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OT: what's up
But then sh*t hit the fan and I got optic
neuritis
, had total loss of vision of my right eye, was half blind for three weeks. And that was a journey, was forbid to drive or to do anything physically hard. Eye movement was painful for 8 weeks and was not able to be on computer at all.
But then sh*t hit the fan and I got optic
neuritis
, had total loss of vision of my right eye, was half blind for three weeks. And that was a journey, was forbid to drive or to do anything physically hard. Eye movement was painful for 8 weeks and was not able to be on computer at all.
Justiina
in
Thyroid UK
6 years ago
Wonky Eyes
Said optical
neuritis
wasn't present, but whenever I wake up I see weird stuff, like images that aren't there, flashing lights and stuff. Hard to explain, but just wondered if any of you have experienced this? TIA! 🤔
Said optical
neuritis
wasn't present, but whenever I wake up I see weird stuff, like images that aren't there, flashing lights and stuff. Hard to explain, but just wondered if any of you have experienced this? TIA! 🤔
Bamfan1442
in
My MSAA Community
6 years ago
Vestibular Neuritis
I immediatelly went to a local a&e where I was told I'vr got a virus in middle ear and that I'm suffering from Vestibular
Neuritis
. I was not given any medications, just been told it will pass withing a week. I cannot sleep due to feeling like I'm falling immediatelly after I fall asleep.
I immediatelly went to a local a&e where I was told I'vr got a virus in middle ear and that I'm suffering from Vestibular
Neuritis
. I was not given any medications, just been told it will pass withing a week. I cannot sleep due to feeling like I'm falling immediatelly after I fall asleep.
Ivan123
in
British Tinnitus Association
6 years ago
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Aubagio?
Had (still having) my 1st experience with optic
neuritis
. Annoying thing isn't it? Anyway, so my doc is talking abt switching me from Copaxone to Aubagio. I balked at the mention. I rather like my side effect free Copaxone.
Had (still having) my 1st experience with optic
neuritis
. Annoying thing isn't it? Anyway, so my doc is talking abt switching me from Copaxone to Aubagio. I balked at the mention. I rather like my side effect free Copaxone.
cassielynn71
in
My MSAA Community
6 years ago
So confused lol
Went to opthamologist today did some tests as other eye doctor I'm going to get MRI on the 31st with and without contrast...she said optic antropy isnt that the same as optic
Neuritis
? I'm so confused? If not is this also associated with ms?
Went to opthamologist today did some tests as other eye doctor I'm going to get MRI on the 31st with and without contrast...she said optic antropy isnt that the same as optic
Neuritis
? I'm so confused? If not is this also associated with ms?
Shaunaice
in
My MSAA Community
6 years ago
MS CoNfUsEd
I also have Opticical
Neuritis
, and the nerves in my left eye are shot. I don't know if I have been diagnosed with MS, but my Neurologist and Ophthalmologist agree to send me to an MS specialist. Symptom wise--- what do you think? Could it be MS?
I also have Opticical
Neuritis
, and the nerves in my left eye are shot. I don't know if I have been diagnosed with MS, but my Neurologist and Ophthalmologist agree to send me to an MS specialist. Symptom wise--- what do you think? Could it be MS?
MSconfused86
in
My MSAA Community
6 years ago
FATIGUE
I had optic
neuritis
in one eye and my vision in that eye never completely returned. But now I am so, so tired! All the time! I am at work and I can barely hold my head up. Does anyone else have fatigue this bad?
I had optic
neuritis
in one eye and my vision in that eye never completely returned. But now I am so, so tired! All the time! I am at work and I can barely hold my head up. Does anyone else have fatigue this bad?
GirlsLikeMe
in
My MSAA Community
6 years ago
B12 could it be something else/France/injections
I finally saw a neurologist (this was my 4th) who finally told me that I was having something similar to cisp (chronic inflammatory sensory polyneuropathy) she was categorizing this as an inflammatory
neuritis
not currently active. no more ivig manage symptoms with gabapentin or lyrica. in short what
I finally saw a neurologist (this was my 4th) who finally told me that I was having something similar to cisp (chronic inflammatory sensory polyneuropathy) she was categorizing this as an inflammatory
neuritis
not currently active. no more ivig manage symptoms with gabapentin or lyrica. in short what
lunez22
in
Pernicious Anaemia Society
6 years ago
Poor medication choice!
I had multiple relapses of optic
neuritis
on it and feared losing my sight permanently. I would NOT recommend it and choose another medication, such as tecfidera, immediately.
I had multiple relapses of optic
neuritis
on it and feared losing my sight permanently. I would NOT recommend it and choose another medication, such as tecfidera, immediately.
injada
in
My MSAA Community
6 years ago
Hello!
(Aubagio) My diagnosis came in 1995 after a round of optic
neuritis
. Originally, the doctors were perplexed as my brain MRIs showed no plaques but my progression was more in line with CPMS.
(Aubagio) My diagnosis came in 1995 after a round of optic
neuritis
. Originally, the doctors were perplexed as my brain MRIs showed no plaques but my progression was more in line with CPMS.
GeorgiaJunebug
in
My MSAA Community
6 years ago
Headaches vs. migraines?
(My headaches mostly seem to be in the areas around my eyes and I’ve eondered if there is a connection back to my optic
neuritis
?)
(My headaches mostly seem to be in the areas around my eyes and I’ve eondered if there is a connection back to my optic
neuritis
?)
GeorgiaJunebug
in
My MSAA Community
6 years ago
Is my constant itchy scalp neuritis?
