Aubagio?: Hello all. I hope today finds... - My MSAA Community

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Aubagio?

cassielynn71 profile image
7 Replies

Hello all. I hope today finds everyone as well as they can be. Had (still having) my 1st experience with optic neuritis. Annoying thing isn't it? Anyway, so my doc is talking abt switching me from Copaxone to Aubagio. I balked at the mention. I rather like my side effect free Copaxone. I already feel relatively crappy on any given day and I dont want to have to deal with side effects from meds.

She agreed to wait 4 more months, then go in for an MRI and we'll make a decision after we see the results.

IF I do switch, what am I looking at? I've read everything online, I'm the Google Queen, but i want real people with real experience to enlighten me!

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cassielynn71
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Kenu profile image
Kenu

Good Morning 🌞 I have been on seven different DMT’s over twenty three years 👍. Have been on Aubagio for the last twenty months and doing great 🙏. I have had no side effects at all and my last two MRI’s were stable and no new lesions 👍. Been so nice not doing shots or infusions🙏. Good luck with your decision 👍🙏🐾😉 Ken

cassielynn71 profile image
cassielynn71 in reply to Kenu

No side effects?!?! That is awesome to hear! That gives me hope and eases my mind a bit. Thanks Ken!

I have been on Aubagio for two years like you I was Copaxone for ten years had good results on both. I like Aubagio as it is a very small pill and does not need to keep cold. However, my doctor is switching me to Ocrevus feels it will help me feels I had flare up of my MS, I am willing to try the medicine

mrsmike9 profile image
mrsmike9

Now Copaxone was the one that gave me bad side effects. I've been on Aubagio for approx. 3 years and love it. It's so easy, just 1 a day, no shots, no bad side effects (for me). I've been stable on it.

swmbo4 profile image
swmbo4

I have now been on Aubagio for two weeks! Previous to this I was on Gilenya, from beginning of trial until my neuro decided I was getting I was getting to the age that I could have increased risk of PML, which no one wants! I am 58, have had MS for 20 years, started with Copaxone, but it wasn't working, Next was Tysabri, until it was pulled due to PML happening too much, then neuro going on a trial drug, which was Gilenya but called Fingolimod then. I was one of 8 people in my neuro's office that started on the trial, but one by one they dropped out (blood work, etc.), so I was the only one that lasted until the drug was approved.

I was on Gilenya for many years, but then my case caught the interest of the neuro. Coincidentally, I had already begun to question if it was still the one for me, since I started having exacerbations again. Right now, I am having a bout of severe spasticity down the side of my bad leg. but am still trying to battle through it. I'm already on 2 Baclofen per day, but that isn't helping. I should probably inquire about increasing my dosage, but I am stubbornly obstinate.

swmbo4 profile image
swmbo4

Forgot to mention I had one small side effect of Aubagio, but it was just a couple days. Diarrhea isn't so dreadful when you have spent time being constipated occasionally!

cassielynn71 profile image
cassielynn71

Thanks everyone!

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