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PET scan results :(
hi everyone- my dads pet scan results were just posted on the portal. Wasn’t exactly what we wanted to see / hear. He is BRCA2 positive and has been on Ibrance lupron letrozole and xjeva since June of 2022. no organ involvement on his PET scan and stable bone lesions but it does say: “developing right
hi everyone- my dads pet scan results were just posted on the portal. Wasn’t exactly what we wanted to see / hear. He is BRCA2 positive and has been on Ibrance lupron letrozole and xjeva since June of 2022. no organ involvement on his PET scan and stable bone lesions but it does say: “developing right
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
Weight LOSS on ADT
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
LessPaul
in
Advanced Prostate Cancer
1 year ago
Bleeding after salvage radiation
Had radical prostatectomy 12/21. Salvage radiation about 11 mos ago. Currently about one year into Lupron + Abiraterone + prednisone. Recently experienced very mild rectal and/or blood in stool. Is this likely due to the radiation, or something else?
Had radical prostatectomy 12/21. Salvage radiation about 11 mos ago. Currently about one year into Lupron + Abiraterone + prednisone. Recently experienced very mild rectal and/or blood in stool. Is this likely due to the radiation, or something else?
jmarsh
in
Advanced Prostate Cancer
1 year ago
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Lupron only after 4.5+ years
I was diagnosed with multiple Mets in August 2018. Started Lupron Nov. 2018. Over the years PSA has bounced up and down from low of 0.5 in March 2021 to high of 1.4 in June 2020. Mostly stayed 0.6 to 0.9. Ended 2022 at .67, but last two readings were 1.01 in March and .98 two days ago. Never had RP,
I was diagnosed with multiple Mets in August 2018. Started Lupron Nov. 2018. Over the years PSA has bounced up and down from low of 0.5 in March 2021 to high of 1.4 in June 2020. Mostly stayed 0.6 to 0.9. Ended 2022 at .67, but last two readings were 1.01 in March and .98 two days ago. Never had RP,
dhccpa
in
Advanced Prostate Cancer
1 year ago
Are PSMA negative mets usually castrate resistant?
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
V10fanatic
in
Advanced Prostate Cancer
1 year ago
Progression of Stage IVB PC
Hello, my husband was diagnosed last year with stage IVB prostate cancer (TXN1M1B) high grade/poorly differentiated metastatic prostate adenocarcinoma with significant neuroendocrine differentiation. A PET scan after C2 of Carboplatin and etoposide showed that the disease diffusely in the skeleton, prostate
Hello, my husband was diagnosed last year with stage IVB prostate cancer (TXN1M1B) high grade/poorly differentiated metastatic prostate adenocarcinoma with significant neuroendocrine differentiation. A PET scan after C2 of Carboplatin and etoposide showed that the disease diffusely in the skeleton, prostate
SpoonieJ
in
Advanced Prostate Cancer
1 year ago
I’m about to start treatment with bicalutamide and lupron. Should I Stagger start?
im just about to start treatment with bicalutamide and lupron. Have the bicalutamide but will be away for 10 days without access to the lupron. Should i start the bicalutamide a week before lupron? Thought I heard someone on this forum say it would better prevent flares.
im just about to start treatment with bicalutamide and lupron. Have the bicalutamide but will be away for 10 days without access to the lupron. Should i start the bicalutamide a week before lupron? Thought I heard someone on this forum say it would better prevent flares.
pj1121
in
Advanced Prostate Cancer
1 year ago
Usa62
I have or had stage four prostate cancer in my lungs. PSA at 6.0. Started taking Taxomere and Lupron treatments.. my PSA levels went from 6 to 1 to 0.2. I still have three more treatments to go.. Hope this gives hope to people. The taxomere seems to work fairly well.
I have or had stage four prostate cancer in my lungs. PSA at 6.0. Started taking Taxomere and Lupron treatments.. my PSA levels went from 6 to 1 to 0.2. I still have three more treatments to go.. Hope this gives hope to people. The taxomere seems to work fairly well.
