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Three strikes and...
After prostate removal in 2014, prostate bed radiation in 2016, and whole pelvis radiation in 2021 plus Lupron, my PSA is .2. I'm still receiving Lupron injections and my PSA never dropped below .1 even after whole pelvis radiation based on a PSMA scan that targeted two avid spots. My MO has never been
After prostate removal in 2014, prostate bed radiation in 2016, and whole pelvis radiation in 2021 plus Lupron, my PSA is .2. I'm still receiving Lupron injections and my PSA never dropped below .1 even after whole pelvis radiation based on a PSMA scan that targeted two avid spots. My MO has never been
Jvaughan0
in
Advanced Prostate Cancer
2 years ago
Rising PSA after radiation and ADT
Hi All, I was diagnosed with PCa in April 2022 (Gleason 3+4). My PSA was 28. I was given a 3 month shot of lupron in June 2022. In August I had 20 sessions of IGRT - Image guided radiation therapy. These are PSA levels: 0.56 (Sept 2, 2022) 1.6 (Dec 27, 2022) 5.3 (Feb 14, 2023) Should I be concerned
Hi All, I was diagnosed with PCa in April 2022 (Gleason 3+4). My PSA was 28. I was given a 3 month shot of lupron in June 2022. In August I had 20 sessions of IGRT - Image guided radiation therapy. These are PSA levels: 0.56 (Sept 2, 2022) 1.6 (Dec 27, 2022) 5.3 (Feb 14, 2023) Should I be concerned
John347
in
Advanced Prostate Cancer
2 years ago
Undetectable for 8yrs 3mo with Advanced PC.
I got my blood lab test last Friday, all values looked good, especially the <0.008 PSA, Undetectable. That is actually 8 years and 3 months now, or 99 months undetectable! That’s pretty good for an old dude who was told in 2012 with Stage 4 PC with bone metastasis, that I may have only three years left
I got my blood lab test last Friday, all values looked good, especially the <0.008 PSA, Undetectable. That is actually 8 years and 3 months now, or 99 months undetectable! That’s pretty good for an old dude who was told in 2012 with Stage 4 PC with bone metastasis, that I may have only three years left
Wings-of-Eagles
in
Prostate Cancer Network
2 years ago
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Gatorade, water, ?
Yesterday, in the second game of a Pickleball match, my heart rate became extremely elevated. I immediately quit, drank a quart of Gatorade, and went home (5 minute trip). Using my B/P cuff, my systolic was 180, diastolic was 70 and pulse was 170. Temperature normal. After 15 minutes and another
Yesterday, in the second game of a Pickleball match, my heart rate became extremely elevated. I immediately quit, drank a quart of Gatorade, and went home (5 minute trip). Using my B/P cuff, my systolic was 180, diastolic was 70 and pulse was 170. Temperature normal. After 15 minutes and another
TMcgee
in
Advanced Prostate Cancer
2 years ago
Update to surgery or no surgery
I want to thank you all for your advice. My husband and his Drs have decided to wait on the surgery. He will be on Lupron every three months and starting Xtandi this week. His pain is almost gone just a slight pain in the neck. I hope we will have some scans to see how the tumor is doing. He will have
I want to thank you all for your advice. My husband and his Drs have decided to wait on the surgery. He will be on Lupron every three months and starting Xtandi this week. His pain is almost gone just a slight pain in the neck. I hope we will have some scans to see how the tumor is doing. He will have
Granica4818
in
Advanced Prostate Cancer
2 years ago
Creatine
Already discussed with TA. He is not in the details for creatine. So I want to ask, if somebody in this forum could provide some advice. I found this up to date study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9318441/ As I‘m under lupron, my muscle mass is pretty low. I improved by exercising and
Already discussed with TA. He is not in the details for creatine. So I want to ask, if somebody in this forum could provide some advice. I found this up to date study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9318441/ As I‘m under lupron, my muscle mass is pretty low. I improved by exercising and
Nusch
in
Advanced Prostate Cancer
2 years ago
Lupron Mood Swings
Has anyone developed severe mood swings with Lupron? My husband is starting his 3rd year and since December his mood swings have increased dramatically. And the mood swings are extreme, loves me more than life, hates me with a passion. It's becoming quite difficult for both us. It's to the point
Has anyone developed severe mood swings with Lupron? My husband is starting his 3rd year and since December his mood swings have increased dramatically. And the mood swings are extreme, loves me more than life, hates me with a passion. It's becoming quite difficult for both us. It's to the point
JWPMP
in
Advanced Prostate Cancer
2 years ago
Orgovyx vs. Lupron, (with Enzalutimide or Abiraterone).
