Good morning to all my ms family. I pray everyone is doing as well as they can taming this monster named MS.
I had a Neurologist appt Wednesday. I was having a little problem with major more than normal fatigue stopping my Gilyena to switch to Ocrevus. So he ordered a 3 day round of solumedrol and some PT on my back. Having problem with my core muscles from surgery. Just having trouble walking without stooping over all the time. Last but not least my yearly MRIs of brain t spine c spine with and without contrast so they can knock me out and take all the pictures they want.😂😅🤣.
Then had my second half dose of Ocrevus yesterday and I am feeling and walking a little better this morning which is great. I get my steroids I should be good to go for a while.😁😁.
And I’ve got to go back for a sleep study cause the bpap I use doesn’t seem to be doing the job anymore. So I’ve been busy and will be busy for a while.
But I still check in when I can.
Love y’all
Donnie
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Doubled51
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Great for you Donnie sounds like you moving in the right direction 👍. Glad to hear you’re getting help with pt and meds. Hope you have a wonderful weekend 🙏👍😉🤗🐾🐾 Ken
Don’t I wish. That’s my Zepplin monster and I do mean monster. We’ve raised a lot of kids over the years but he is the stubbornness hardheaded orneriest sweetest little one we ever dealt with.🤭🤪😜.
He doesn’t listen to anything or anybody. A 20 month old juvenile delinquent. Haha.
I’m looking for good things from it. Thursday was my second half dose and I can tell a differenceuite. The nurse comes later this afternoon to hook me up for my solumedrol and hopefully between the two I’ll feel better than I have in quite a while.
Thats what im hoping too. Whats solumedrol? My wifi isn’t working right now so i cant look it up. Heard anything about long term effects of ocrevus? Thats my only worry. I’m sorry to be a debbie downer in this fun conversation
Solumedrol is iv steroids. That’s the fancy name for them. Only from people here that have been taking them for awhile. There are quite a few so at least I’m in good company.😋😋. From what I’ve learned since I’ve been dx they all carry a list of side effects you just have to go with your gut as they say.😁😁.
No not at all. It’s for getting over the stopping the Gilenya I’ve been taking for the last year and a half. It sometimes intensifies the existing symptoms when stopped cold turkey..
They give me a good size syringe before and a tablet Benadryl but this was my first dose so who knows what will happen with the first full dose. Because the tablet Benadryl does nothing for me.
Normally 3 to 5 days according to how severe your symptoms are and your neurologist. I’ve only had to do 5 2 times. Some neuros are more lenient with them and like to get ahead of tht game instead of behind. Mine was the latter to begin with until I was having a pretty bad relapse and I finally asked him what the Sam hell did he call a relapse that I had been going thru one for two months and needed some help. Since we’ve been more on the same page.😅.
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No more spaghetti or jelly legs!
So much more at 54!
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