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Scottish Medicines appraisal of voclosporin
Do you have lupus
nephritis
or care for someone with lupus
nephritis
? The Scottish Medicines Consortium (SMC) are currently conducting an appraisal to decide whether voclosporin, a new treatment for lupus
nephritis
, will be commissioned for use by the NHS in Scotland.
Do you have lupus
nephritis
or care for someone with lupus
nephritis
? The Scottish Medicines Consortium (SMC) are currently conducting an appraisal to decide whether voclosporin, a new treatment for lupus
nephritis
, will be commissioned for use by the NHS in Scotland.
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
CAR T-cell therapy IMPT-514 gets FDA fast track designation for lupus
Investigational treatment targets active, resistant lupus
nephritis
and SLE The U.S.
Investigational treatment targets active, resistant lupus
nephritis
and SLE The U.S.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Greater use of Benlysta, Saphnelo seen in US, EU to treat lupus
The therapy has not been approved for lupus
nephritis
, though an ongoing Phase 3 clinical trial called IRIS (NCT05138133) is testing it for that indication.
The therapy has not been approved for lupus
nephritis
, though an ongoing Phase 3 clinical trial called IRIS (NCT05138133) is testing it for that indication.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
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Disease remission achieved in SLE with dual-target CAR T-cell therapy
Further, kidney function continued to improve among those with lupus
nephritis
(LN), a common SLE complication involving the kidneys. A complete kidney response was seen among those diagnosed with LN fewer than 10 years previously.
Further, kidney function continued to improve among those with lupus
nephritis
(LN), a common SLE complication involving the kidneys. A complete kidney response was seen among those diagnosed with LN fewer than 10 years previously.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 months ago
Lupkynis protects kidneys in lupus nephritis patients for up to 3 years
“We are proud of our sustained research in autoimmune diseases like lupus and remain committed to helping improve kidney health for people living with lupus
nephritis
,” Keenan said.
https://lupusnewstoday.com/news/lupkynis-protects-kidneys-lupus-
-patients-up-3-years/?
“We are proud of our sustained research in autoimmune diseases like lupus and remain committed to helping improve kidney health for people living with lupus
nephritis
,” Keenan said.
https://lupusnewstoday.com/news/lupkynis-protects-kidneys-lupus-
-patients-up-3-years/?
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Study: Depression is largely prevalent, but undiagnosed in SLEResearchers in Pakistan surveyed 40 people with SLE using PHQ-9 scale
From these, 61.5% had lupus
nephritis
, a serious SLE complication that can cause kidney failure, and 26.9% had multi-organ involvement. Blood vessel inflammation (vasculitis) was detected in 7.6% and muscle inflammation (myositis) in 3.8%.
From these, 61.5% had lupus
nephritis
, a serious SLE complication that can cause kidney failure, and 26.9% had multi-organ involvement. Blood vessel inflammation (vasculitis) was detected in 7.6% and muscle inflammation (myositis) in 3.8%.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
Lupkynis approved in Switzerland to treat adults with lupus nephritis
nephritis
, a complication of lupus characterized by kidney damage and inflammation.
nephritis
, a complication of lupus characterized by kidney damage and inflammation.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
a subgroup of lupus
nephritis
patients with particularly high protein levels in the urine (proteinuria) compared with background therapy alone.
a subgroup of lupus
nephritis
patients with particularly high protein levels in the urine (proteinuria) compared with background therapy alone.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Red hot hands & excessive sweating
Hello, I’ve been to the doctors several times with this and have no answers, so I’m posting this in the hope someone else can help… I have lupus SLE
nephritis
II, raynauds and fibromyalgia.
Hello, I’ve been to the doctors several times with this and have no answers, so I’m posting this in the hope someone else can help… I have lupus SLE
nephritis
II, raynauds and fibromyalgia.
SamRigs
in
LUPUS UK
1 year ago
Looking for people with experience of lupus affecting the kidneys (lupus nephritis) to review patient materials about a new treatment
Do you have experience of lupus affecting your kidneys (lupus
nephritis
)? Would you be interested in giving feedback on some patient information for a new lupus
nephritis
treatment? You don’t need to have had any experience of doing this before, you just need to give your opinion.
Do you have experience of lupus affecting your kidneys (lupus
nephritis
)? Would you be interested in giving feedback on some patient information for a new lupus
nephritis
treatment? You don’t need to have had any experience of doing this before, you just need to give your opinion.
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Immpact Bio cleared to start clinical trial of IMPT-514 in SLE patients
Phase 1 of trial to enroll people with active lupus
The Phase 1 portion of the trial, which will evaluate multiple increasing doses of IMPT-514, will enroll people with active lupus
nephritis
, a serious complication of SLE characterized by kidney inflammation and damage.
