Search
Search
About
Log in
Join
Experiences with
Non-small-cell lung carcinoma
Posts
Communities
2,780 public posts
Filter results
Transplant assessment delay - thanks for nothing PCR test!
Today I was expecting to be starting the process of thinking over whether I want to go ahead with a future lung transplant or not. Instead, I'm having to put everything on hold after falling at the final hurdle ahead of my lung transplant assessment which I was due to undergo today and yesterday. In
Today I was expecting to be starting the process of thinking over whether I want to go ahead with a future lung transplant or not. Instead, I'm having to put everything on hold after falling at the final hurdle ahead of my lung transplant assessment which I was due to undergo today and yesterday. In
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
What a week!
Where do i start? Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double lung transplant. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision. Eyes surgeon and neurologist
Where do i start? Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double lung transplant. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision. Eyes surgeon and neurologist
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
My precious baby lost her battle💔😪
My beautiful 26yr old daughter lost her battle at 3.44am 14 Jan 2022 . It doesn't feel real. She should have only been in hospital for 5 days for IV antibiotics. She had severe lung disease (PPFE) and was waiting for a double lung transplant. 3 hospitals were looking at her xrays and scans , the Sussex
My beautiful 26yr old daughter lost her battle at 3.44am 14 Jan 2022 . It doesn't feel real. She should have only been in hospital for 5 days for IV antibiotics. She had severe lung disease (PPFE) and was waiting for a double lung transplant. 3 hospitals were looking at her xrays and scans , the Sussex
Kcn3
in
Lung Conditions Community Forum
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Liver function tests with Tocilizumab.
My Liver function tests are slightly out of range (0-35) mine were 42 last time and 46 recently. My Rheumatologist proposes that I come off Tocilizumab and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist
My Liver function tests are slightly out of range (0-35) mine were 42 last time and 46 recently. My Rheumatologist proposes that I come off Tocilizumab and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist
SheffieldJane
in
PMRGCAuk
2 years ago
Treatment has stoped working - next steps
Hi, Mags here. Well, after 20 months of combination Pemetrexed and Pemulizimab my latest scan shows some further growth in the lymph nodes, although the primary tumour in the lung is fairly static. My oncologist has decided that as the current treatment - i.e. neither the immuno or chemo therapies, are
Hi, Mags here. Well, after 20 months of combination Pemetrexed and Pemulizimab my latest scan shows some further growth in the lymph nodes, although the primary tumour in the lung is fairly static. My oncologist has decided that as the current treatment - i.e. neither the immuno or chemo therapies, are
magstherunner
in
The Roy Castle Lung Cancer Foundation
2 years ago
Accessing second course of Immunotherapy
Hi all I'm posting on here in the hope to find someone who has been able to access a second course of immunotherapy treatment. My mum was diagnosed in 2015 with stage 4 lung cancer. She went straight onto chemotherapy which made her very poorly and didn't do much to her cancer at all. Her consultant
Hi all I'm posting on here in the hope to find someone who has been able to access a second course of immunotherapy treatment. My mum was diagnosed in 2015 with stage 4 lung cancer. She went straight onto chemotherapy which made her very poorly and didn't do much to her cancer at all. Her consultant
nlg1405
in
The Roy Castle Lung Cancer Foundation
2 years ago
Extrapulmonary small cell cancer
Hi everyone, My wife was recently diagnosed with extrapulmonary small cell cancer which presented in the breast. After having PET scan and brain MRI the cancer was thankfully no where else in her body. This type of cancer is very rare and the treatment is typically the same as for small cell lung cancer
Hi everyone, My wife was recently diagnosed with extrapulmonary small cell cancer which presented in the breast. After having PET scan and brain MRI the cancer was thankfully no where else in her body. This type of cancer is very rare and the treatment is typically the same as for small cell lung cancer
Mitski
in
Lung Cancer Support
2 years ago
Pneumonia Recovery Issue
I just recovered from viral pneumonia after being diagnosed on 11-11-2022. Is it common, after all this time to have good and bad days (meaning feeling well then the next day feeling like a truck hit me) and also my breathing hasn't quite returned to normal either. It's not real bad, but it is noticeable
I just recovered from viral pneumonia after being diagnosed on 11-11-2022. Is it common, after all this time to have good and bad days (meaning feeling well then the next day feeling like a truck hit me) and also my breathing hasn't quite returned to normal either. It's not real bad, but it is noticeable
slram
in
Lung Conditions Community Forum
3 years ago
Looking for someone going through something similar to me! Metastatic lung cancer spread to lymph nodes and spine?
I’m 40 and have stage 4 lung cancer which has spread to my lymph nodes and spine. Anyone else in the same situation? I’m interested in what treatment you are getting or had that has proved successful? Thank you Kate
I’m 40 and have stage 4 lung cancer which has spread to my lymph nodes and spine. Anyone else in the same situation? I’m interested in what treatment you are getting or had that has proved successful? Thank you Kate
Guddamc
in
The Roy Castle Lung Cancer Foundation
3 years ago
Happy to be here!
