experiences were? Thanks!
The physician speaker mentioned checking IgG levels at baseline and yearly with
Ocrevus
. My Neuro has not done this and I was wondering what others experiences were? Thanks!
erash
in
My MSAA Community
3 years ago
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