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Neomycin / Prednisolone
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Exhausted now that I’m down to 7mg
Well I’m finally down to 7 mg Prednisone and I’m feeling exhausted. Doing ok as far as pain is concerned but feel as if I’ve run 10 miles. Diagnosed with PMR in 2016 and have slowly reduced to get to this point. My Doc leaves it up to me how I reduce and I’ve mostly followed the guidance given here
Well I’m finally down to 7 mg Prednisone and I’m feeling exhausted. Doing ok as far as pain is concerned but feel as if I’ve run 10 miles. Diagnosed with PMR in 2016 and have slowly reduced to get to this point. My Doc leaves it up to me how I reduce and I’ve mostly followed the guidance given here
rocketman42
in
PMRGCAuk
9 months ago
Can you describe a flare?
I know this may seem like a daft question to some of you experienced PMR sufferers but when you say flare, does this mean returning to the days of chronic pain in the shoulders, groin and wherever or is it just some pain has returned and if this is the case, to what degree? For example. I no longer
I know this may seem like a daft question to some of you experienced PMR sufferers but when you say flare, does this mean returning to the days of chronic pain in the shoulders, groin and wherever or is it just some pain has returned and if this is the case, to what degree? For example. I no longer
Markandevie
in
PMRGCAuk
9 months ago
Question about muscle weakness
Hi all, I've been suffering from GCA for about 16 months now, and I've been wondering about a few things relating to muscle weakness, breathlessness, and the like. Here goes: My understanding is that muscle weakness is caused by a lack of 02 to the muscles due to the inflammation of the blood vessels
Hi all, I've been suffering from GCA for about 16 months now, and I've been wondering about a few things relating to muscle weakness, breathlessness, and the like. Here goes: My understanding is that muscle weakness is caused by a lack of 02 to the muscles due to the inflammation of the blood vessels
montebello
in
PMRGCAuk
9 months ago
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Side Effects at 1 year
Approaching my 1 year date of treatment. Followed the Peace-1 trial Lupron (3 month injection) + 250mg Abiraterone/ 10mg Prednisone + 6 cycles Docetaxel + Xgeva 28 days/ adjusted to 90 days I adopte the Mediterranean diet and have used Pickleball (4.5 player) to exercise 6 days per week. Used dumbbells
Approaching my 1 year date of treatment. Followed the Peace-1 trial Lupron (3 month injection) + 250mg Abiraterone/ 10mg Prednisone + 6 cycles Docetaxel + Xgeva 28 days/ adjusted to 90 days I adopte the Mediterranean diet and have used Pickleball (4.5 player) to exercise 6 days per week. Used dumbbells
TMcgee
in
Advanced Prostate Cancer
9 months ago
No diagnosis
I am desparate tonight. I've woken and coughed myself fruitlessly into a panic, after spending the last 2 weeks trying to stop coughing fairly successfully. Over the last few months, I've tried to see a doctor, but only see respiratory nurses. They tried 2 courses of antibiotics with prednisolone. Wheezing
I am desparate tonight. I've woken and coughed myself fruitlessly into a panic, after spending the last 2 weeks trying to stop coughing fairly successfully. Over the last few months, I've tried to see a doctor, but only see respiratory nurses. They tried 2 courses of antibiotics with prednisolone. Wheezing
Q-owl
in
Lung Conditions Community Forum
11 months ago
flu shot reaction with PMR
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
Joanecindy
in
PMRGCAuk
9 months ago
Several Peeing Wake Ups Nightly
Hi all - hoping for some breakthrough I haven't read yet ;) Recall I am 50yr old - PCA, Gleason 9 - casodex to start, now triplet (2nd session of 6) I am not getting the rest needed to fight this beast nor to function properly. I am waking several times each and every night to pee. I am on Flomax
