More PT

[Doubled51]

Good morning to all my ms family. I pray everyone is doing as well as they can taming this monster named MS.

I had a Neurologist appt Wednesday. I was having a little problem with major more than normal fatigue stopping my Gilyena to switch to Ocrevus. So he ordered a 3 day round of solumedrol and some PT on my back. Having problem with my core muscles from surgery. Just having trouble walking without stooping over all the time. Last but not least my yearly MRIs of brain t spine c spine with and without contrast so they can knock me out and take all the pictures they want.😂😅🤣.

Then had my second half dose of Ocrevus yesterday and I am feeling and walking a little better this morning which is great. I get my steroids I should be good to go for a while.😁😁.

And I’ve got to go back for a sleep study cause the bpap I use doesn’t seem to be doing the job anymore. So I’ve been busy and will be busy for a while.

But I still check in when I can.

Love y’all

Donnie

[Kenu]

Great for you Donnie sounds like you moving in the right direction 👍. Glad to hear you’re getting help with pt and meds. Hope you have a wonderful weekend 🙏👍😉🤗🐾🐾 Ken

[Doubled51 in reply to Kenu]

Thanks Ken. Ditto on weekend.

Donnie

[Morllyn]

Take care Donnie! ❤️

[Doubled51 in reply to Morllyn]

Thanks Morilyn.

Donnie

[Jesmcd2 CommunityAmbassador]

Well Doubled51 if you took your hat off so you could see, ya nut! Feel better soon Donnie!! 🤗💕🌠

[Doubled51 in reply to Jesmcd2]

Take my hat off. I’m like Burt Reynolds in Smokey and the Bandit. I only take my hat of for one reason.😂😅🤣.

The Ocrevus is starting to kick in pretty good so I feel better today.

Donnie

[Jesmcd2 CommunityAmbassador in reply to Doubled51]

Well you have it on backwards in the picture!! 🤣😂🤣🤗💕🌠

[Doubled51 in reply to Jesmcd2]

Don’t I wish. That’s my Zepplin monster and I do mean monster. We’ve raised a lot of kids over the years but he is the stubbornness hardheaded orneriest sweetest little one we ever dealt with.🤭🤪😜.

He doesn’t listen to anything or anybody. A 20 month old juvenile delinquent. Haha.

[Jesmcd2 CommunityAmbassador in reply to Doubled51]

Take the hat! 🤣😂🤣🤗💕🌠

[Doubled51 in reply to Jesmcd2]

He actually threw that hat in the trash we think because it just disappeared one day and we haven’t found it yet.😂🤪😜.

Donnie

[Jesmcd2 CommunityAmbassador in reply to Doubled51]

🤣😂🤣 thank God it wasn't the toilet!😂🤣🤗💕🌠

[Doubled51 in reply to Jesmcd2]

We Try to keep bathrooms closed at all times if not there wouldn’t be anything left except plumber bills.🤪😆. But I needed a new hat anyway.😁😁.

Donnie

[Allen5280 in reply to Doubled51]

I was going to have to ask if you had entered your second childhood!!!!??? Guess not!😂😃😂

[Doubled51 in reply to Allen5280]

😅😅😂.

Donnie

[Neworleanslady in reply to Doubled51]

That’s good news to hear about Ocrevus working- I’ll be switching as soon as my insurance approves

[Doubled51 in reply to Neworleanslady]

I’m looking for good things from it. Thursday was my second half dose and I can tell a differenceuite. The nurse comes later this afternoon to hook me up for my solumedrol and hopefully between the two I’ll feel better than I have in quite a while.

Donnie

[Neworleanslady in reply to Doubled51]

Thats what im hoping too. Whats solumedrol? My wifi isn’t working right now so i cant look it up. Heard anything about long term effects of ocrevus? Thats my only worry. I’m sorry to be a debbie downer in this fun conversation

[Doubled51 in reply to Neworleanslady]

Solumedrol is iv steroids. That’s the fancy name for them. Only from people here that have been taking them for awhile. There are quite a few so at least I’m in good company.😋😋. From what I’ve learned since I’ve been dx they all carry a list of side effects you just have to go with your gut as they say.😁😁.

Donnie

[Neworleanslady in reply to Doubled51]

Oh so the solemedrol is not since, or because of, the ocrevus?

[Doubled51 in reply to Neworleanslady]

No not at all. It’s for getting over the stopping the Gilenya I’ve been taking for the last year and a half. It sometimes intensifies the existing symptoms when stopped cold turkey..

