Search
Search
About
Log in
Join
Experiences with
Neomycin / Prednisolone
Posts
Communities
15,208 public posts
Filter results
PMR/Prednisolone/Alendronic Acid
Thank you all for your posts and will now try to reduce even more slowly. !5 mg of Prednisolone was not enough, so have now increased to 17.5mg and are again keeping fingers crossed. Would welcome views on long term (nearly 5 years) usage of Alendronic acid (I am male 79 years old) as I think that in
Thank you all for your posts and will now try to reduce even more slowly. !5 mg of Prednisolone was not enough, so have now increased to 17.5mg and are again keeping fingers crossed. Would welcome views on long term (nearly 5 years) usage of Alendronic acid (I am male 79 years old) as I think that in
Blacksley
in
PMRGCAuk
1 year ago
Latest update on Care for PMRGCA
Rheumatologists; We have emailed both Sara Manrique-Arija and Natalia Mena Vázquez, without reply. We have made contact with Dr Anna Nieto based at the Queron hospital Malaga, she doesn't have availability until January. We visited the Opthamologist, who said there was no damage to the optic nerve
Rheumatologists; We have emailed both Sara Manrique-Arija and Natalia Mena Vázquez, without reply. We have made contact with Dr Anna Nieto based at the Queron hospital Malaga, she doesn't have availability until January. We visited the Opthamologist, who said there was no damage to the optic nerve
DianaAdshead
in
PMRGCAuk
9 months ago
GCA temple pain getting worse again
Hi All, first time posting so here goes -Diagnosed with GCA in November 2022, put on 60mg prednisolone, symptoms stabilised quite quickly, but felt unwell taking steroids, had so many side effects, consultant put me on tocilizumab about 5 months ago and was told to taper /reduce prednisolone slowly
Hi All, first time posting so here goes -Diagnosed with GCA in November 2022, put on 60mg prednisolone, symptoms stabilised quite quickly, but felt unwell taking steroids, had so many side effects, consultant put me on tocilizumab about 5 months ago and was told to taper /reduce prednisolone slowly
maisydaisy58
in
PMRGCAuk
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Should I take daily prednisone dose before CRP test?
I seem to be having a PMR flare. I am getting a CRP and Sed Rate test today and wondered if I should withhold my prednisone dose until after I have the test? Thanks!
I seem to be having a PMR flare. I am getting a CRP and Sed Rate test today and wondered if I should withhold my prednisone dose until after I have the test? Thanks!
Donna5658
in
PMRGCAuk
9 months ago
Swollen painful hand
I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gotten down to 13 mg. Recently I tapered to 12 mg but have not felt very well & suddenly my right hand fingers are swollen & very painful. This has never happened before. Is this some kind of flare?
I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gotten down to 13 mg. Recently I tapered to 12 mg but have not felt very well & suddenly my right hand fingers are swollen & very painful. This has never happened before. Is this some kind of flare?
