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Neomycin / Prednisolone
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Mycophenolate instead of Perfinedine or Nintenanib?
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
DaveLister
in
Lung Conditions Community Forum
9 months ago
How I reinvented myself after PMR diagnosis
For me, this might be better titled, how I've muddled through. The reinventing is a work in progress and likely to be for the foreseeable future and I realise as I have been writing this, that the reinvention perhaps began a very long time before I was given any kind of a diagnosis. I'd had undiagnosed
For me, this might be better titled, how I've muddled through. The reinventing is a work in progress and likely to be for the foreseeable future and I realise as I have been writing this, that the reinvention perhaps began a very long time before I was given any kind of a diagnosis. I'd had undiagnosed
Gimme
in
PMRGCAuk
9 months ago
Docetaxel Failing
Greetings from Inverness in the beautiful Highlands of Scotland! I would like to share my journey with you and hopefully get some advice on future treatments. In December 2022 following diagnoses of advanced prostate cancer with multiple bone metastasis I started zytiga + prednisone and 6 monthly triptorelin
Greetings from Inverness in the beautiful Highlands of Scotland! I would like to share my journey with you and hopefully get some advice on future treatments. In December 2022 following diagnoses of advanced prostate cancer with multiple bone metastasis I started zytiga + prednisone and 6 monthly triptorelin
Fisherman2
in
Advanced Prostate Cancer
5 months ago
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Had the ablation.
Monday I had the procedure under general anesthesia-safely and successfully. The did give IV cortef at the start of the procedure. