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Hi, In May 2021 I had the intrinsic factor blood test and my results were as follows. 89 u/ml. With a normal range of 0-24 u/ml. And the following notes. The presence of anti intrinsic factor antibodies together with a low vitamin B12 level is diagnostic of pernicious anaemia Does this make sense to
Hi, In May 2021 I had the intrinsic factor blood test and my results were as follows. 89 u/ml. With a normal range of 0-24 u/ml. And the following notes. The presence of anti intrinsic factor antibodies together with a low vitamin B12 level is diagnostic of pernicious anaemia Does this make sense to
Mysticat81
in
Pernicious Anaemia Society
2 months ago
Rash photo.
Newbie here. Not diagnosed with lupus nor Sjogren's, though I do have symptoms of both. I've had this weird rash on the back of my neck, into my hairline for a while now. Any ideas if it could be lupus/Sjogren's related? Many thanks in advance for any replies.
Newbie here. Not diagnosed with lupus nor Sjogren's, though I do have symptoms of both. I've had this weird rash on the back of my neck, into my hairline for a while now. Any ideas if it could be lupus/Sjogren's related? Many thanks in advance for any replies.
grumpyold
in
LUPUS UK
2 months ago
Diabetes drug similar to Ozempic helped slow progression of Parkinson’s disease in small trial
https://www.cnbc.com/2024/04/04/drug-similar-to-ozempic-slowed-parkinsons-disease-in-small-trial.html And they are no longer manufacturing this older drug as it would be a "cheap" drug. It will be repurposed and cost $$$. I know I am being cynical. [i]Sanofi pulled lixisenatide from the market
https://www.cnbc.com/2024/04/04/drug-similar-to-ozempic-slowed-parkinsons-disease-in-small-trial.html And they are no longer manufacturing this older drug as it would be a "cheap" drug. It will be repurposed and cost $$$. I know I am being cynical. [i]Sanofi pulled lixisenatide from the market
Sydney75
in
Cure Parkinson's
6 months ago
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starting statins and blood thinners
I just found out that I had a silent stroke in the past according to a recent MRA. I am starting a med that keeps platelets from sticking together and a statin. I am scared to death of the side effects. Any advice?
I just found out that I had a silent stroke in the past according to a recent MRA. I am starting a med that keeps platelets from sticking together and a statin. I am scared to death of the side effects. Any advice?
Milynda
in
Anticoagulation Support
6 months ago
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bolt_Upright
in
Cure Parkinson's
6 months ago
GLP1-R agonist improves Parkinson disease symptoms
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
Gcf51
in
Cure Parkinson's
6 months ago
Meta analysis of Eastern Cooperative Oncology Group(ECOG) PS predicts OS regardless of category, previous chemotherapy, and mPC population
”Overall, 75 studies, comprising 32,298 patients, were included. Most studies (72/75) included patients with mCRPC. Higher ECOG PS was associated with a significant increase in mortality risk, with the highest estimate observed among patients with mCRPC with an ECOG PS of ≥2 versus <2 (hazard ratio [
”Overall, 75 studies, comprising 32,298 patients, were included. Most studies (72/75) included patients with mCRPC. Higher ECOG PS was associated with a significant increase in mortality risk, with the highest estimate observed among patients with mCRPC with an ECOG PS of ≥2 versus <2 (hazard ratio [
Graham49
in
Advanced Prostate Cancer
6 months ago
PSA following Lupron and question on scans
hi all, I am so happy to report that my dad has really improved following terrible side effects with his radiation treatment. I have posted before -he was having awful GI side effects which seemed to get worse following radiation completion. But this is all subsided which we are grateful for. dad
hi all, I am so happy to report that my dad has really improved following terrible side effects with his radiation treatment. I have posted before -he was having awful GI side effects which seemed to get worse following radiation completion. But this is all subsided which we are grateful for. dad
alysona828
in
Advanced Prostate Cancer
6 months ago
Scientists say they have identified a root cause of lupus — one that could pave the way for new treatments
Scientists say they have identified a root cause of lupus — one that could pave the way for new treatments An imbalance of T cells, which play a key role in the body’s immune response, could explain most cases of the disease, according to new research. By Aria Bendix A key mystery behind one of the
Scientists say they have identified a root cause of lupus — one that could pave the way for new treatments An imbalance of T cells, which play a key role in the body’s immune response, could explain most cases of the disease, according to new research. By Aria Bendix A key mystery behind one of the
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
Scientists say they have identified a root cause of lupus — one that could pave the way for new treatments
Scientists say they have identified a root cause of lupus — one that could pave the way for new treatments An imbalance of T cells, which play a key role in the body’s immune response, could explain most cases of the disease, according to new research. By Aria Bendix A key mystery behind one of the
Scientists say they have identified a root cause of lupus — one that could pave the way for new treatments An imbalance of T cells, which play a key role in the body’s immune response, could explain most cases of the disease, according to new research. By Aria Bendix A key mystery behind one of the
