is there a certain diet that is recommended for pernicious anemia? I have been advised that even oats can be harmful?
thanks
pernicious anemia diet: is there a... - Pernicious Anaemi...
pernicious anemia diet
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Damacian
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Everyone is different. My mum is better diary free.
Mt daughter gluten ,Fructose ,diary ,red meat free caffeine
She hax recently reintroduced eggs and fish back into her diet .
Oats are fine for all of us.
I make no restrictions.
But initially I.e for 3 yesrs had zero alcohol. Just too ill.
Didn't fancy chocolate.
Coffee made reflux worse so stopped that.
I've never tolerated big late meals.
Have porridge fruit and nuts every morning since becoming ill.
Nevef was one for much breakfast previously
Why can oats be harmful ?
There is no specific diet for Pernicious Anaemia. (Also known as Autoimmune Gastritis)
But P.A. patients have low or no stomach acid( Hypochlorhydria / Achlorhydria) due to the destruction of the parietal cells in the stomach by antibodies . Parietal cells produce the Intrinsic Factor and stomach acid, both of which are required for the absorption of vitamin B12,.
Lack of stomach acid can lead to the upsetting of the stomach flora ( the good bacteria ) which keeps the stomach in good working order . Probiotics ( good bacteria that the stomach needs ) can be supplied by probiotic foods which are fermented .Foods like real yoghurt , sauerkraut kimchi and best of all , home made KEFIR .
. But probiotic capsules and water based Symprove can also help to establish good stomach flora .
Oats are highly recommended for P.A. patients as they contain a substance called Beta -glucan which benefits the stomach enormously . I cannot imagine where you got the information that oats were not good for P.A. patients . It is not true . When I say oats , I DONT mean those processed easy to use one that come in individual packets . I mean the old-fashioned traditional type .
P.A. patients benefit from folic acid tablets (Vitamin , B9, ) daily 400 mcg as it works together with B12 injections, which patients need regularly enough to keep B12 deficiency symptoms at bay , Folic acid , called folate when it is in foods , can be obtained in good quantities in green leafy vegetables. Remember mother telling us to “ Eat up your greens!”
An acidic drink taken with protein meals can help with depleted stomach acid ( eg diluted organic apple cider vinegar with the mother ) In severe cases of depleted or no stomach acid , Betaine HCl capsules with pepsin are very helpful ( follow dietary guide lines for this remedy )
Otherwise a good balanced diet is required with plenty of fresh vegetables and fruit and no , or as few as possible, ultra processed foods which are now given a bad press ! !
Hope that this info helps you . Best wishes .
Dear Wedgewood,For some years I have been taking 1 HCL-capsule plus 1 capsule that helps breaking down protein and more (protease, amylase etc) with every meal. This works fine, as I have less stomach aches and indegestion issues.
I also eat very fibrous foods, wholegrain and just enough protein (which is my biggest issue (except from eggs). Fats in wholefoods, rather than too concentrated.
Cannot do milk products.
Questions:
The KEFIR...will it also contain the valuable probiotics in the form of WATER KEFIR?
I have the kefir graines and can make the recipe...
And...how do you go about the Apple cider vinegar drink without damaging your teeth? How much do you recommend pr meal?
Hoping I am not stealing a thread, but adding to the diet-track..
🌺
I make my deliciously lovely Kefir mainly with soya milk, with goats milk every 4th or 5th batch for the protein that feeds it. I have long term problems with cow protein but sheep and goat are fine. Home made is far better than bought kefir and the sourness can be controlled. I do like mine sour and straight.
Lovely, thanks 🌺Would you mind sharing your recipe, please? Both the soy milk and the goat milk batch.
🙏
I would start drinking ACV before a protein meal diluting 1 table spoon with at least 5 of water .
Water kefir , for which you need different grains to milk kefir , does not have as many different kinds of probiotics or in such great numbers as water kefir . It’s never the less very beneficial.
Many lactose -intolerant people can take milk kefir because most of the lactose is converted to lactic acid during fermentation. It might suit you , but maybe you don’t feel like risking it !
