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Next NoSilverBullet Zoom webinar on Monday 5th of June: “Vibrotactile fingertip stimulation to ease Parkinson’s symptoms” by Dr. Peter Tass
Since 2017 he is Professor of
Neurosurgery
in the Department of
Neurosurgery
, Stanford University Medical School.
Since 2017 he is Professor of
Neurosurgery
in the Department of
Neurosurgery
, Stanford University Medical School.
Michel0220
in
Cure Parkinson's
1 year ago
DBS should I or should I not??
I'm sure everyone goes through this question over & over again!! Ten times, or more like 100 times in our heads when trying to make a decision and be happy with the choice made. I went for my assessment for dbs this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking
I'm sure everyone goes through this question over & over again!! Ten times, or more like 100 times in our heads when trying to make a decision and be happy with the choice made. I went for my assessment for dbs this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking
MARC1
in
Cure Parkinson's
11 months ago
Personal insights into late stage PD thoughts
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
beehive23
in
Cure Parkinson's
11 months ago
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UK Brain Neurosurgeron recommendation?
Hi everyone, I have a brain paraclinoid aneurysm and I would like to go through endovascular surgery to repair it because it's causing me to lose my sight in one eye and I have strong headaches, photophobia and dizziness. I am scared of undergoing surgery with a doctor that is inexperienced or that butchered
Hi everyone, I have a brain paraclinoid aneurysm and I would like to go through endovascular surgery to repair it because it's causing me to lose my sight in one eye and I have strong headaches, photophobia and dizziness. I am scared of undergoing surgery with a doctor that is inexperienced or that butchered
Patient300
in
Brain health
1 year ago
Your not alone
I have suffered after my subarachnoid haemorrhage 3 years ago and then my 2 more brain surgeries to have a VP shunt fitted for hydrocephalus.i can't do group sessions talking to people but this forum has helped me so much because I read what other people are saying and I can relate to it.knowing I'm
I have suffered after my subarachnoid haemorrhage 3 years ago and then my 2 more brain surgeries to have a VP shunt fitted for hydrocephalus.i can't do group sessions talking to people but this forum has helped me so much because I read what other people are saying and I can relate to it.knowing I'm
Roundhead1974
in
Headway
1 year ago
Pain ongoing
Hi I am new to this but here goes I had a accident coming up 7 years ago which resulted in needing to have brain surgery, due to obstructive hydrocephalus. Since this I've suffered with many problems but the worse being ongoing headaches which the hospital cannot figure out or help. I think it just
Hi I am new to this but here goes I had a accident coming up 7 years ago which resulted in needing to have brain surgery, due to obstructive hydrocephalus. Since this I've suffered with many problems but the worse being ongoing headaches which the hospital cannot figure out or help. I think it just
Animalandbooklover
in
Headway
1 year ago
Why Won't My Neurologist Listen (Explanation)
While my #1 Neurologist diagnosed me with something I never wanted, my #1 Neurologist was one I was very lucky to have known. I only had two one hour visits with him, he was so passionate and willing to help. He told the wife and I, anytime you need my advice or help phone me any time, email me any
While my #1 Neurologist diagnosed me with something I never wanted, my #1 Neurologist was one I was very lucky to have known. I only had two one hour visits with him, he was so passionate and willing to help. He told the wife and I, anytime you need my advice or help phone me any time, email me any
72andnotout
in
Cure Parkinson's
1 year ago
Glibobastoma
I was April completely healthy or so I thought. After complaining of headaches which doctors said most likely cluster headaches.. I didn't think much more of it Roll on August I received diagnosis. Stage 4 glibobastoma. This very quickly turned into major brain surgery which left me partially paralysed
I was April completely healthy or so I thought. After complaining of headaches which doctors said most likely cluster headaches.. I didn't think much more of it Roll on August I received diagnosis. Stage 4 glibobastoma. This very quickly turned into major brain surgery which left me partially paralysed
25049462
in
Glioblastoma Support
1 year ago
Update
For those who have followed me, my pc has taken a backseat to my Glio tumor. I had SBRT and Eligard for my PC in June after my 2 yr vaca and that seems to be addressed. Since my last post, I have had brain surgery to debulk my Glio followed by radiation/chemo that all went surprisingly well - i have
For those who have followed me, my pc has taken a backseat to my Glio tumor. I had SBRT and Eligard for my PC in June after my 2 yr vaca and that seems to be addressed. Since my last post, I have had brain surgery to debulk my Glio followed by radiation/chemo that all went surprisingly well - i have
PabloK
in
Advanced Prostate Cancer
1 year ago
PLEASE HELP or advice
We had a
Neurosurgery
review recently and they were happy with her brains healing process. When informed about the vomiting and sickness, he said this was not a common feature associated with my partners procedure and condition. Basically, he was clueless and said it might pass.
We had a
Neurosurgery
review recently and they were happy with her brains healing process. When informed about the vomiting and sickness, he said this was not a common feature associated with my partners procedure and condition. Basically, he was clueless and said it might pass.