Phase 1 of trial to enroll people with active lupus
The Phase 1 portion of the trial, which will evaluate multiple increasing doses of IMPT-514, will enroll people with active lupus
nephritis
, a serious complication of SLE characterized by kidney inflammation and damage.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
91% of lupus patients report using steroids to manage symptoms
Respondents with lupus
nephritis
, a common lupus complication marked by kidney damage and inflammation, were more likely to take steroids at higher doses and for longer durations, and to report major side effects.
Respondents with lupus
nephritis
, a common lupus complication marked by kidney damage and inflammation, were more likely to take steroids at higher doses and for longer durations, and to report major side effects.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
bloody urine
Many analyzes, pictures, and a kidney biopsy were done, and the answer was that it was basal membrane
nephritis
. Can anyone help.
Many analyzes, pictures, and a kidney biopsy were done, and the answer was that it was basal membrane
nephritis
. Can anyone help.
Rashed_1
in
Kidney Disease
1 year ago
Urine test
I have several autoimmune diseases and suspect this to be Lupus with Lupus
Nephritis
. I'm trying to ease my mind on bladder cancer. A pic will be attached showing the blood from a week ago. It is not like that now.
I have several autoimmune diseases and suspect this to be Lupus with Lupus
Nephritis
. I'm trying to ease my mind on bladder cancer. A pic will be attached showing the blood from a week ago. It is not like that now.
ICE187
in
Kidney Disease
1 year ago
NICE recommends voclosporin to treat lupus nephritis
You can read more about this on our website here: https://www.lupusuk.org.uk/nice-recommends-voclosporin-to-treat-lupus-
nephritis
/ Take care Debbie
You can read more about this on our website here: https://www.lupusuk.org.uk/nice-recommends-voclosporin-to-treat-lupus-
nephritis
/ Take care Debbie
Debbie_kinsey
Administrator
in
LUPUS UK
2 years ago
1st patient enrolled in global Phase 2 trial of daxdilimab for lupus
Study to test safety, efficacy of Horizon's lupus
nephritis
treatment by Steve Bryson PhD | May 18, 2023 A woman speaks with a megaphone in this announcement illustration.
Study to test safety, efficacy of Horizon's lupus
nephritis
treatment by Steve Bryson PhD | May 18, 2023 A woman speaks with a megaphone in this announcement illustration.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Autoimmune Disease and Low AMH
Hello, I am 32 years old, I have lupus
nephritis
and recently discovered that I have low AMH - First test I did with a healthcare company who provides general health checks was 0.195pmol/l - Second test I did with my fertility clinic came back at 2.6 pmol/l I had 6 follicles the last time I was
Hello, I am 32 years old, I have lupus
nephritis
and recently discovered that I have low AMH - First test I did with a healthcare company who provides general health checks was 0.195pmol/l - Second test I did with my fertility clinic came back at 2.6 pmol/l I had 6 follicles the last time I was
Namiri-Plains
in
Fertility Network UK
1 year ago
expert opinion
Since being dx’d with Sjogrens, back to maybe SLE (after a second opinion read on my biopsy at Brigham and Womens looking more like C3GN and not lupus
nephritis
)…can you have this disease with a normal C3?
Since being dx’d with Sjogrens, back to maybe SLE (after a second opinion read on my biopsy at Brigham and Womens looking more like C3GN and not lupus
nephritis
)…can you have this disease with a normal C3?
CherylJR
in
C3 Glomerulopathy
1 year ago
Early diagnosis and monitoring of lupus nephritis -- on your smartphone !!
.🥰 A team of researchers at the University of Houston is reporting the success of their new method for the early diagnosis and monitoring of lupus
nephritis
-- at home.
.🥰 A team of researchers at the University of Houston is reporting the success of their new method for the early diagnosis and monitoring of lupus
nephritis
-- at home.
Naladog
in
LUPUS UK
2 years ago
2 New Meds Found to Completely Change Lupus Nephritis Treatment
2 New Meds Found to Completely Change Lupus
Nephritis
Treatment Analysis shows greater use of Lupkynis, sharp drop in rituximab The approvals of new medications in the last few years have dramatically shifted the treatment landscape for lupus
nephritis
, a severe manifestation of lupus characterized
2 New Meds Found to Completely Change Lupus
Nephritis
Treatment Analysis shows greater use of Lupkynis, sharp drop in rituximab The approvals of new medications in the last few years have dramatically shifted the treatment landscape for lupus
nephritis
, a severe manifestation of lupus characterized
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
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