MS, Ocrevus And Timing Of Covid Vaccine - My MSAA Community

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MS, Ocrevus And Timing Of Covid Vaccine

Midsomer1 profile image
Midsomer1
β€’16 Replies

This article from Neurology Today was really helpful.

journals.lww.com/neurotoday...

I am on Ocrevus and have read many articles about getting the Covid vaccine.

A neurologist from Yale, Dr. Richard Novak, recommends that people on Ocrevus get the vaccine within two weeks before their next infusion.

I get my next infusion in June. I don't know when the vaccine will be available in my area. But this is something to think about!

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Midsomer1
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Jesmcd2 profile image
Jesmcd2CommunityAmbassador

It's a good article Midsomer1 call your neurologist and ask him/her about when to get the vaccine tho. They are going to have your blood work, the vampires πŸ˜¨πŸ€£πŸ˜‚πŸ€—πŸ’•πŸŒ 

Midsomer1 profile image
Midsomer1β€’ in reply toJesmcd2

I have talked to my neurologist about the vaccine. They said get the vaccine when it becomes available. I just thought this article was interesting.

kdali profile image
kdali

Will you be requesting an antibody test afterwards to see if they worked?

Midsomer1 profile image
Midsomer1β€’ in reply tokdali

I will if I can. πŸ˜€

kdali profile image
kdaliβ€’ in reply toMidsomer1

Awesome! I hope it does!

erash profile image
erash

It takes about 2 weeks for the vaccine to produce effects and then there is the 2nd vaccine 3-4 weeks later...so should the next O infusion be delayed

?

Midsomer1 profile image
Midsomer1β€’ in reply toerash

The article didn't go into that much detail! I am going to ask my neuro.

kwhompus profile image
kwhompus

It was recommended to me to go one month before or one month after by my neurologist. Has there been new info from a higher source?

Midsomer1 profile image
Midsomer1β€’ in reply tokwhompus

I think your neurologist is the higher source! My neurologist didn't give me any info about the timing of getting the vaccine. It's good to hear yours did.πŸ˜€

kwhompus profile image
kwhompusβ€’ in reply toMidsomer1

definitely uncharted waters here. sounds like we are all leaning toward a safe side

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Mine told me to just get it when I can, as I have no b or t cells anyway. Even a month after my Ocruvus was due, blood tests came back depleted. πŸ˜”πŸ€—πŸ’•πŸŒ 

Elizt3 profile image
Elizt3

My neurologist shared with me back in December to get the vaccine 2 months prior to O infusion, to allow time for the 2nd injection as well. One note - I received the Hep B vaccine (3 injections) a few months prior to starting O back in 2019, my neurologist checked my immunity to Hep B several months after the first two half doses of O and found that I have no immunity to Hep B according to the blood work. Hmph. Hope this doesn't apply to my experience with the COVID vaccine. My neurologist was puzzled (this was in 2019).

Midsomer1 profile image
Midsomer1β€’ in reply toElizt3

Your neurologist sounds very informative. Who would of thought taking Ocrevus would lead to all our questions because of Covid.

Iona60 profile image
Iona60

I am currently due for my Ocrevus infusion and this is the prime time for me to get the vaccine. I have a letter from my neuro in hand stating that I need the vaccine ASAP. Unfortunately, FL is prioritizing people over 65 and I can't find anyplace to give me the vaccine. The health dept says to get it from the hospital. The hospital says to get it from the health dept. I am in a vicious circle and trying to decide how long to delay my O infusion while I wait out this futility. erash Any word in your part of the state?

Papamichael profile image
Papamichael

I’m 75 and have PPMS, having been diagnosed in June, 2012. In consultation with my MS doctor, I decided to put off my next Ocrevus infusion until I got a flu shot (got it in October, 2020) and for about 1 month after I get the COVID-19 vaccine. As a β€œbonus,” I recently took β€œadvantage” of the delay in getting the Ocrevus infusion and had a shingrix shot.

Midsomer1 profile image
Midsomer1β€’ in reply toPapamichael

I wish my neurologist had told me about getting the flu shot before my infusion. I ended up having my infusion and two days later getting my flu shot. I guess it's not too big of a deal, I don't go anywhere with the pandemic. Still would of been good information too know.

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