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BC Update with GP.
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
Ern007
in
Lung Conditions Community Forum
8 months ago
Stable PSA, deep fall testosterone lab results.
At this point I am only getting Lupron injections every four months. Zytiga and Prednisone stopped two months ago. PSA un changed at 1.06 for the last 4 months, testosterone down from 100 last month to 17 yesterday. Kindly asking, what will be the point of starting on Xtandi and get exposed to its nasty
At this point I am only getting Lupron injections every four months. Zytiga and Prednisone stopped two months ago. PSA un changed at 1.06 for the last 4 months, testosterone down from 100 last month to 17 yesterday. Kindly asking, what will be the point of starting on Xtandi and get exposed to its nasty
Blueribbon63
in
Advanced Prostate Cancer
1 year ago
BRCA2 and prostate cancer
My husband has the BRCA2 gene mutation. We’ve known this since 2015 and that he was at a higher risk for prostate cancer which he now has. Ten people from the two generations above him died from cancer including his mother. His PSA has been inching up over the years and is now at 22. He is 67 years old
My husband has the BRCA2 gene mutation. We’ve known this since 2015 and that he was at a higher risk for prostate cancer which he now has. Ten people from the two generations above him died from cancer including his mother. His PSA has been inching up over the years and is now at 22. He is 67 years old
ElaineLynette
in
Prostate Cancer Network
1 year ago
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PSMA PET scan?
PSA undetectable for last 18 months. I have been taking abiraterone & lupron & I am considering a treatment 'holiday'. Would a PSMA PET scan be beneficial ?
PSA undetectable for last 18 months. I have been taking abiraterone & lupron & I am considering a treatment 'holiday'. Would a PSMA PET scan be beneficial ?
davidw777
in
Advanced Prostate Cancer
1 year ago
Bladder Cancer Another Update.
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
Ern007
in
Lung Conditions Community Forum
8 months ago
Timing and intensity of radiation?
Hi, my father has been diagnosed with Stage four PC spreading to a couple of small lymph nodes in the abdomen and neck area but no bone involvement. Doctors says because his case is mHSPC on PSMA but locally advanced in traditional imaging, it is not known whether treating him more aggressively offers
Hi, my father has been diagnosed with Stage four PC spreading to a couple of small lymph nodes in the abdomen and neck area but no bone involvement. Doctors says because his case is mHSPC on PSMA but locally advanced in traditional imaging, it is not known whether treating him more aggressively offers
qidao23
in
Advanced Prostate Cancer
1 year ago
What comes next?
So, de novo, high volume metastatic, diagnosed in April, 2022. Initial PSA 28.2. Started on triplet - Lupron, Abi & docetaxel. Due to liver issues, had to stop abi right before chemo. Restarted abi about 6 weeks after last chemo. at 500 mg, moved to 750 & then 1000, but had to go back to 750 due to high
So, de novo, high volume metastatic, diagnosed in April, 2022. Initial PSA 28.2. Started on triplet - Lupron, Abi & docetaxel. Due to liver issues, had to stop abi right before chemo. Restarted abi about 6 weeks after last chemo. at 500 mg, moved to 750 & then 1000, but had to go back to 750 due to high
rsgdmd
in
Advanced Prostate Cancer
1 year ago
update to this conversation part 2
https://healthunlocked.com/advanced-prostate-cancer/posts/149258815/better-options Dr Corn had all the testing done that my husband's doctors in nc couldn't bother with. Upshot..NC docs are " you have about 5 years to live, you have to stay on all these drugs even if they're ruining your life, etc "
https://healthunlocked.com/advanced-prostate-cancer/posts/149258815/better-options Dr Corn had all the testing done that my husband's doctors in nc couldn't bother with. Upshot..NC docs are " you have about 5 years to live, you have to stay on all these drugs even if they're ruining your life, etc "
Spring15-3
in
Advanced Prostate Cancer
1 year ago
My Cancer and other health issues update.