With everything that's been going on with my lung disease over the past few years, I often forget just how fortunate I am to still be here. In September 2003 I was diagnosed with chronic myeloid leukaemia at the age of 18. I was totally blindsided and the future looked bleak. The amazing treatments
With everything that's been going on with my lung disease over the past few years, I often forget just how fortunate I am to still be here. In September 2003 I was diagnosed with chronic myeloid leukaemia at the age of 18. I was totally blindsided and the future looked bleak. The amazing treatments
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
New Year, new lungs?
Entering 2022, I'm not disappointed to be waving goodbye to 2021. Covid ruled over us all in the early part of the year and then reared its ugly head again at the end of the year to add further anxiety and stress. However, for someone who up until March was having to shield, in reality it never really
Entering 2022, I'm not disappointed to be waving goodbye to 2021. Covid ruled over us all in the early part of the year and then reared its ugly head again at the end of the year to add further anxiety and stress. However, for someone who up until March was having to shield, in reality it never really
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 years ago
Molnupiravir
Hi all , I had a single lung transplant 5 years ago , this is my only lung as the other has been completely removed. New years eve I tested positive for covid 19 understandably I absolutely papped my pants and rung my transplant consultant at Newcastle freeman hospital who straight away arranged for
Hi all , I had a single lung transplant 5 years ago , this is my only lung as the other has been completely removed. New years eve I tested positive for covid 19 understandably I absolutely papped my pants and rung my transplant consultant at Newcastle freeman hospital who straight away arranged for
Hidden
in
Lung Conditions Community Forum
3 years ago
Advice regarding stopping smoking please.
Happy new year to everyone, I have a question I hope can be answered, I stopped smoking completely after a left lung Lobectomy. this was in august, but I am finding my legs are aching badly, Ihave had a doppler test which was fine, the nurse advised this was due to stopping smoking and was normal, has
Happy new year to everyone, I have a question I hope can be answered, I stopped smoking completely after a left lung Lobectomy. this was in august, but I am finding my legs are aching badly, Ihave had a doppler test which was fine, the nurse advised this was due to stopping smoking and was normal, has
beaverwood
in
The Roy Castle Lung Cancer Foundation
3 years ago
Staging questions
If lung cancer is contained to both lungs is it still considered Stage 4? My mom's doctor just ran a PET Scan and confirmed other suspicious areas outside her lungs are negative or benign - does that change her diagnosis? They didn't mention...
If lung cancer is contained to both lungs is it still considered Stage 4? My mom's doctor just ran a PET Scan and confirmed other suspicious areas outside her lungs are negative or benign - does that change her diagnosis? They didn't mention...
ajk44
in
Lung Cancer Support
3 years ago
Next-level Dose Given in Trial of Stem Cell Therapy for Bradykinesia
IMAC Holdings has completed dosing the second group of patients in its Phase 1 clinical trial testing umbilical cord-derived mesenchymal stem cell therapy for the treatment of bradykinesia due to Parkinson’s disease. About a year ago, a first group of five patients received a low dose of the therapy
IMAC Holdings has completed dosing the second group of patients in its Phase 1 clinical trial testing umbilical cord-derived mesenchymal stem cell therapy for the treatment of bradykinesia due to Parkinson’s disease. About a year ago, a first group of five patients received a low dose of the therapy
Hidden
in
Cure Parkinson's
2 years ago
Can I quote you?
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of tocilizumab extended, or indeed get the drug made available as it is for RA. Among
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of tocilizumab extended, or indeed get the drug made available as it is for RA. Among
LemonZest11
in
PMRGCAuk
2 years ago
Researchers report third case of HIV remission after stem cell transplant using umbilical cord blood
A US woman has become the third known person who's gone into HIV remission, and the first mixed-race woman, thanks to a transplant of stem cells from umbilical cord blood, according to research presented at a conference Tuesday. https://edition.cnn.com/2022/02/15/health/hiv-third-person-remission/index.html
A US woman has become the third known person who's gone into HIV remission, and the first mixed-race woman, thanks to a transplant of stem cells from umbilical cord blood, according to research presented at a conference Tuesday. https://edition.cnn.com/2022/02/15/health/hiv-third-person-remission/index.html
Farooqji
in
Cure Parkinson's
2 years ago
Is this possibly GCA again?
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
pamela4215
in
PMRGCAuk
2 years ago
Pred sick day rules.
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
PastelsinArt
in
PMRGCAuk
2 years ago
Cord blood donation Northern Ireland
Does anyone know much about this? I’m very early on in pregnancy but heard about this years ago when beother in law had to have a stem cell transplant. I’m not sure if it’s available in Northern Ireland. Does it have to be donated or can it be froze for possible future use for child?
Does anyone know much about this? I’m very early on in pregnancy but heard about this years ago when beother in law had to have a stem cell transplant. I’m not sure if it’s available in Northern Ireland. Does it have to be donated or can it be froze for possible future use for child?
Babytwinkle
in
Pregnancy and Parenting Support
2 years ago
1
...
22
23
24
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
831 results
The Roy Castle Lung Cancer Foundation
498 results
Lung Cancer Support
363 results
View top 10 communities
Sort by
Most Relevant
Newest