Mykel1
in
Headway
1 year ago
Update on my daddy- 8 years stage four
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Lynsi13
in
Advanced Prostate Cancer
1 year ago
Cerebellar degeneration
Anybody else being diagnosed with cerebellar degeneration following acoustic neuroma
neurosurgery
? Had
neurosurgery
in 2018 and already some 9-10 months following surgery and rehab, my balance started worsening.
Anybody else being diagnosed with cerebellar degeneration following acoustic neuroma
neurosurgery
? Had
neurosurgery
in 2018 and already some 9-10 months following surgery and rehab, my balance started worsening.
esbjorn
in
Acoustic Neuroma Support
2 years ago
Hair loss
Hi there I'm 36 and from NZ. Currently 3 months post Bacterial Meningitis after a CSF leak. Prior brain surgery 3 weeks before. Spent 6 weeks all up in hospital. I've noticed I've lost over half my hair. Although I had the had the back of my head shaved for surgery. What i do have left it falls out
Hi there I'm 36 and from NZ. Currently 3 months post Bacterial Meningitis after a CSF leak. Prior brain surgery 3 weeks before. Spent 6 weeks all up in hospital. I've noticed I've lost over half my hair. Although I had the had the back of my head shaved for surgery. What i do have left it falls out
Amelia2023
in
Meningitis Now
1 year ago
Hearing Aids?
Hi, My mum had brain surgery back in 1991 for a schwannoma/acoustic neuroma. Her hearing was affected but as she's got older her hearing in that ear has significantly deteriorated. Mum is sure that she cannot have a hearing aid due to the surgery but I'm wondering if technology has advanced and if
Hi, My mum had brain surgery back in 1991 for a schwannoma/acoustic neuroma. Her hearing was affected but as she's got older her hearing in that ear has significantly deteriorated. Mum is sure that she cannot have a hearing aid due to the surgery but I'm wondering if technology has advanced and if
Cocacolla
in
Acoustic Neuroma Support
1 year ago
Dystonia: WTF?!
Never saw this one coming. Funny, when you type this word into the search, there are very few posts with this in the title. Strange as this is becoming the symptom I fear and loathe most. During my 8 years with PD, I’ve been conscious of Dystonia in isolated areas like feet but about a year ago my diaphragm
Never saw this one coming. Funny, when you type this word into the search, there are very few posts with this in the title. Strange as this is becoming the symptom I fear and loathe most. During my 8 years with PD, I’ve been conscious of Dystonia in isolated areas like feet but about a year ago my diaphragm
jeeves19
in
Cure Parkinson's
1 year ago
Have you had neurosurgery for your brain tumour?
Being told you, or your loved one, needs to have surgery for their brain tumour can be a worrying time, which we know many of our community face. Help us ensure that patients and their loved ones are provided with the best information and care during treatment by sharing you experience through our Improving
Being told you, or your loved one, needs to have surgery for their brain tumour can be a worrying time, which we know many of our community face. Help us ensure that patients and their loved ones are provided with the best information and care during treatment by sharing you experience through our Improving
Zhaleh_TBTC
Administrator
in
The Brain Tumour Charity
1 year ago
Scared to start prescribed Fentanyl Patch
hello,I am awaiting
neurosurgery
for multiple extruded discs in my lumbar and sacral spine. My pain has not been controlled on oral opiates, gabapentin, and muscle relaxers.
hello,I am awaiting
neurosurgery
for multiple extruded discs in my lumbar and sacral spine. My pain has not been controlled on oral opiates, gabapentin, and muscle relaxers.
Coco1115
in
Pain Concern
2 years ago
Headaches and sleep issues
Now I am urgently transferred to a hospital that can perform
neurosurgery
and I have a drain fitted to drain the blood that is merrily compressing my brain. I was discharged from care a few weeks later and am feeling much better, but it is safe to say to that life is not perfect.
Now I am urgently transferred to a hospital that can perform
neurosurgery
and I have a drain fitted to drain the blood that is merrily compressing my brain. I was discharged from care a few weeks later and am feeling much better, but it is safe to say to that life is not perfect.
SDH_Recovery
in
Headway
1 year ago
‘World's 1st' fetal brain stem cell transplant effective in Parkinson's disease: study
The research team, led by Professor Kim Joo-pyung of
Neurosurgery
at CBMC, administered three different doses of cells to 15 patients accompanied by a 12-month follow-up under the age of 70.
The research team, led by Professor Kim Joo-pyung of
Neurosurgery
at CBMC, administered three different doses of cells to 15 patients accompanied by a 12-month follow-up under the age of 70.
Baron1
in
Cure Parkinson's
2 years ago
Abiraterone plus Prednisone and 3 monthly injection failing now in 79 year old dad with mets to bone on NHS in UK.
Hi Everyone, This site has been a great comfort and source of knowledge for me. I'm travelling down a difficult road. I've had a brain tumour/brain surgery. My mother has severe dementia. My father was diagnosed with PC in 2018. He had prostate removed in 2019, but cancer had already spread outside prostate
Hi Everyone, This site has been a great comfort and source of knowledge for me. I'm travelling down a difficult road. I've had a brain tumour/brain surgery. My mother has severe dementia. My father was diagnosed with PC in 2018. He had prostate removed in 2019, but cancer had already spread outside prostate
Lemonpower
in
Advanced Prostate Cancer
1 year ago
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