Hi Guys: Sorry for not being in touch but I have been... - NRAS

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Hi Guys

mattcass profile image
5 Replies

Sorry for not being in touch but I have been going through a hard time with my RA all the way through my Double Lung Transplant. my Consultant is going to recommend a treatment to my transplant team it's called Rubitax or something similar if anyone has heard of this please send the correct spelling and if anyone had used it please let me know.Mattcass

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mattcass
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VeronicaF profile image
VeronicaF

my have you been through it, Hugs,

I can't answer your questions as I have no knowledge on the subject, but wanted to say wishing and sending you best wishes that you have a fast speedy recovery with all you have been through.xx

Shalf profile image
Shalf

Hi Mattcass, I am the same as Veronica regarding my knowledge on this drug but there are others on here who will likely be able to help. Wishing you a speedy recovery from your op and hope the treatment plan goes well. Suzie X

Victoria-NRAS profile image
Victoria-NRASPartnerModeratorNRAS

Hi Mattcass

There is an RA drug called 'rituximab'. Could it be that? May be worth giving them a quick call to check and note the spelling. If it is, this is a drug quite commonly used to treat RA, and you are likely to find a number of people on here with experience of it.

Kind regards

Victoria

(NRAS)

sylvi profile image
sylvi

Matt i do follow you on facebook and i hope things soon start to pick up for you darling sending hugs to you and Fran.xxx

nymima01 profile image
nymima01

If it is Rituxan, then I have had infusions with it for another condition. It is an immunotherapy drug that helps the body to help itself. It put me in remission with the condition that I have for over a year now.

I was allergic to it the first infusion, but the clinic team got right on it and administered a steroid and benedryl to help me. My throat was closing up. I was out of the woods in no time and from that point on, with every infusion after, I had to have the steroid and benedryl drip first and then the infusion.

This drug is being used with so many auto-immune conditions now. And RA is one of them. I had a great experience with it. At the time, one of my conditions was PMR - which is a rheumatoid condition that just so happened to “lurk” alongside the condition for which I was treated and after my set of infusions, I went into remission with both! It helped with inflammation and everything. I went from a CRP of 82 down to below 5 after I was done with the infusions. (I only had infusion treatments once a week for a month).

So, after all that, I do hope we are talking Rituxan and that you have a blessed time of getting back on the road to recovery!!

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