Experiences with

Neuritis

Hello Everyone, I have Pernicious Anemia, Bilateral Optic Neuritis & Antiphospholipid Syndrome. I keep a daily medical journal documenting my symptoms, blood pressure, & remarks about how I’m feeling.

Eye Hospital A and E tentively suggester optic neuritis but the Consultant says ischemic optic neuropathy, ' a circulation problem', basically a mini stroke behind the eye. I am very keen to contact anyone who has experienced this as I am extremely anxious and feel isolated.

I tried Dienogest (stopped due to thinking it had affected my vision but turns out it was optic neuritis). Got prescribed tranexamic acid and mefenamic acid which helped a bit but still got pains at other times of the month.

I just wanted to share a little bit about my experience with optic neuritis, and the aftermath.

Eye A and E said optic neuritis, private specialist consultant, a ciculatory problem, a mini stroke behind the eye damaging the optic nerve. I have had no support whatsoever from the hospital . I have periods of great upset and distress.

Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days after my B12 injection and then come back again.

It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse.

After end of hepatitis treatment I had one treatment for optic neuritis with high dose corticosteroids. After I finish with the treatment from this neuritis all was good till the middle of June. Just to mention that for 5 years I have several times drinking wine..

I was diagnosed in the early 2000's after having optic neuritis twice. My neurologist thinks I had MS since at least 1995 when I had my son since I had classic post-partum MS symptoms that my OBGYN ignored. (I thought I had a stroke.)

The optometrist said that my eyes look great, but she also took a very close look at the optic nerves and found swelling (and signs of recovering) in my left optic nerve (optic neuritis). She mentioned Thyroid and then mentioned that it could be ‘other’ autoimmune diseases that attack nerves.

I believe the target was my optic neuritis and neuralgia. Now the only pain I have is in my blind eye...it is strange. My forehead hurts over my eyebrow; then, the pain goes through the eyeball and into my nose, then numbness.

At the onset of GCA, my right optic nerve was left a bit pale and with some white spots on it, plus I have optic neuritis. Now, it does not concern me and I thought I'd share it in case anyone is experiencing this intermittently. I'm all set and pleased it doesn't indicate an issue.

PPPD usually follows on from either a vestibular condition like labrynthitis or vestibular neuritis, neither of which I had. Neither was I anxious or depressed before hand, another risk factor. I've done a heck of alot of reading these past two years to tryand figure out what's happening.

It appears all the tb first line meds and moxifloxacin can cause optic neuritis except pyrazinamide. Just need alternative - delamanid safe instead?

Prior to this past summer, my symptoms were on my right side and had been since my initial optic neuritis and walking troubles at the time of my diagnosis in 1995.

I was admitted for 1 night, querying a stroke, but diagnosed with acute vestibular neuritis. I was sent home on the virtual ward which is a brilliant concept and is working very well. My palpitations have been very bad.

I have had T for over two years now following an attack of vertigo with varying diagnoses of labyrinthitis, bppv or vestibular neuritis, none of which have ever been confirmed.. and after all this time I feel stuck with no sign of reaching habituation..

I have just been diagnosed with progressive Multiple Sclerosis, I have lots of terrible symptoms such as ¬ Pins and needles throughout my body, especially the head Vision problems which has caused optical Neuritis and loss of Peripheral vision, now unable to drive.

Hello,  I currently have long covid and vestibular neuritis, and have had these conditions for around six months. The vestibular neuritis is causing considerable vertigo symptoms.   Just over a month ago, my GP gave me Betahistine to try and ease the vertigo.

I was diagnosed with Optic Neuritis in February and was put on short intensive steroids in March sleep deprivation the worst! but sight hasn’t fully and won’t fully return. Ophthalmology thought MS. MRI showed lesions on brain Neurologist thinks lupus not MS.