Shabear
in
Advanced Prostate Cancer
1 year ago
What s happening in our NHS ?- All the shortages.
Two examples - I take Amiodarone for AF and other fast heart beats, I have had to have my prescription sent to another village, and they are running short. Glandosane synthetic saliva spray - Dry mouth is dross to put it mildly. no pharmacy near where I live has any. Not just the the BCG treatment
Two examples - I take Amiodarone for AF and other fast heart beats, I have had to have my prescription sent to another village, and they are running short. Glandosane synthetic saliva spray - Dry mouth is dross to put it mildly. no pharmacy near where I live has any. Not just the the BCG treatment
Ern007
in
Lung Conditions Community Forum
7 months ago
Another positive lymph node
Hi all, Quick recap: My dad was diagnosed in 2002 at age 52 with 3+4 pca. Surgical removal at Mayo. 2003 (one year to the date of surgery) PSA was detectable and he had radiation at Mayo. Fast forward 2015, psa detectable again, put on Lupron. C-11 choline scans every 3 months, appt. with Dr. Kwon
Hi all, Quick recap: My dad was diagnosed in 2002 at age 52 with 3+4 pca. Surgical removal at Mayo. 2003 (one year to the date of surgery) PSA was detectable and he had radiation at Mayo. Fast forward 2015, psa detectable again, put on Lupron. C-11 choline scans every 3 months, appt. with Dr. Kwon
Abcsoup73
in
Advanced Prostate Cancer
1 year ago
T level test
Having my first PSA test since IMRT in a few weeks. (last ADT/Lupron was early February. 90 day. Salvage IMRT Radiation ended Early January. Is there a reason my doc didn't order T level test to coincide with the PSA? Seems like you would track increases or Nadirs etc, having them tested the same time
Having my first PSA test since IMRT in a few weeks. (last ADT/Lupron was early February. 90 day. Salvage IMRT Radiation ended Early January. Is there a reason my doc didn't order T level test to coincide with the PSA? Seems like you would track increases or Nadirs etc, having them tested the same time
runtrails
in
Advanced Prostate Cancer
1 year ago
In need of some wise words
hello everyone, as I’m sure most of you know my father has MBC diagnosed in June of 2022. Currently on Ibrance xjeva letrozole and monthly lupron. His 2 scans in September of 2022 and January of 2023 showed NED and his next scan is July 5. Please keep him in your prayers. My mother developed a
hello everyone, as I’m sure most of you know my father has MBC diagnosed in June of 2022. Currently on Ibrance xjeva letrozole and monthly lupron. His 2 scans in September of 2022 and January of 2023 showed NED and his next scan is July 5. Please keep him in your prayers. My mother developed a
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
not feeling good
I am a black American man with Stage IV disease. I have had pelvic floor, nodes and seminal vesicle External beam radiation then Brachytherapy radiation to prostate. I am 1 1/2 years into ADT ( lupron, abiraterone, prednisone). I feel bloated and uncomfortable in the evenings especially (gluten-free
I am a black American man with Stage IV disease. I have had pelvic floor, nodes and seminal vesicle External beam radiation then Brachytherapy radiation to prostate. I am 1 1/2 years into ADT ( lupron, abiraterone, prednisone). I feel bloated and uncomfortable in the evenings especially (gluten-free
JayJinxed8112
in
Advanced Prostate Cancer
1 year ago
ADT Hot Flashes
I've been on ADT since Feb, 2023 maintaining everything ok, play Water Polo 4x a week for 2 hours - master water polo team and lift weights - but in the last few weeks the hot flashes are crazy strong. One minute I'm doing great and then 30 seconds later sweating bullets. I work from home thank god,
I've been on ADT since Feb, 2023 maintaining everything ok, play Water Polo 4x a week for 2 hours - master water polo team and lift weights - but in the last few weeks the hot flashes are crazy strong. One minute I'm doing great and then 30 seconds later sweating bullets. I work from home thank god,
plato123
in
Advanced Prostate Cancer
1 year ago
triplet therapy?
