Experiences with

Nutrition therapy

Tell Congress to support the Medical Nutrition Therapy Act (S. 1536/H.R. 3108). To learn more, visit: https://www.kidney.org/newsletter/advocacy/what-kidney-patients-need-to-know-about-medical-nutrition-therapy

Starting two weeks before Christmas ‘23 I have had over eleven weeks in hospital and am now on total parenteral nutrition, scleroderma resulting in failed small intestine. Following each hospital stay I have had to get my strength back, the last week was end November ‘24 and I am still using a rollator

Hi all, not posted for a while but I am now at day+33 and finally starting to feel a bit normal again. I had very bad mucositis following sct and then problems with fluid retention due to all the IVs, mainly tpn as the ng feeding tube didn't stay in. Anyway looks like I'm going home on Friday so that's

I'd love to hear from any & all who are managing with a different outlook to pharmaceuticals or can share contacts for specialist in natural therapy, nutrition & supplementation. Also, daily / weekly routine tips wouldn't go amiss. Thanks Ciaran

My partner, Stuart, had an oesophagectomy on 14 November 24. Since then he has not been able to swallow due to how high up the surgery took place. He had a video last week to check if he could swallow safely but sadly not. The response from the therapist that there was “an absence of swallowing exercises

This is a recent presentation br Dr. Hans Hasselbalch regarding the role of inflammation in MPNs and the implications for treatment. It covers quite a lot, including CHIP, MPN comorbidities and possibilities of combination therapies. Dr. Hasselbalch is a strong promoter of the use of interferons

Hi, I've seen a couple of items on here regarding the palliative care and making sure its on medical records.My husband was diagnosed 16th December 2024 with CBD after seeing a neurologist. We have been seeing the parkinsons physiotherapists and got an OT that is due to come and access our home for his

looking at a company in Australia that markets light therapy: SYMBYX, Has anyone else looked into this?

We have a bed that has a 3 speed vibratory massage function that temporarily controls my tremors. This being the case, I was wondering if a ~US$10 TEMU vibrating belt might be a good wearable accessory to wear through the day to help manage tremors and movement issues? Like probably a million other

A new study published in Nature Medicine has shown that the heart drug digoxin can help combat metastasis by reducing the size of tumor cell clusters, which are a major driver of cancer spread. In a week-long trial with nine breast cancer patients, low doses of digoxin significantly reduced cluster size

I'll see my urologist and oncologist Feb 2025 for psa screening and health update. I am very satisfied with the professional treatments and handling of my case. I would refer anyone seeking counsel and cancer treatment to Hampton University Proton Radiation Center. They also have a great support system

The study compared the efficacy of different non-pharmacological interventions for sleep disorders in patients with PD, and results suggest that massage therapy may be the preferred non-pharmacological intervention for improving sleep disorders in PD, followed by music therapy and treadmill training

Hi all, I am ET Jak2+ and on Hydroxyurea 1000mg 5x/week and 500 mg on the weekends; my platelets hover at about 560. I have had bursitis in my left hip and piriformis syndrome on same side and nerve pain down the side of my leg to the knee since July. I have tried chiropractic and although helped lessen

hi Is it worth getting my fiancé (TBI survivor 2.5 years ago) a morning wake up clock? Just wondering if this will give him a more routined and “better” wake up. He tends to wake up quite early as 1:1 staff start at 7am, just wondered if this would be of any benefit? also, I’ve recently read that

PARP inhibitors have emerged as a targeted therapy for prostate cancer, especially in tumors with specific DNA repair defects. By exploiting synthetic lethality, these drugs can selectively kill cancer cells that lack the ability to repair DNA damage. Common targets include BRCA2 and PALB2 mutations,

After PCa reoccurence, after Proton therapy in 2009, started Doublet therapy.. Firmagon & Nubeqa in August 2024 and PSA just tested January 16th, is .75. Wondering when I should have 2nd PSMA-Pet scan to check on bone & lymph node mets which lit up scan in August 2024?Thanks for any input.

Does anyone have any experience with Red Light Therapy helping to improve CKD? My 85 yr old father was diagnosed with Stage 3 CKD about 6 months ago. I’m a retired pharmacist starting to research alternative and natural therapies, and came across this article on photobiomodulation & it’s potential to

My 8 year old has combined adhd and dyslxia. We tried stimulants for over a year and they made him anxious and reactive. In August, his developmental pediatrician decided we should first treat his anxiety and we started 5 mg of prozac. (Prior he was so anxious, he'd gotten to the point of summer school

Hey everyone, I wanted to share something personal with you all. Living with ADHD has always felt like I was running on a treadmill set to the wrong speed—constantly trying to catch up, but never quite getting there. For so long, I thought this was just how life had to be. But then I discovered occupational

Life after stroke.Marriage to roommate. My spouse had a clot stroke in October. He is healing and going to a speech therapist but married relationships is more like roommates. I don't pressure him and understand that the way he thinks is a bit different now because the stroke damaged or changed a portion