My issue dates back 7 years where I had an intensely itchy scalp like a crawling sensation for a month. It has since come back for 2 weeks at a time then disappears. Until last year when it came back April 2017 it has gone for 2 months then has been there pretty much for a year. It is an unbearable need
My issue dates back 7 years where I had an intensely itchy scalp like a crawling sensation for a month. It has since come back for 2 weeks at a time then disappears. Until last year when it came back April 2017 it has gone for 2 months then has been there pretty much for a year. It is an unbearable need
Fi4737h
in
Neuropathy Support
6 years ago
Not diagnosed with GCA - never heard of it till recently, sorry 😕 - but worried as ESR high and GP suggested it as possible diagnosis...
As my headache now has lasted for such a prolonged period of time I saw my GP who said it could be a migraine - I know it isn't as migraines knock me out flat - some sort of
neuritis
( I forget the name) - or GCA...
As my headache now has lasted for such a prolonged period of time I saw my GP who said it could be a migraine - I know it isn't as migraines knock me out flat - some sort of
neuritis
( I forget the name) - or GCA...
flossiew
in
PMRGCAuk
6 years ago
I'm new here..Newly diagnosed with MS
I didn't have an MRI done. 6 years later (now) I relapsed and had optic
neuritis
. I saw my primary care provider, then the ophthalmologist, then neurologist. Had an MRI done. They found multiple lesions on my brain.
I didn't have an MRI done. 6 years later (now) I relapsed and had optic
neuritis
. I saw my primary care provider, then the ophthalmologist, then neurologist. Had an MRI done. They found multiple lesions on my brain.
Hidden
in
My MSAA Community
6 years ago
Hello, I am new to the group, and am not even sure I belong...From Parkinsons to possible Cerebral Vasculitis plus MS.?? Let me explain..
I was taken into hospital with Optical
Neuritis
, was put on cortisone for 6 days...also had so many scans, MRIs, bloods etc etc...o which I was told I have NO parkinsonism. ok. So further blood tests, the three Neurologists all seem to think I have Cerebral Vasculitis and /or a rare form of MS.
I was taken into hospital with Optical
Neuritis
, was put on cortisone for 6 days...also had so many scans, MRIs, bloods etc etc...o which I was told I have NO parkinsonism. ok. So further blood tests, the three Neurologists all seem to think I have Cerebral Vasculitis and /or a rare form of MS.
Bools33
in
Vasculitis UK
6 years ago
Could this be thyroid related?
I've been diagnosed with vestibular
neuritis
but I don't see that this is explained by that diagnosis. I have IBS (apparently, or at least digestion issues) and take omeprazole for GERD.
I've been diagnosed with vestibular
neuritis
but I don't see that this is explained by that diagnosis. I have IBS (apparently, or at least digestion issues) and take omeprazole for GERD.
drlabman
in
Thyroid UK
6 years ago
Abbreviations from our past quizzes.
Muscular Deep Injection LP – Lumbar Punture (Spinal Tap) MRI –Magnetic Resonance Imaging NAC N-Acetylcysteine NMO – Neuromyelitis optica PHSYCO-ME - “Mental Me” PBA - Pseudobular Affect RRMS – Relapsing Remitting MS SPMS – Secondary Progressive MS PRMS – Progressive Relapsing MS ON – Optic
Neuritis
Muscular Deep Injection LP – Lumbar Punture (Spinal Tap) MRI –Magnetic Resonance Imaging NAC N-Acetylcysteine NMO – Neuromyelitis optica PHSYCO-ME - “Mental Me” PBA - Pseudobular Affect RRMS – Relapsing Remitting MS SPMS – Secondary Progressive MS PRMS – Progressive Relapsing MS ON – Optic
Neuritis
CalfeeChick
CommunityAmbassador
in
My MSAA Community
7 years ago
Answers to the Abbrieviations Quizzes
Intra Muscular Deep Injection LP – Lumbar Punture (Spinal Tap) MRI –Magnetic Resonance Imaging NAC N-Acetylcysteine NMO – Neuromyelitis optica PHSYCO-ME - “Mental Me” PBA - Pseudobular Affect RRMS – Relapsing Remitting MS SPMS – Secondary Progressive MS PRMS – Progressive Relapsing MS ON – Optic
Neuritis
Intra Muscular Deep Injection LP – Lumbar Punture (Spinal Tap) MRI –Magnetic Resonance Imaging NAC N-Acetylcysteine NMO – Neuromyelitis optica PHSYCO-ME - “Mental Me” PBA - Pseudobular Affect RRMS – Relapsing Remitting MS SPMS – Secondary Progressive MS PRMS – Progressive Relapsing MS ON – Optic
Neuritis
CalfeeChick
CommunityAmbassador
in
My MSAA Community
7 years ago
MS Abbreviation quiz #2 -The Answers
Answers are: AMP – Adenosine Monophosphate BBB- Blood-Brain Barrier CIS – Clinically Isolated Syndrome CNS – Central Nervous System CT- Cat Scan IMD – Intra Muscular Deep Injection PBA - Pseudobulbar Affect ON – Optic
Neuritis
Most answers can be found at: https://mymsaa.org/ms-information
Answers are: AMP – Adenosine Monophosphate BBB- Blood-Brain Barrier CIS – Clinically Isolated Syndrome CNS – Central Nervous System CT- Cat Scan IMD – Intra Muscular Deep Injection PBA - Pseudobulbar Affect ON – Optic
Neuritis
Most answers can be found at: https://mymsaa.org/ms-information
CalfeeChick
CommunityAmbassador
in
My MSAA Community
7 years ago
Keto diet and aps
I was diagnosed with lupus SLE back in 1990 and two or three years after I had optic
neuritis
in my right my eye and lost sight in that eye.
I was diagnosed with lupus SLE back in 1990 and two or three years after I had optic
neuritis
in my right my eye and lost sight in that eye.
Kooldog
in
Hughes Syndrome APS Forum
7 years ago
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