noslak
in
PMRGCAuk
9 months ago
I am so annoyed with myself: yo-yoing,i would value your thoughts
I am so annoyed with myself! I’ve been on prednisolone for nearly 5 years years now since I was being diagnosed with GCA and PMR. I have had two relapses, (when I ended up in A&E), and several flares. So, I have yo-yoed quite a bit over the years. A year and a half ago, my Rheumatologist advised
I am so annoyed with myself! I’ve been on prednisolone for nearly 5 years years now since I was being diagnosed with GCA and PMR. I have had two relapses, (when I ended up in A&E), and several flares. So, I have yo-yoed quite a bit over the years. A year and a half ago, my Rheumatologist advised
allofaquandry
in
PMRGCAuk
1 year ago
ERA protocol - what meds to include
Hey ladies, Last month I did an endometrial biopsy in order to see if the uterine cells look as they should, and they do! Which would mean that the endometritis is gone, at least judging by how the endometrium looks like under a microscope. This month we are doing the Endometrio test (Era, Emma, Alice
Hey ladies, Last month I did an endometrial biopsy in order to see if the uterine cells look as they should, and they do! Which would mean that the endometritis is gone, at least judging by how the endometrium looks like under a microscope. This month we are doing the Endometrio test (Era, Emma, Alice
Anita85
in
Fertility Network UK
10 months ago
Seal49
Started with pmr diagnosed and Rheumatologist decided it is PsA. HD it since April. Started prednisone at 25 mg and reducing. Now at 10 mg and started on methotrexate to speed up the prednisone reduction. Rheumatologist wants it done asap. Most days ok but still some leg thighs, neck and shoulders
Started with pmr diagnosed and Rheumatologist decided it is PsA. HD it since April. Started prednisone at 25 mg and reducing. Now at 10 mg and started on methotrexate to speed up the prednisone reduction. Rheumatologist wants it done asap. Most days ok but still some leg thighs, neck and shoulders
Seal49
in
NRAS
10 months ago
Got back lots of lab results from rheumy visit today. CRP dropped from 100 in Feb to 6.8
Doing very well too, feel good. I feel I am over PMR or on the downhill side of this. Still at zero prednisone for more than a week.
Doing very well too, feel good. I feel I am over PMR or on the downhill side of this. Still at zero prednisone for more than a week.
sdowney717
in
PMRGCAuk
10 months ago
adrenals
please help , I am feeling really unwell ,dizzy , feel sick ,mentally very low,upset stomach,lost weight ,waking up after 4 hours sleep ,anxiety of the scale.from July till October tapered down from 6mg to 4.5 finished 28 October,stayed there to see how I was , I wasn’t feeling brilliant but I know I
please help , I am feeling really unwell ,dizzy , feel sick ,mentally very low,upset stomach,lost weight ,waking up after 4 hours sleep ,anxiety of the scale.from July till October tapered down from 6mg to 4.5 finished 28 October,stayed there to see how I was , I wasn’t feeling brilliant but I know I
Amilee
in
PMRGCAuk
10 months ago
prednisolone
Hi My Gp said I will need to go back on steroids . I’ve been off them for a few weeks now & the agony is unbearable . My Gp put me on naproxen until blood test results come back . Receptionists said blood results normal . Gp hasn’t contacted me yet . So I was wondering if it’ll be okay to start
Hi My Gp said I will need to go back on steroids . I’ve been off them for a few weeks now & the agony is unbearable . My Gp put me on naproxen until blood test results come back . Receptionists said blood results normal . Gp hasn’t contacted me yet . So I was wondering if it’ll be okay to start
TedTheMaineCoon
in
PMRGCAuk
1 year ago
Emergency treatment for GCA blindness
I have just joined this forum, so excuse me as I am relatively new to this, My Mother has been dealing with GCA for over 5 years, and generally doing very well, with almost no specialist assistance. Starting on 60mg per day of Prednisone and Omeprozal (stomach protector - but obviously dangerous) Mastacal
I have just joined this forum, so excuse me as I am relatively new to this, My Mother has been dealing with GCA for over 5 years, and generally doing very well, with almost no specialist assistance. Starting on 60mg per day of Prednisone and Omeprozal (stomach protector - but obviously dangerous) Mastacal
DianaAdshead
in
PMRGCAuk
10 months ago
flare?
Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs of Prednisolone but the last week I have felt awful. Very tired, my body aches, no energy. I had a total knee replacement 3 months ago and I’m due to go back to part time work next weds. Should I increase my pred for a couple
Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs of Prednisolone but the last week I have felt awful. Very tired, my body aches, no energy. I had a total knee replacement 3 months ago and I’m due to go back to part time work next weds. Should I increase my pred for a couple
kentish61
in
PMRGCAuk
1 year ago
Good news about steroids!
