I was April completely healthy or so I thought.
After complaining of headaches which doctors said most likely cluster headaches.. I didn't think much more of it
Roll on August I received diagnosis. Stage 4 glibobastoma. This very quickly turned into major brain surgery which left me partially paralysed on my left side . Chemo to start ina few weeks and radiation.
Independent single mum of 2 young adults .. it's been a complete devastation but I was born a fighter.
I am SO sorry... and appreciating you reaching out. We have to stick together thru this time. Not anything any of us expected. Sounds like you are doing all the standard of care.... For me, my medical team is phenomenal ... and... I found that was not enough. I was diagnosed a year ago, had surgery in Sept. then chemo and radiation which ended late December. I take a med of help control my seizures which takes me tired. (My seizures consist of a wried sensation in my right cheek and slurred speech for about a minute.) I only have one every few weeks. In addition to the chemo pill, I take rapamysin, some CBD/THC at night, and I mostly follow a Keto diet. I also try to get at least 5.000 steps/ day (I measure the steps with my phone in my pocket.) I'd love to know what you're finding. Bless you. Keep breathing and feel the love.
I am very sorry for your diagnosis. I am glad that you are a fighter - trying to stay positive through this ordeal has helped me get through my journey. I am 3 years from my diagnosis and feel calm and well. I had the standard treatment of chemo/radio and felt at times that I wasn't going to make it. But staying positive and having a loving family supporting me has been the best medicine. I have a healthy diet (no dairy or wheat, mainly vegetarian) and lead a normal life and have stopped worrying.
Your mind is the best healer. A positive frame of mind has a real effect on your physical and mental outcome.
Please stay positive. Bless you.
@BeLoveAndHope - I had a few nasty seizures for a year but now my last seizure was a year ago. I am on Levitiracetam anti-seizure tablets. Check with your oncologist to see if you need to up your dose. I have also been prescribed a drug that can prevent a seizure if I feel one coming on though I haven't needed to take it yet. I have learned when I am likely to have a seizure I immediately rest and close my eyes.
Hi 25049462
Sorry about your diagnosis, I was diagnosed with my grade 4 GBM in May 2010, so know that it is possible to live a positive, longer and better life despite the standard prognosis.
Staying positive and concentrating on living and enjoying life is important. May I suggest that you use the Brain Tumour Charity's BRIAN APP, to access further information and support. If you go to the BRIAN APP discussion board, you will find a series of posts I have written, regarding my experience and advice which you will hopefully find useful.
I suspect that you have been told that you can eat anything you like, if so please ignore it - sugar feeds cancer cells, so cutting out all unnecessary sugar is vital. Include blueberries, pecan nuts and turmeric spice, which have anti-cancer properties, in you diet.
You will find further advice about my use on the alternative anti-cancer treatments I have been using since 2010.
When you start chemo, ensure that you drink a least a pint of water with the tablet, as this will help your body absorb the drug quicker.
In the mean time, listen to your body and rest when it tells you to. Recovery is not a race so take your time and allow your brain and body the time they need to recover.
Also use your current time to reflect on your life, and see your current situation as a life changing opportunity to take your life in a new direction if you like/change of life style, etc. Take some time out to plan for a new future.
I appreciate this might sound strange at the moment, but consider turning hospital trips into a day out, depending on how you feel. It's what I and my wife did, to help break the cycle of just going to and from home to hospital. Sometimes it might just be going for a nice meal or treat after treatment e.g. radiotherapy or my review appointments.
No matter what is to come, stay positive and believe that you can get through this with a positive outcome ahead of you for you and your children.
If you have any questions please do leave a post and I will reply.🙂
it had been a year now had 80% tumur removed radiation and Chemo I must say I am feeling good looking well, the only thing is 2nd week after having chemo I am weak and tearful. All through somertimes very wobbly and unbalanced. Sometimes I feel that I am going to fall over. But mostly stopped sugary things I eat lots of salad, meat fish eggs. No carbs if I can help it. Very strict diet. After radiation I had a mark which was 1cm then grow to 1.5cm. Changed diet now for three months there is no change. I sleep with a hat on at night, in a slim panty liner I use castor oil. Every night religiously and drink Sour sop tea and moringa tea.Drink lots of bottled water. I am doing well keeping positive and thankful for being alive every day really important, when able I try and go for walks. However I do get tired. Hope this helps! Remain strong good luck Sweetie
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GBM and Keto Diet - Urgent
