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Non-small-cell lung carcinoma
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What strategies are you using to breathe easier outside in the winter.
Some here are facing their first winter with their lung cancer diagnosis. Others may still be going through treatment now and need to make the trip from the parking spot to the door as painless as possible Treatment causes injury to the lungs making it hard to breathe cold air. What do you do
Some here are facing their first winter with their lung cancer diagnosis. Others may still be going through treatment now and need to make the trip from the parking spot to the door as painless as possible Treatment causes injury to the lungs making it hard to breathe cold air. What do you do
Denzie
Volunteer
in
Lung Cancer Support
2 years ago
post chemo radiation initial scan
Hello everyone , had my post treatment scan done on the 30th dec and yesterday was the review meeting with oncologist… they said that this scan was a very early one ( only 3 weeks post treatment ) but they needed it because of the potential for immunotherapy that needs to be started within 43 days
Hello everyone , had my post treatment scan done on the 30th dec and yesterday was the review meeting with oncologist… they said that this scan was a very early one ( only 3 weeks post treatment ) but they needed it because of the potential for immunotherapy that needs to be started within 43 days
mishamilo53
in
The Roy Castle Lung Cancer Foundation
2 years ago
Fantastic Book for PMR and GCA
On one of my earlier posts, a poster referred me to a book about PMR and GCA. My husband, 73 has been diagnosed with PMR. She recommended this book and it has been fantastic and eye opening and in many ways a Godsend, particularly for asking questions of the rheumatologist and his proactive GP who
On one of my earlier posts, a poster referred me to a book about PMR and GCA. My husband, 73 has been diagnosed with PMR. She recommended this book and it has been fantastic and eye opening and in many ways a Godsend, particularly for asking questions of the rheumatologist and his proactive GP who
Andymegv
in
PMRGCAuk
1 year ago
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Important to know, but sucks to have: TP53 Mutations Confer High Risk in Patients With Myelofibrosis Undergoing HSCT
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic stem cell transplant (HSCT), according to results of a study published in the Blood. “TP53 mutations have been associated with poor
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic stem cell transplant (HSCT), according to results of a study published in the Blood. “TP53 mutations have been associated with poor
PhysAssist
in
MPN Voice
1 year ago
Steroid sparing agents
Could anyone tell me more about Steroid sparing agents please? I have read about Methotrexate and Tocilizumab (?) but not really sure when or if I would go on them ( I was only diagnosed with GCA at the end of January) - also, side effects etc? I see my Rheumatologist next Monday and want to armed with
Could anyone tell me more about Steroid sparing agents please? I have read about Methotrexate and Tocilizumab (?) but not really sure when or if I would go on them ( I was only diagnosed with GCA at the end of January) - also, side effects etc? I see my Rheumatologist next Monday and want to armed with
Janeval
in
PMRGCAuk
1 year ago
post lung transplant
I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
Northernsaul
in
Lung Conditions Community Forum
2 years ago
Bone marrow transplant possibility and leriglitazone update
An update to which I had previously posted; ,I went to London and met Doctor Robin Lachmann. He is going to start me on the drug soon then I will need to go bk to London after being on it for 4 weeks so they can tweak the dosage. He views this more of a temporary solution though and I think has concerns
An update to which I had previously posted; ,I went to London and met Doctor Robin Lachmann. He is going to start me on the drug soon then I will need to go bk to London after being on it for 4 weeks so they can tweak the dosage. He views this more of a temporary solution though and I think has concerns
JShough
in
AMN EASIER
1 year ago
Milk thistle - anything to be aware of?
A recent blood panel came back with slightly raised liver enzymes (marginally above the range), for reasons I am looking into. I have read about the benefits of milk thistle supplementation with respect to helping with both liver and thyroid matters. On the whole, the consensus seems to be that it
A recent blood panel came back with slightly raised liver enzymes (marginally above the range), for reasons I am looking into. I have read about the benefits of milk thistle supplementation with respect to helping with both liver and thyroid matters. On the whole, the consensus seems to be that it
JonnyA
in
Thyroid UK
2 years ago
Can Divine Intervention Change Your Genotype?
Reports of sickle cell cures/genotype change by divine intervention have become too many to ignore. _SICKLE CELL NEWS_ ventured to investigate: and it turned out easier to pass a camel through the eye of a needle than find anyone cured of sickle cell by Faith! https://selar.co/lor8 We interviewed
Reports of sickle cell cures/genotype change by divine intervention have become too many to ignore. _SICKLE CELL NEWS_ ventured to investigate: and it turned out easier to pass a camel through the eye of a needle than find anyone cured of sickle cell by Faith! https://selar.co/lor8 We interviewed
sicklecellnews
in
Sickle Cell Society
2 years ago
Hello everyone .