That’s great that you have improved your digestion by such good means !
we P.A. patients have to work out our own salvation!
Best wishes !
Yes, I have the right water kefir graines, and will not start anything with cow products, but thanks for the advice in the ACV. I am a bit worried with the teeth, though. It's a a lot of acv during a lifetime if taking it daily...Thanks a lot
"have been advised that even oats can be harmful?"
Then you're being advised by idiots I'm afraid.
You can find some nutrition tips in my bio.
Oats are harmful to Coeliacs / Celiacs, those with Non Coeliacs / Celiac Gluten Sensitivity et al. You may wish to amend your reply.
cymerwch ofal
Actually there are "Gluten Free" oats that I use. Although the oat grain contains zero gluten, typical oats are processed and handled in the same facilities as wheat and other grains therefore these oats are contaminated with gluten. Look for oats with "gluten free" on the label. Yes, they are good for those with coeliac disease. They are more expensive though and sometimes hard to find.
In the US I use Bob's Red Hill Old Fashion Rolled Oats. They are organic and gluten free.
Hope this helps...
Pure oats are OK for coeliacs , as they have no gluten . It’s when oats are handled in a factory that produces wheat and rye etc that coeliacs should not eat them . It’s possible to buy oats that are not handled in close contact to wheat etc . Member made no reference to being a coeliac . If a coeliac were being advised , there would be many more food items that could be harmful .
No wedgewood, you have to know your proteins in foods. Casein in milk has been linked to Sudden Infant Deaths. Avenin in oats can cause chaos. Farming use crop rotation fields, so they may grow wheat one year, oats, rye the next.
The problem is that Damacian suffers from asthma, therefore, it is highly likely that they use a Salbutamol inhaler. This is an adrenergic β2 receptor agonist. Plus, Damacian may have on occasions used Beclometasone for when they have had a severe attack.
Now, the former medication does not just work on the lungs, it impacts smooth muscle which includes the gut, also the liver and the pancreas secretes insulin as a consequence. Can you understand what is happening here ? There is no change in blood glucose levels from food. It is medication induced.
The glucocorticoid treats an overactive immune system. 70 % of the immune system is in the gut. Thus, this can alter a person’s gut microbiome which is in a constant state of flux, anyway.
So, a person can suddenly develop sensitivities, intolerances and allergic reactions to all weird and wonderful things. Like Nackapan said, Everyone is different.
Although, if someone on the internet is adamant that they are absolutely right. That what they say is gospel then, I just laugh.
😊
Damacian’s question was quite brief . We were asked if there was a diet specially for Pernicious Anaemia . And she/ he had been told that oats were harmful . That was the question that I answered .
I do appreciate it is very difficult to ascertain information and there was a limitation in details.
However, I would feel utterly awful, if I blasély stated, Yes, they are fine and the person became sick as the consequence of my poor advice.
I much prefer to err on the side of caution which identifies with Health and Care Standards / Safonau Ansawdd Iechyd a Gofal (2023) stating Person Centred / Person ganolog and Whole systems approach / Ymagwedd systemau cyfan.
Sending my kindest regards.
I agree. I can tolerate neither regular oats nor gluten free oats, as well as having issues with corn, millet, rice....we are all different. As you say, oats contain avenin, then corn has zein, millet panicin, rice orzenin etc etc - it is not just wheat gluten (gliadin) that some of us need to consider.
The poster asked about a specific diet for pernicious anemia and (in that context), whether oats could be harmful.
My reply addressed the question of whether oats can be harmful in the context of pernicious anemia.
Many foods can be harmful or even fatal to those who have allergies or specific conditions that require them to avoid specific foods. Celiac disease is one example but there are others.
My reply should not be read as claiming thats oats are always safe to eat, for everyone, in all circumstances. It was a reply in a certain context, not a universal claim.
Peanuts are a harmless food for most of the population but for a certain number of people with a severe allergy to them they may cause potentially fatal anaphylactic shock.