I thought I would share the results of a recent study. It looked at 1112 (wow!) people with Rheumatoid Arthritis who were either taking 7.5mg or less of prednisolone regularly, or a control drug which wasn't a steroid. After two years, those taking prednisolone weighed on average only around 1kg more
I thought I would share the results of a recent study. It looked at 1112 (wow!) people with Rheumatoid Arthritis who were either taking 7.5mg or less of prednisolone regularly, or a control drug which wasn't a steroid. After two years, those taking prednisolone weighed on average only around 1kg more
oldtimer2
in
NRAS
1 year ago
PMR remission? What determines it?
How do doctors/Rheumatologists actually determine when our PMR is in remission? I’m 3 years into my PMR journey and thought I was quite clued up on the illness. I thought I would be in remission when I have tapered off the Prednisolone and no longer have the aching/pain in my shoulders and hips.
How do doctors/Rheumatologists actually determine when our PMR is in remission? I’m 3 years into my PMR journey and thought I was quite clued up on the illness. I thought I would be in remission when I have tapered off the Prednisolone and no longer have the aching/pain in my shoulders and hips.
Tiggy70
in
PMRGCAuk
1 year ago
6dp5dt - bleeding and getting a faint line in the test
Hi everyone. First time posting here! In my bio is all my IVF trip. Last week, we did our 5th transfer. It’s been 7dp5dt (euploid... we did a GPT test), and I'm having menstrual symptoms (cramps and nausea) and a bit of blood when I'm going to the toilet. Theoretically, between today, 03.11, and Sunday
Hi everyone. First time posting here! In my bio is all my IVF trip. Last week, we did our 5th transfer. It’s been 7dp5dt (euploid... we did a GPT test), and I'm having menstrual symptoms (cramps and nausea) and a bit of blood when I'm going to the toilet. Theoretically, between today, 03.11, and Sunday
Oxford_1985
in
Fertility Network UK
10 months ago
Do exacerbations follow exacerbations?
Hi all, You may have seen my other thread. I am a man in my early forties and had a rude awakening to asthma with an almost two week hospital stay about 1.5 months ago with lots of mucus in lungs and for one week I was on oxygen. Last week I got a cold which quickly went to my chest leaving me clogged
Hi all, You may have seen my other thread. I am a man in my early forties and had a rude awakening to asthma with an almost two week hospital stay about 1.5 months ago with lots of mucus in lungs and for one week I was on oxygen. Last week I got a cold which quickly went to my chest leaving me clogged
Particle32
in
Asthma Community Forum
10 months ago
Nervous changing from Prednisolone to Hydrocortisone
I have been on prednisolone for about 6 years and was down to 4.5mg but not feeling great with general pain so upped it to 5mg. Adrenal gland isn’t working so I doubt if I can get off steroids entirely anytime soon. Anyway spoke to my Endocrinologist the other day and we discussed trying Hydrocortisone
I have been on prednisolone for about 6 years and was down to 4.5mg but not feeling great with general pain so upped it to 5mg. Adrenal gland isn’t working so I doubt if I can get off steroids entirely anytime soon. Anyway spoke to my Endocrinologist the other day and we discussed trying Hydrocortisone
Suffolklady
in
PMRGCAuk
1 year ago
Good news re white blood cell count
Well the GP sent me for blood tests this morning and the good news is the level has dropped, so he is happy that is going in the right direction. Still a couple of abnormal readings though with regard to blood count Haemoglobin, Haematocrit MCHC Neutrophil count Monocyte count but nothing that he
Well the GP sent me for blood tests this morning and the good news is the level has dropped, so he is happy that is going in the right direction. Still a couple of abnormal readings though with regard to blood count Haemoglobin, Haematocrit MCHC Neutrophil count Monocyte count but nothing that he
gillsky8
in
PMRGCAuk
1 year ago
1
...
74
75
76
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
7537 results
Asthma Community Forum
1194 results
Advanced Prostate Cancer
1183 results
View top 10 communities
Sort by
Most Relevant
Newest