Hi all - hoping for some breakthrough I haven't read yet ;) Recall I am 50yr old - PCA, Gleason 9 - casodex to start, now triplet (2nd session of 6) I am not getting the rest needed to fight this beast nor to function properly. I am waking several times each and every night to pee. I am on Flomax
Yzinger
in
Advanced Prostate Cancer
9 months ago
Nasal Flu Vaccination
Hi everyone, I have PMR and currently on 10mg of Prednisolone. Should I avoid contact with my Grandaughter for a while when she has received the Nasal Flu Drops. Thank you Jenny
Hi everyone, I have PMR and currently on 10mg of Prednisolone. Should I avoid contact with my Grandaughter for a while when she has received the Nasal Flu Drops. Thank you Jenny
Attic
in
PMRGCAuk
11 months ago
Red Eye Update
Hi,I posted a few days ago about keep having a bloodshot eye. Now on 4th since the beginning of the month!! Or maybe they never actually completely go in the first place, only disappear from the visible part of my eye? I went to the MEC clinic at Specsavers and after various tests and examining my eyes
Hi,I posted a few days ago about keep having a bloodshot eye. Now on 4th since the beginning of the month!! Or maybe they never actually completely go in the first place, only disappear from the visible part of my eye? I went to the MEC clinic at Specsavers and after various tests and examining my eyes
Pusph
in
PMRGCAuk
11 months ago
Long Haul Travel
I am contemplating a long haul trip, I am currently tapering from 3mg to 2.5mg using DL's 'Ultra Slow Reduction over 14 weeks'. I have just started the taper, I am at week 1, second day. My question is how should I take my medication to adjust to traveling to a different time zone? I live in
I am contemplating a long haul trip, I am currently tapering from 3mg to 2.5mg using DL's 'Ultra Slow Reduction over 14 weeks'. I have just started the taper, I am at week 1, second day. My question is how should I take my medication to adjust to traveling to a different time zone? I live in
Orangecakes
in
PMRGCAuk
11 months ago
Abiraterone edema management
One of the fun things I am getting as an SE while on lupron/abiraterone/prednisone is fluid retention. Edema and getting up to pee 3-4 times nightly (losing 3-4 lbs of weight during the night.) What if anything can be done about this?
One of the fun things I am getting as an SE while on lupron/abiraterone/prednisone is fluid retention. Edema and getting up to pee 3-4 times nightly (losing 3-4 lbs of weight during the night.) What if anything can be done about this?
Derf4223
in
Advanced Prostate Cancer
9 months ago
tapering prednisone to fast
I was diagnosed with PMR in June 2023. I was treated with high dose prednisone as I had queried GCA but negative on biopsy. I have been tapering and every time I get to15 mgs I get symptoms . Last time I developed aching ankles ,fatigue and myCRP went up . Rheumy put me back to 20 mgs and added
I was diagnosed with PMR in June 2023. I was treated with high dose prednisone as I had queried GCA but negative on biopsy. I have been tapering and every time I get to15 mgs I get symptoms . Last time I developed aching ankles ,fatigue and myCRP went up . Rheumy put me back to 20 mgs and added
Elvied
in
PMRGCAuk
9 months ago
Pluvicto Aftereffects SMART syndrome?
As I've posted here, spouse was pretty much the poster boy for Pluvicto. He had a hiccup with the supply issues, but PSA dropped significantly and his side effects during treatment were perfectly manageable, until .... We were heading to NM via West Texas when he began complaining of bright light and
As I've posted here, spouse was pretty much the poster boy for Pluvicto. He had a hiccup with the supply issues, but PSA dropped significantly and his side effects during treatment were perfectly manageable, until .... We were heading to NM via West Texas when he began complaining of bright light and
Biobro
in
Advanced Prostate Cancer
11 months ago
bloating
I am on prednisolone and colchicine daily to manage suspected BD I’ve read loads of people suffer with loose stools Has anyone experienced bloating difficulty passing stools with cramps? Could it be meds related ?