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
Arthritis
does any one have Giant Cell arthritis. I am very poorly at the moment. I’m having test for it. I’ve been to my local hospital a few days now I’ve got to have a brain scan and maxillofacial appointment. Thanks
does any one have Giant Cell arthritis. I am very poorly at the moment. I’m having test for it. I’ve been to my local hospital a few days now I’ve got to have a brain scan and maxillofacial appointment. Thanks
Breavheart
in
LUPUS UK
2 months ago
Autoimmune neurological B12 deficiency
I came across this fascinating study on an autoimmune condition that results in B12 deficiency selectively in the central nervous system. Cerebrospinal fluid B12 is essentially non-existent but serum levels are normal, making this very hard to detect! https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1
I came across this fascinating study on an autoimmune condition that results in B12 deficiency selectively in the central nervous system. Cerebrospinal fluid B12 is essentially non-existent but serum levels are normal, making this very hard to detect! https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1
etreas
in
Pernicious Anaemia Society
2 months ago
question about macuna
hi Few questions. 1. Does macuna capsule must take with benserazide or carbidopa? 2. If so, i am taking 100mg levodopa/25mg benserazide(Madopar) if I want to add 400mg mucuna15% levodopa ; so I need to take extra benserazide? thx
hi Few questions. 1. Does macuna capsule must take with benserazide or carbidopa? 2. If so, i am taking 100mg levodopa/25mg benserazide(Madopar) if I want to add 400mg mucuna15% levodopa ; so I need to take extra benserazide? thx
limcheeese22
in
Cure Parkinson's
6 months ago
Stage 4 fibrosis of the Liver
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
Wi-llow
in
British Liver Trust
6 months ago
Timing of co-careldopa
I've written to US NLM regarding the difference of advice given when taken the co-careldopa pill, as follows....Thank you for contacting the U.S. National Library of Medicine (NLM). The details of your message are listed below. You can expect to hear from us within 2 to 5 business days. For additional
I've written to US NLM regarding the difference of advice given when taken the co-careldopa pill, as follows....Thank you for contacting the U.S. National Library of Medicine (NLM). The details of your message are listed below. You can expect to hear from us within 2 to 5 business days. For additional
Allypally49
in
Cure Parkinson's
6 months ago
FDA approves a new IND application of 225Ac-J591 (Actinium)
The FDA has granted clearance to an investigational new drug (IND) application for 225Ac-J591 (CONV01-α), a prostate-specific membrane antigen-targeted monoclonal antibody under investigation for the treatment of patients with advanced prostate cancer, announced Convergent Therapeutics, the developer
The FDA has granted clearance to an investigational new drug (IND) application for 225Ac-J591 (CONV01-α), a prostate-specific membrane antigen-targeted monoclonal antibody under investigation for the treatment of patients with advanced prostate cancer, announced Convergent Therapeutics, the developer
Maxone73
in
Advanced Prostate Cancer
6 months ago
help with new test results
hi, could someone please help with these results.iv been on levothyroxine 75mg for about 4 years . Diagnosed in 2019 as underactive thyroid. Thyroid function test Serum TSH level 2.15 mu/L [0.35 - 4.94] Serum free T4 level 13.2 pmol/L [9.0 - 19.0] Thyroid Therapy Levothyroxine (T4) It has come
hi, could someone please help with these results.iv been on levothyroxine 75mg for about 4 years . Diagnosed in 2019 as underactive thyroid. Thyroid function test Serum TSH level 2.15 mu/L [0.35 - 4.94] Serum free T4 level 13.2 pmol/L [9.0 - 19.0] Thyroid Therapy Levothyroxine (T4) It has come
Norrahsjake
in
Thyroid UK
2 months ago
neuropathy source
hi all, Does anyone else on here have Sjögren’s as well as PA? I am experiencing constant tingling and occasional burning/numbness in my fingers and toes. (specific fingers and toes, not all)….It got worse when I did a reloading series of dosages of B12. I’m curious - does neuropathy usually flow from
hi all, Does anyone else on here have Sjögren’s as well as PA? I am experiencing constant tingling and occasional burning/numbness in my fingers and toes. (specific fingers and toes, not all)….It got worse when I did a reloading series of dosages of B12. I’m curious - does neuropathy usually flow from
Lhood08
in
Pernicious Anaemia Society
2 months ago
Teesside Lupus Support group meetings
We are a group in the North East of England. We had a very welcoming and successful Event on Lupus and other associated chronic illnesses awareness on the 20th of July 2024. We are inviting any Lupies within our area who are looking for a place to go and meet and chat and do activities as well as share
We are a group in the North East of England. We had a very welcoming and successful Event on Lupus and other associated chronic illnesses awareness on the 20th of July 2024. We are inviting any Lupies within our area who are looking for a place to go and meet and chat and do activities as well as share
Pipido36
in
LUPUS UK
2 months ago
pernicious anemia diet
is there a certain diet that is recommended for pernicious anemia? I have been advised that even oats can be harmful? thanks
is there a certain diet that is recommended for pernicious anemia? I have been advised that even oats can be harmful? thanks
Damacian
in
Pernicious Anaemia Society
2 months ago
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