Hi all , hope you all managed a reasonable Christmas despite various treatments etc ongoing … I’m interested to hear from anyone who had chemo / radiation treatment for lung cancer stage 3 and didn’t follow up with immunotherapy either because it wasn’t an option or because they chose not to or other
Hi all , hope you all managed a reasonable Christmas despite various treatments etc ongoing … I’m interested to hear from anyone who had chemo / radiation treatment for lung cancer stage 3 and didn’t follow up with immunotherapy either because it wasn’t an option or because they chose not to or other
mishamilo53
in
The Roy Castle Lung Cancer Foundation
2 years ago
‘World's 1st' fetal brain stem cell transplant effective in Parkinson's disease: study
CHA University Bundang Medical Center (CBMC) said on Monday that its researchers proved the safety and effectiveness of dopamine neural precursor cells derived from fetal mesenchymal stem cells transplanted into patients with Parkinson's disease "for the first time in the world." Cell replacement therapy
CHA University Bundang Medical Center (CBMC) said on Monday that its researchers proved the safety and effectiveness of dopamine neural precursor cells derived from fetal mesenchymal stem cells transplanted into patients with Parkinson's disease "for the first time in the world." Cell replacement therapy
Baron1
in
Cure Parkinson's
1 year ago
KRAS G13D
Hi All, I'm a recently diagnosed Stage IV 4B NSCLC patient (24 years old) with the KRAS G13D genetic mutation identified in my genetic screening. I've been in 2 rounds of chemo with Cisplatin + Pexemetred with plans to add Keytruda to round 3 and 4. However, my cancer is not responding to my 2nd rounds
Hi All, I'm a recently diagnosed Stage IV 4B NSCLC patient (24 years old) with the KRAS G13D genetic mutation identified in my genetic screening. I've been in 2 rounds of chemo with Cisplatin + Pexemetred with plans to add Keytruda to round 3 and 4. However, my cancer is not responding to my 2nd rounds
CuteLabrador123
in
Lung Cancer Support
2 years ago
Sweet's syndrome triggered by erlotinib
A 72-year-old woman, with recently diagnosed stage IV epidermal growth factor receptor-mutated
non
-
small
-
cell
lung
carcinoma
, was admitted to Prince of Wales Hospital in Hong Kong for painful rashes for five days and a fever of one-day duration.
A 72-year-old woman, with recently diagnosed stage IV epidermal growth factor receptor-mutated
non
-
small
-
cell
lung
carcinoma
, was admitted to Prince of Wales Hospital in Hong Kong for painful rashes for five days and a fever of one-day duration.
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
2 years ago
Coughing up blood and CT scan results
Hello, I'm new here. I'm wondering if anyone can advise me if possible. I've been coughing up some blood and bloody mucus over the last couple of months. Went to the GP and they referred me on the 2 week pathway. I had a chest x-ray last week which came back clear. I had a chest CT scan yesterday and
Hello, I'm new here. I'm wondering if anyone can advise me if possible. I've been coughing up some blood and bloody mucus over the last couple of months. Went to the GP and they referred me on the 2 week pathway. I had a chest x-ray last week which came back clear. I had a chest CT scan yesterday and
Col178
in
The Roy Castle Lung Cancer Foundation
2 years ago
Getting older with ss
I'm in my 40's now and I have fewer pain crisis then I had when I was younger. You'd think things would get easier because of this but it isn't. Now I'm dealing with a lot of health problems that sickle cell caused or exacerbated. Like heart problems (which I take meds for), a bad hip (which I had replaced
I'm in my 40's now and I have fewer pain crisis then I had when I was younger. You'd think things would get easier because of this but it isn't. Now I'm dealing with a lot of health problems that sickle cell caused or exacerbated. Like heart problems (which I take meds for), a bad hip (which I had replaced
SociallyUrban
in
Sickle Cell Society
2 years ago
2023, time to connect?
Hello all just sharing some information. We will be restarting some new support sessions run by our lovely facilitators in the New Year. In 2022 we have run programmes of six sessions held fortnightly on topics such as: - Managing during treatment - Managing with a mutation driven lung cancer -
Hello all just sharing some information. We will be restarting some new support sessions run by our lovely facilitators in the New Year. In 2022 we have run programmes of six sessions held fortnightly on topics such as: - Managing during treatment - Managing with a mutation driven lung cancer -
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
2 years ago
Treat-to-target recommendations in giant cell arteritis and polymyalgia rheumatica - a very useful reference to show your doctor
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
PMRpro
Ambassador
in
PMRGCAuk
1 year ago
Meningioma diagnoses
My GP called me today about my MRI results and I have been told they think it’s a Meningioma tumour in my frontal lobe. Didn’t even ask the size as was in shock. But my only symptom is Pulsatile tinnitus. Apparently my scans are going to be reviewed by the team on 23rd December and I should then
My GP called me today about my MRI results and I have been told they think it’s a Meningioma tumour in my frontal lobe. Didn’t even ask the size as was in shock. But my only symptom is Pulsatile tinnitus. Apparently my scans are going to be reviewed by the team on 23rd December and I should then
Becky130777
in
Meningioma Support
2 years ago
NEW FDA approval/indication for injection that can now be given during lung surgery to detect cancer
Last week the FDA approved a new indication for an injection that was already approved for ovarian cancer. The injection is call Cytalux and is given before lung surgery. With the use of this injection, during surgery an infrared light is used to make it cancer easier to detect and remove. Read more
Last week the FDA approved a new indication for an injection that was already approved for ovarian cancer. The injection is call Cytalux and is given before lung surgery. With the use of this injection, during surgery an infrared light is used to make it cancer easier to detect and remove. Read more
Miranda_GO2
Partner
in
Lung Cancer Support
2 years ago
Travel insurance within the UK.
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
Kraskie1915
in
CLL Support
1 year ago
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