I am on prednisolone and colchicine daily to manage suspected BD I’ve read loads of people suffer with loose stools Has anyone experienced bloating difficulty passing stools with cramps? Could it be meds related ?
Tiffrose
in
Behçet's UK
11 months ago
skin lesions that are not typical bruising from prednisone
Hi everyone, has anyone experienced skin lesions that begin by appearing to be some kind of an insect bite with tremendous itching and irritation and a lot of redness and then develop dark patches that look almost like scabs but aren’t. One of these had redness going all around my arm and another goes
Hi everyone, has anyone experienced skin lesions that begin by appearing to be some kind of an insect bite with tremendous itching and irritation and a lot of redness and then develop dark patches that look almost like scabs but aren’t. One of these had redness going all around my arm and another goes
Kt1943
in
PMRGCAuk
9 months ago
PSA increase nearly one year after triplet therapy (mHSPC), what's next?
Hello everyone, thank you for all your help for a year. My dad went from a high of 3103 PSA to a nadir of 44. He unfortunately couldn't reach a <1 result but it had stabilized for a few months after his docetaxel + zytiga + prednisone. Unfortunately his new result is 67 PSA exactly a year since diagnosis
Hello everyone, thank you for all your help for a year. My dad went from a high of 3103 PSA to a nadir of 44. He unfortunately couldn't reach a <1 result but it had stabilized for a few months after his docetaxel + zytiga + prednisone. Unfortunately his new result is 67 PSA exactly a year since diagnosis
Sissel25
in
Advanced Prostate Cancer
9 months ago
GCA or TMJ
Started with PMR in September 2022 and now tapered to 4.5 and no symptoms. Using the slow taper, I’m to go to 4 tomorrow. In the last 3 days I’ve had a little niggle in the right side of my jaw. No headaches. The niggles go away within an hour of taking my prednisone. If it is GCA, do I need to up the
Started with PMR in September 2022 and now tapered to 4.5 and no symptoms. Using the slow taper, I’m to go to 4 tomorrow. In the last 3 days I’ve had a little niggle in the right side of my jaw. No headaches. The niggles go away within an hour of taking my prednisone. If it is GCA, do I need to up the
Spartans1
in
PMRGCAuk
9 months ago
Can PMR without Prednisone lead to GCA?
I understand that taking Prednisone for PMR reduces the inflammation but does not change the trajectory or the PMR process. So is it not the case that the same applies to GCA? PMR without Prednisone doesn't "cause" GCA, but if GCA is present the Prednisone will reduce the inflammation thus reducing
I understand that taking Prednisone for PMR reduces the inflammation but does not change the trajectory or the PMR process. So is it not the case that the same applies to GCA? PMR without Prednisone doesn't "cause" GCA, but if GCA is present the Prednisone will reduce the inflammation thus reducing
kp60
in
PMRGCAuk
9 months ago
meds for sinus infection
I have a terrible sinus infection and want to see if meds prescribed will effect RLS? Amooxicillin-clav, prednisolone 4 mg and guaifen-codeine 100-10 mg. Thanks for any help
I have a terrible sinus infection and want to see if meds prescribed will effect RLS? Amooxicillin-clav, prednisolone 4 mg and guaifen-codeine 100-10 mg. Thanks for any help
Opie__
in
Restless Legs Syndrome
11 months ago
Wary of covid autumn booster
Hi, You can read from my profile that I am aware that there COULD be a link between the Pfizer jab (Comirnaty) that I had in November 2021 and the onset of PMR soon after. I had had two AstraZenica jabs prior to this earlier in 2021 with no adverse effects whatsoever. While on 6mg prednisolone, in
Hi, You can read from my profile that I am aware that there COULD be a link between the Pfizer jab (Comirnaty) that I had in November 2021 and the onset of PMR soon after. I had had two AstraZenica jabs prior to this earlier in 2021 with no adverse effects whatsoever. While on 6mg prednisolone, in
kalgoorlie
in
PMRGCAuk
11 months ago
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