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
Ern007
in
Lung Conditions Community Forum
9 months ago
Cyberknife For Periaortic Lymph Nodes
I’m going to be starting RT in September for my prostate and pelvic LN mets (2). My RO doesn’t want to use EBRT on my periaortic LN mets (2), he feels like they’re to near organs. I’m thinking of Cyberknife for those mets. I’ve had chemo and I’m on Lupron and Nubeqa. My last PSA was 0.055. I’m feeling
I’m going to be starting RT in September for my prostate and pelvic LN mets (2). My RO doesn’t want to use EBRT on my periaortic LN mets (2), he feels like they’re to near organs. I’m thinking of Cyberknife for those mets. I’ve had chemo and I’m on Lupron and Nubeqa. My last PSA was 0.055. I’m feeling
Peeffervescence
in
Advanced Prostate Cancer
1 year ago
Pluvicto Update
I have had 3 treatments now and unfortunately the pain has increased significantly each week. My PSA has continued to rise also. Had a PSMA SCAN yesterday (Tuesday 30th May) and received the results same day. The news is that the disease has spread completely into my ride hemi pelvis. I knew the news
I have had 3 treatments now and unfortunately the pain has increased significantly each week. My PSA has continued to rise also. Had a PSMA SCAN yesterday (Tuesday 30th May) and received the results same day. The news is that the disease has spread completely into my ride hemi pelvis. I knew the news
db1966
in
Advanced Prostate Cancer
1 year ago
The final Bday update
I got up at 7:30 and took off to Serra Cross area, it's right next to the Botanical Gardens. Boy, it was a long climb, but at least this was at sorta sea level and not 8600 ft like Big Bear was. Just roamed up and around the neighborhoods, looks like Condos/Apts up there with Fantastic views https:
I got up at 7:30 and took off to Serra Cross area, it's right next to the Botanical Gardens. Boy, it was a long climb, but at least this was at sorta sea level and not 8600 ft like Big Bear was. Just roamed up and around the neighborhoods, looks like Condos/Apts up there with Fantastic views https:
dockam
in
Advanced Prostate Cancer
1 year ago
Please advise
Hello, everyone. During the last few months, while waiting for my father's scans to be done, I have read hundreds of posts and profiles of people on this board. I have been trying to gain some knowledge and courage to face the situation in front of me, often searching for the most difficult cases
Hello, everyone. During the last few months, while waiting for my father's scans to be done, I have read hundreds of posts and profiles of people on this board. I have been trying to gain some knowledge and courage to face the situation in front of me, often searching for the most difficult cases
BlueF
in
Advanced Prostate Cancer
1 year ago
biclutamide without lupron?
I have high psa and am waiting on a psma in 12 days, then meeting with a oncologist. Urologist want to start biclutamide and lupron now. I am concerned about side effects. Read some older studies 2017-2019 saying biclutamide as a monotherapy was a good option. Any opinions out there? Thanks Pj
I have high psa and am waiting on a psma in 12 days, then meeting with a oncologist. Urologist want to start biclutamide and lupron now. I am concerned about side effects. Read some older studies 2017-2019 saying biclutamide as a monotherapy was a good option. Any opinions out there? Thanks Pj
pj1121
in
Advanced Prostate Cancer
1 year ago
High psa. Scheduled for psma pet ct. urologist
just discovered I have very high PSA 250. Feel excellent. Only minor urological issues and dry ejaculation. Scheduled for PSMA in 10 days. have not spoken to an oncologist yet. My urologist wants me to start Lupron and bicalutamide before psma scan. will this cut off any future avenues of treatment
just discovered I have very high PSA 250. Feel excellent. Only minor urological issues and dry ejaculation. Scheduled for PSMA in 10 days. have not spoken to an oncologist yet. My urologist wants me to start Lupron and bicalutamide before psma scan. will this cut off any future avenues of treatment
pj1121
in
Advanced Prostate Cancer
1 year ago
BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
9 months ago
Experience with lupron
Well brother I was on lupron for about a year couldn't tolerate the side effects went on firmagon could not tolerate side effects finally went and had a orchiectomy it was the best thing I've ever had done don't have to deal with the pain and the side effects of the injections and the only thing I take
Well brother I was on lupron for about a year couldn't tolerate the side effects went on firmagon could not tolerate side effects finally went and had a orchiectomy it was the best thing I've ever had done don't have to deal with the pain and the side effects of the injections and the only thing I take
Startanew
in
Advanced Prostate Cancer
1 year ago
qol - Erectile Dysfunction Got You Down?
I may be weird (I definitely am), but I find dark humor a good outlet for the stress of cancer, the treatments, SE's, etc. I hope these corny jokes make some of you smile, and maybe even laugh. If my humor isn’t for you, please feel free to skip this post - or contribute your own funny wisecracks.
I may be weird (I definitely am), but I find dark humor a good outlet for the stress of cancer, the treatments, SE's, etc. I hope these corny jokes make some of you smile, and maybe even laugh. If my humor isn’t for you, please feel free to skip this post - or contribute your own funny wisecracks.
Carlosbach
in
Advanced Prostate Cancer
1 year ago
5/25 update on Zytiga failed
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
1 year ago
Xofigo Update
I just added more content to my bio regarding my husband's history and current status. I'm highlighting the current treatment for those who might be interested: 5/2023 PSA of 17.1 (holding steady near that reading for the last three tests) He has been on Lupron since PR and subsequent localized
I just added more content to my bio regarding my husband's history and current status. I'm highlighting the current treatment for those who might be interested: 5/2023 PSA of 17.1 (holding steady near that reading for the last three tests) He has been on Lupron since PR and subsequent localized
Tinuriel
in
Advanced Prostate Cancer
1 year ago
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