Hyperacusis and Tinnitus mentioned on UK local... - Tinnitus UK

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Hyperacusis and Tinnitus mentioned on UK local North West News this evening.

MAC0811 profile image
6 Replies

I don’t know if anyone else who lives in the North West region of England saw the news report this evening on ‘Granada Reports’ about a middle aged woman from Southport who suffers with severe hyperacusis and Tinnitus? It was a sad report, the poor thing has to wear defenders all the time, can’t leave her house or enjoy her kids - it’s quite awful. However she spoke about looking into having an operation that she’s waiting to have which she hopes might help her? I think you might be able to find the news report on itv online if you want to see it or and maybe find out a bit more about her and possibly this procedure that she says she’s going to have? I just thought this needed highlighting and may help the eventual fight to find a proper treatment and cure for all of this with spreading these messages about?

I realise I’m bound to have upset someone on here with posting this 🙄 but for those of you who are more rational thinking and aren’t quick to find or make up negatives / want to pick a fight with everything that’s said, then this is worth watching, and who knows if someone with real power and sway out there may have been watching this it could start off a positive chain reaction to getting us all some proper treatment or even a cure!?

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ToetappingPoet profile image
ToetappingPoet

Not upsetting at all. This is a forum for sharing interesting/informative stuff about tinnitus. My audiologist nurse put me onto this site She now thinks I ought to spend less time on it, because she thinks it feeds my anxiety. I think that's a valid point. If it makes people nervous reading stories on here, the common sense thing is to withdraw. But for now, I'm finding it helpful, personally, though being exposed to the extent of the suffering is saddening at times. As you say, poor woman. Thank you for sharing though.

Spinach123 profile image
Spinach123

I was aware of that lady you referred to from Southport so sad, but my hubby is in similar position with severe reactive tinnitus/hyperacusis although doesn't wear ear defenders around the house (wears them to help him get to necessary appts) he and myself (affects partners) live life of silence indoors. Any posts that can give positivity to others gives hope. We have found a Tinnitus specialist at local Audiology dept at hospital who has gave him hope that eventually however long it takes can get him back to some kind of normal life, ie walks, meal, just getting out! She's implementing TRT with use of tinnitus maskers only (no hearing element which would blast his head off) with red noise (lowest and best frequency to start with) starting with ten mins a day. Breathing exercises and referral to CBT. I've never gave up fighting for help for him or giving up hope. The powers that be need to know that it's not good enough to have been told 'learn live with it' but 'a solution needs to be found' best wishes and positive thoughts to everyone whose suffering right now.

Saorfhlaith22 profile image
Saorfhlaith22 in reply toSpinach123

can I ask what TRT is? I also have H& T

Spinach123 profile image
Spinach123 in reply toSaorfhlaith22

It's Tinnitus retraining therapy, using different techniques ie maskers, sound therapy, breathing exercises, little steps to take to getting some relief

Saorfhlaith22 profile image
Saorfhlaith22 in reply toSpinach123

Thanks for that. I hope it helps your husband. I need that as well but NHS waiting lists herein NI for everything is years I’ve no hope of getting any help can’t afford to pay for it privately as I had to give up my job no pension for another 3 years.

TinnitusUKPat profile image
TinnitusUKPatPartner

If it's the same interview which was highlighted to me on Google News over the weekend, the person being interviewed has noxacrusis, which is an elevated form of hyperacusis in which people experience pain from exposure to sound. One avenue in this case which I believe has been explored is partial deafening in one ear which has not proven as successful as was hoped.

I would forewarn anyone that this is an upsetting case and that the therapies being tried are experimental, for a specific type of hyperacusis and that thus far the surgical interventions have unfortunately not resulted in good outcomes:

itv.com/news/granada/2025-0...

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