To address the other points you made in this thread : on the "autoimmune protocol diet", this diet is very poorly supported by research (and by paleoanthropology)
m.youtube.com/watch?v=wwEjH...
One the main promoters of this diet was recently on the same podcast where she basically apologised for previously promoting the spurious claims of this diet and now promotes much more evidence-based nutritional approach as she explains here:
m.youtube.com/watch?v=jDd5r...
Finally, on the "canines though", I would just ask, have you ever seen a Hippo? But if you'd like a longer answer, that is here:
veganfta.com/2023/11/03/the...
Further good resources on this topic are:
"Paleofantasy" from Marlene Zuk
and
"Evolution's Bite" from Peter S.Ungar
m.youtube.com/watch?v=hNVgy...
Note: this response has been edited
So, if you had read my profile you understand that I prepare data for courts of law. I meticulously scrutinise everything, trace it back decades, find sources of information whether it is misinformation, disinformation, mal-information or there is missing data. I understand and apply laws. So, I take down whole systems. It is rather tiring.
Now, I am writing in English but what language do I think in ? What computer languages can I program in and understand ? What other languages do I speak and understand ? I spend my free time bird watching because of the Origin of the Species.
I strongly believe in common courtesy, plus acting with decorum and social etiquette. I behave with humility because of my understanding of the world. The word is Qualia. Any experience by an individual as they describe/feel/see/sense it at a specific time.
The community know that as a midwife, I was and still remain a whistleblower. One of the many laws that protects me is the Public Disclosure Act (1998). Selflessness, Integrity, Objectivity, Accountability, Openness, Honesty and Leadership.
Just maybe the person who originally told Damacian that oats can be really harmful was having just a really bad day. That person’s mother or spouse could have died. They were all 6’s and 7’s. There was no malice nor intent and being bereft is far different than idiocy.
Bi hêviyên baştirîn
Hi Damacian,
There is lots of research and evidence regarding those with Autoimmune Diseases (AD) and the Paleo diet or Autoimmune Protocol (AIP) diet. I noted that you have Asthma which is regarded as another AD.
The AIP is nuts, fish, meat, eggs, vegetables, fruits especially berries. It dates back to Palaeolithic times which is approximately 3.3 million years ago. If anyone tries to covert me to vegetarianism or veganism, I flash my canines. Plus, I have had 1 doctor repeat the advice of Any food which has more than 5 ingredients is equivalent to crack cocaine.
We are all different and what works for one does not for another. Some people cannot tolerate avenin which is in oats. It is similar to gluten in wheat, barley, rye, malt. Plus, oats can be cultivated from hybrids but I will not bore you with farming.
🐏
I think its all about having a good diet, plenty of veg, fibre ( oats are fine) fruits and good proteins (not processed) and ideally, and try to be a good "low no alcohol" type of person. As this has worked well for myself. As i found that alcohol affect absorption of nutrients like B12, and Iron ...in the stomach/ilium...if you have stomach issues its a big thing.. AND it can also affect the B12 bonding process in our metabolism = not good..
I eat a healthy, well balanced diet, apart from beef, which gives me terminal indigestion! I take a small glass of fruit juice with meals, which helps with my digestion. I also eat live yogurt, which helps to keep the gut flora balanced. And I love porridge 🥰
Gambit62Administrator
Damacian I am closing this post to further responses. Part of it seems to have become argumentative and a lot of it seems to be out of the scope of Pernicious Anaemia.
As has been said, where people have specific allergies any food can be harmful for them, but that doesn't mean it is harmful for everyone.
As far as I am aware oats are not something that people with pernicious anaemia should specifically avoid - they are not something that I avoid.
I am also not aware of any specific dietary requirements for people with pernicious anaemia or a specific diet. The lack of stomach acidity can make digestion difficult so many of us ensure that we include something acid when we are eating to aid digestion. I certainly find that ensuring my diet contains a lot of roughage helps me. I find meat difficult so don't include it in my diet but others can't live without it.
It would have been useful to understand the context in which you had been told that oats are harmful, if that is your concern so if you do have further questions please start another post.
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