Hi, I am looking for success stories from people with bone mets on triplet therapy. My husband is on lupron and nubeqa and will hopefully start chemo soon. Gleason 8, mets to bladder, lymph nodes, and pelvis/hips. Thank you.
Hi, I am looking for success stories from people with bone mets on triplet therapy. My husband is on lupron and nubeqa and will hopefully start chemo soon. Gleason 8, mets to bladder, lymph nodes, and pelvis/hips. Thank you.
Jojoteacher
in
Prostate Cancer Caregivers
1 year ago
triplet therapy
Hi, I am looking for success stories from people with bone mets on triplet therapy. My husband is on lupron and nubeqa and will hopefully start chemo soon. Gleason 8, mets to bladder, lymph nodes, and pelvis/hips. Thank you.
Hi, I am looking for success stories from people with bone mets on triplet therapy. My husband is on lupron and nubeqa and will hopefully start chemo soon. Gleason 8, mets to bladder, lymph nodes, and pelvis/hips. Thank you.
Jojoteacher
in
Advanced Prostate Cancer
1 year ago
Severe cramps and ADT
I have led a very active life running long distance races and long bike rides. So I’m used to getting some moderate leg cramps after a long workout. I’ve been able to minimize them by taking electrolyte drinks. Once I started ADT (Lupron, abiraterone, prednisone), I started getting severe leg cramps
I have led a very active life running long distance races and long bike rides. So I’m used to getting some moderate leg cramps after a long workout. I’ve been able to minimize them by taking electrolyte drinks. Once I started ADT (Lupron, abiraterone, prednisone), I started getting severe leg cramps
Gym-rat
in
Advanced Prostate Cancer
1 year ago
Kids and cancer
I have two boys in their 50s. Since my diagnosis I have been very upfront with them about my treatment. One calls every couple of days to check in and see how mom and I are and how my radiation treatment is going. After everything was confirmed he told my grand kids about my having cancer. The have been
I have two boys in their 50s. Since my diagnosis I have been very upfront with them about my treatment. One calls every couple of days to check in and see how mom and I are and how my radiation treatment is going. After everything was confirmed he told my grand kids about my having cancer. The have been
Mgtd
in
Advanced Prostate Cancer
1 year ago
Radiation after triple therapy?
Finished triple therapy (6 cycles 85% docetaxel + 250mg Abiraterone with yogurt + 10mg Prednisone w/yogurt + Lupron (3 month) + XGeve monthly. After 3rd cycle, a CT scan identified a new 3rd bone lesion (L1). Original bone scan identified lesion on Pelvis and C4. MO believes new legion occurred between
Finished triple therapy (6 cycles 85% docetaxel + 250mg Abiraterone with yogurt + 10mg Prednisone w/yogurt + Lupron (3 month) + XGeve monthly. After 3rd cycle, a CT scan identified a new 3rd bone lesion (L1). Original bone scan identified lesion on Pelvis and C4. MO believes new legion occurred between
TMcgee
in
Advanced Prostate Cancer
1 year ago
BC Which Hospital Update _ and eyesl
I got a call saying I could go into local hospital for my flexy cystoscopy There is a 25 mile difference. My last rigid cystoscopy showed that 5 out of 6 biopsies was low grade, hence the flexy cystoscopy.. I have not long ago finished my 3 x BCG infusions - Have they worked, my flexy cystoscopy
I got a call saying I could go into local hospital for my flexy cystoscopy There is a 25 mile difference. My last rigid cystoscopy showed that 5 out of 6 biopsies was low grade, hence the flexy cystoscopy.. I have not long ago finished my 3 x BCG infusions - Have they worked, my flexy cystoscopy
Ern007
in
Lung Conditions Community Forum
7 months ago
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