Hello all - I was hoping someone has some insight for me. I just started ADT which consisted of a loading dose made up of 2 shots of Firmagon in the stomach. While the shots did not hurt much, it was about 8 hours later that experienced a lot of pain at the injection sites. Today, which is 9 days after
Hello all - I was hoping someone has some insight for me. I just started ADT which consisted of a loading dose made up of 2 shots of Firmagon in the stomach. While the shots did not hurt much, it was about 8 hours later that experienced a lot of pain at the injection sites. Today, which is 9 days after
Vp7174
in
Advanced Prostate Cancer
2 years ago
So Confused
I was taken off Docetaxel effective Jan 25th after 4 rounds did not help. My last round was on January 10th along with a Lupron shot. So it's been about 5 weeks of getting no treatments, so the docetaxel should be long gone from my system. But 5 out of 7 days of the week lately I feel like absolute
I was taken off Docetaxel effective Jan 25th after 4 rounds did not help. My last round was on January 10th along with a Lupron shot. So it's been about 5 weeks of getting no treatments, so the docetaxel should be long gone from my system. But 5 out of 7 days of the week lately I feel like absolute
bglendi53
in
Advanced Prostate Cancer
2 years ago
IPP Inflatable Penile Implant after PCa Treatment; When to Move on Implant Surgery
Well, as with all things in life, hindsight is 20-20. So it is with my experience with my IPP (inflatable penile prosthesis) after 2 1/2 years of PCa treatment. I was operated on in June, 2020, had IMRT RT Radiation treatment ending May, 2021 and finished a total of 21 months on ADT this past December
Well, as with all things in life, hindsight is 20-20. So it is with my experience with my IPP (inflatable penile prosthesis) after 2 1/2 years of PCa treatment. I was operated on in June, 2020, had IMRT RT Radiation treatment ending May, 2021 and finished a total of 21 months on ADT this past December
RMontana
in
Active Surveillance - Prostate Cancer
2 years ago
Anyone experience lung side effects?
My latest CT narrative included the following comment: “Images obtained on lung windows reveal scattered apical predominant emphysema and numerous persistent airway centered discrete/punctate densities in the lower lobes and to a lesser extent in the lingula, some of which are calcified.” This is
My latest CT narrative included the following comment: “Images obtained on lung windows reveal scattered apical predominant emphysema and numerous persistent airway centered discrete/punctate densities in the lower lobes and to a lesser extent in the lingula, some of which are calcified.” This is
Papa1
in
Advanced Prostate Cancer
2 years ago
Severe Pelvic Pain
Hi there, I’m writing for my husband tonight. For three days he has had severe pain across his pelvis. The pain is sporadic but it has increased in intensity. When his pain reached a 10 of 10, I took him to an emergency room. He was diagnosed with diverticulitis. I’m not feeling confident with the diagnosis
Hi there, I’m writing for my husband tonight. For three days he has had severe pain across his pelvis. The pain is sporadic but it has increased in intensity. When his pain reached a 10 of 10, I took him to an emergency room. He was diagnosed with diverticulitis. I’m not feeling confident with the diagnosis
GJ65
in
Advanced Prostate Cancer
2 years ago
High liver enzymes - darolutamide
Have been on darolutamide / Lupron for about 6 months. Liver enzymes started to rise in November and most recent blood sample is at 175 ALT and 85 AST. There are a number of posts here with Abiraterone and high liver enzymes but I don’t see much reference to daro and high enzymes. Doc is having
Have been on darolutamide / Lupron for about 6 months. Liver enzymes started to rise in November and most recent blood sample is at 175 ALT and 85 AST. There are a number of posts here with Abiraterone and high liver enzymes but I don’t see much reference to daro and high enzymes. Doc is having
Heykm01
in
Advanced Prostate Cancer
2 years ago
Blood tests to monitor while on ADT..etc
Hi, Currently, on ADT, I'm about four months in on Lupron of an 18-month prescription. Trying to do all the right things (diet/exercise.e.tc). I'm meeting with my RO in March, for the 3-month reivew, so I will test PSA and testosterone, but I also wonder if there are any other tests I should consider
