Help to habituate to Tinnitus - SSRIs? - Tinnitus UK

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Help to habituate to Tinnitus - SSRIs?

want2habituate profile image
5 Replies

Hi,

This is my first post, so please strap in, or skip to where I mention SSRIs (in bold) as I really would like input :)

My tinnitus (T) in both ears started after playing a gig where the monitoring on stage was too loud at the end of August. Perhaps as a psychological reaction, I developed hyperacusis a couple of week later. Let me qualify that - I long found high pitched screeching / chatter say in a restaurant to be an issue for some years before the T. I would sometimes wear earplugs in those situations but not frequently.

I saw an ENT specialist. He told me he had T, that T was illogical and that I couldn't think my way out of it (I do over analyse everything)...most surprisingly, that statements about inner ear haircells being damaged from noise exposure to be unproven. I should just protect my ears when necessary - like anybody else should. My hearing was tested and I have a tiny bit of a loss of hearing at 4k plus in my left ear. It's at 20-30dB and I'm told that's too mild to consider hearing aids. I told him my T was around 8k and he wanted to know why I'd checked that. The answer (that I thought of post consultation) is that various sites ask you to describe your T.

Anyhow, I'm trying:

-Mindfulness / meditation - the Calm app.

-CBT - the Oto app

-I read the Rock Steady book - the neuroplasticity stuff was fascinating to me but the text quickly got too hippy-dippy for me.

-I also read a recommended text from tinnitus uk on Living with Tinnitus and Hyperacusis (Laurence McKenna, David Baguley, Don McFerran)

On the plus side, I have gradually increased the volume of the tv and music (speakers not headphones), comforting myself by using a dB measuring app on my phone and seeing that as it never exceeds 60dB (and you can listen to 85dB all day) that it can't do me any harm. So the Hyperacusis is subsiding.

As an over-thinker, and with the constant noise causing me distress and a lack of concentration / patience when trying to work, I considered SSRIs. Not as a cure, but to chill me out, improve my quality of life while I habituate. I truly believe that must be possible. I have musician friends who have achieved this. I have friends and workmates who got T after childbirth, covid etc and they have largely habituated.

However, unfortunately so many sites and forums discuss SSRIs as the cause or worsening of their T. Now, of course, you can get T at any time. And maybe someone took an antibiotic at the time they got their T. It doesn't mean that caused their T. But it also doesn't mean it didn't.

Do I deal with my anxiety / depression and stay off the SSRIs because of the potential risks.....or do I take them...but risk not relaxing because of the potential risk.

I know there isn't a clear answer, but that is my dilemma. I even looked up and considered St John's Wort....but even then I found someone claiming that caused their T.

In general, I feel a little abandoned. I'm lucky enough to have private health insurance as a perk of my job. But they won't fund anything, as they will only authorise treatments for curable conditions. Feels great to be told that about my T. So, they won't fund CBT. Supposedly CBT is recommended via NICE. But no GP will prescribe it. No support groups near me etc etc.....

I'll try to make my next post a more positive one :)

I do believe people can habituate to T.....but hurry up already! 😂😂😂

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5 Replies
Notreve7766 profile image
Notreve7766

Hello

Reading your post it sounds so much like me when I first heard my Tinnitus back in 2021.

You are doing all the right things in my opinion with regards to educating yourself on what Tinnitus is.

CBT/Meditation/Walks in Nature/Avoiding avoidance all really useful tools for helping to calm our reaction to Tinnitus.

My personal experience with SSRIs and specifically Sertraline was positive and I have spoken to others with Tinnitus who have shared the same experience. I too was nervous to take SSRIs because I had read articles that had put me off but my instincts told me that if i could just take 10% of my anxiety off then some of the great things I was trying, like CBT/Walking/Sound therapy etc would have space to work. I was lucky that I didn't have any side effects but of course if you have side effects on one SSRI then there are plenty of others that can be tried.

They are not a magic pill though but only a small part of the recovery process in my opinion.

I also experienced hyperacusis when i was at my most anxious in the earlier days but in time this resolved itself.

We are all different of course so the main advice i would give you is to try and live your life as you would have done without Tinnitus, avoid avoidance and only give your Tinnitus necessary attention. I too walked round with a decibel meter for about 6 months but in the end I felt this was working against me and now i am sensible with sound in my environment but i dont let it stop me enjoying concerts/cinema/sporting events because these are all things that enrich my life

want2habituate profile image
want2habituate in reply toNotreve7766

Thanks so much for your reply. Tbh it's the horror stories about SSRIs causing permanent tinnitus that I find very scary, and really the only thing that has stopped me requesting them already.

How are you doing now?

Notreve7766 profile image
Notreve7766 in reply towant2habituate

My Tinnitus dosent bother me in the slightest now.

There are over 8 million people in the UK on SSRIs so your going to hear the odd negative story here and there and people don't go online to tell you about the good stories because its not something people like admitting to - this is what I told myself before taking them.

The worst I have heard is people who struggle with Side effects but in the 2 examples i can remember both people eventually found an SSRI that worked for them

Notreve7766 profile image
Notreve7766

My honest view is that I would have gotten here without Sertraline but it probably would have taken me longer

Notreve7766 profile image
Notreve7766

I was on them for 18 months and came off them no issue

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