Donnie

[Allen5280 in reply to Doubled51]

I had to have them before every infusion of Ocrevus . those and the IV form of Benadryl and a Tylenol (oral to make the Benadryl more effective)

[Doubled51 in reply to Allen5280]

They give me a good size syringe before and a tablet Benadryl but this was my first dose so who knows what will happen with the first full dose. Because the tablet Benadryl does nothing for me.

[Neworleanslady in reply to Doubled51]

Yow! How long do you have to take that for? Best wishes for you to get rid of THAT aggravation really fast!

[Doubled51 in reply to Neworleanslady]

Normally 3 to 5 days according to how severe your symptoms are and your neurologist. I’ve only had to do 5 2 times. Some neuros are more lenient with them and like to get ahead of tht game instead of behind. Mine was the latter to begin with until I was having a pretty bad relapse and I finally asked him what the Sam hell did he call a relapse that I had been going thru one for two months and needed some help. Since we’ve been more on the same page.😅.

Donnie

[Neworleanslady in reply to Doubled51]

Nest wishes for good times ahead

[Neworleanslady in reply to Neworleanslady]

Best wishes that is

[Doubled51 in reply to Neworleanslady]

Thank you and hope insurance gets you approved quickly and you can get started on yours.

Donnie

[Neworleanslady in reply to Doubled51]

😀 thank you

[Doubled51 in reply to Neworleanslady]

I have problems with spellcheck to. Haha. The n they put that n -b so close together. But I knew what you meant.😁😁.

Donnie

[Allen5280 in reply to Doubled51]

Whaddya mean??? There ALL to close together!!!!

[Doubled51 in reply to Allen5280]

That is absolutely to TRUE Allen.!! I spend half my time using the backspace key trying to correct what I’m really trying to say.🤪😅😂🤣.

Donnie

[bxrmom]

Good to hear from you. Sounds like things are moving along for you. I'm sure the steroids will put some pep in your step 😀

[mrsmike]

Sounds like all is going well. Keep up the good work!

[Doubled51 in reply to mrsmike]

Thank you. Still trying.

Donnie

[JSSimp]

Will keep you in prayer and love the pic😀

[Doubled51 in reply to JSSimp]

Thank you I always appreciate and need prayers.🙏🏻🙏🏻.

Donnie

[JSSimp in reply to Doubled51]

You’re welcome!

[goatgal]

That little guy is moving!

[Doubled51 in reply to goatgal]

He’s continuously moving.🤣🤣. And he’s faster old granddaddy. Which ain’t hard to be.😅😅. But when he wants he’s the sweetest baby you’ll ever see.😇😇.

Donnie

[Tazmanian]

Glad you got your ocrevus and your steroids good luck

[Doubled51 in reply to Tazmanian]

Thank you.

Donnie

[mm1527mm]

Glad to hear your feeling better with your ocrevus dose

[Doubled51 in reply to mm1527mm]

Thank you.

Donnie

[Humbrd]

It really sounds like you have been through a lot. Glad the ocrevus is starting to work. 😁, Stay well Donnie.

[Doubled51 in reply to Humbrd]

Thank you. It’s been a long hard ride but hopefully the worst is over.

Donnie

[Humbrd in reply to Doubled51]

That's usually how it works. We're overloaded with crap, then things ease up, and it's like whew, made it through. We're tougher than we think.

[Doubled51 in reply to Humbrd]

So true. Thank God were tougher than we think or we wouldn’t make it thru a lot of this.

Donnie

[Humbrd in reply to Doubled51]

😁

[Doubled51 in reply to Humbrd]

👍.

[Buddy2009]

Hope that everything comes together for you Donnie.

[Doubled51 in reply to Buddy2009]

Thanks Buddy.

[mrsmike9]

Glad you're having everything checked out! Keep us posted!

[Doubled51 in reply to mrsmike9]

Thanks and will do.

Donnie

[carolek572 CommunityAmbassador]

Happy to hear from you, Donnie.

Do get on that road to recovery and let us know of your travels, okay?

Praying for no more road blocks for you

Keep Smiling

[Doubled51 in reply to carolek572]

Thanks Carole. Seems like this old road just gets longer every day but I keep on going.😋😋😋.

Donnie

[carolek572 CommunityAmbassador in reply to Doubled51]

👍