Hi, Currently, on ADT, I'm about four months in on Lupron of an 18-month prescription. Trying to do all the right things (diet/exercise.e.tc). I'm meeting with my RO in March, for the 3-month reivew, so I will test PSA and testosterone, but I also wonder if there are any other tests I should consider
SierraSix
in
Advanced Prostate Cancer
2 years ago
surgery or not
Hello everyone. As I have shared before my husband has a mets tumor on his spine at T9 around the front and some soft tissue was involved. He completed 5 treatments of radiation. He started lupron one week ago. He was in so much pain for a month. MO and the neurosurgeon treated him with several rounds
Hello everyone. As I have shared before my husband has a mets tumor on his spine at T9 around the front and some soft tissue was involved. He completed 5 treatments of radiation. He started lupron one week ago. He was in so much pain for a month. MO and the neurosurgeon treated him with several rounds
Granica4818
in
Advanced Prostate Cancer
2 years ago
Lupron was helpful
I have been on Lupron for about seven months. It was quite effective in not only reducing PSA levels (to 0.7 from 23.73) but also in decreasing prostate hyperplasia. My urinary flow was improved within two week of Lupron injection. I also started on Zytiga about two months ago at a reduced dose of
I have been on Lupron for about seven months. It was quite effective in not only reducing PSA levels (to 0.7 from 23.73) but also in decreasing prostate hyperplasia. My urinary flow was improved within two week of Lupron injection. I also started on Zytiga about two months ago at a reduced dose of
Sanctus
in
Advanced Prostate Cancer
2 years ago
Post radiation PSA
Full pelvic rad done ( 6 weeks ) just 3 weeks ago. Still have Lupron. Repeat PSA went from pre of 2- post rad 3. MO wants to add Zytiga. Articles say give the radiation 2-3 months before repeating PSA as those cells excreted antigen and can expect a slight increase. Anyone else have an experience that
Full pelvic rad done ( 6 weeks ) just 3 weeks ago. Still have Lupron. Repeat PSA went from pre of 2- post rad 3. MO wants to add Zytiga. Articles say give the radiation 2-3 months before repeating PSA as those cells excreted antigen and can expect a slight increase. Anyone else have an experience that
warrior22
in
Advanced Prostate Cancer
2 years ago
Looking for a Surgeon with Specific Skills
This is a long shot. I’m an Aussie. I had HD brachytherapy for prostate cancer in 2010. In 2016, I was diagnosed with Carcinoma in Situ in the bladder. I’ve had multiple rounds of BCG, and I’m now heading towards a radical cystectomy. My urologist is nervous about the risk of damage to the rectum
This is a long shot. I’m an Aussie. I had HD brachytherapy for prostate cancer in 2010. In 2016, I was diagnosed with Carcinoma in Situ in the bladder. I’ve had multiple rounds of BCG, and I’m now heading towards a radical cystectomy. My urologist is nervous about the risk of damage to the rectum
Anthonyve
in
Advanced Prostate Cancer
1 year ago
Ginseng and daytime brain fog (aka sleepiness) for those on Lupron + Abi + Prednisone
For some months getting gradually worse I've been having intense sleepiness when sitting and trying to read, watch TV, etc. What is the community's experience with Korean Panax Ginseng? It is working well for me today (the first day I started taking it.) Thanks
For some months getting gradually worse I've been having intense sleepiness when sitting and trying to read, watch TV, etc. What is the community's experience with Korean Panax Ginseng? It is working well for me today (the first day I started taking it.) Thanks
Derf4223
in
Advanced Prostate Cancer
2 years ago
Lupron, Abiraterone and Prednisone...constant bruising
72 years old, diagnosed in 2013 with Gleason 9. Currently have a PSA of 0.20 (up from 0.15 in May of 2022. Treatment plan of Lupron, Abiraterone and Prednisone. I have been bruising very easily and often and gathering open cuts at the slightest provocation and seemingly sometimes spontaneously. I
72 years old, diagnosed in 2013 with Gleason 9. Currently have a PSA of 0.20 (up from 0.15 in May of 2022. Treatment plan of Lupron, Abiraterone and Prednisone. I have been bruising very easily and often and gathering open cuts at the slightest provocation and seemingly sometimes spontaneously. I
Peealot
in
Advanced Prostate Cancer
2 years ago
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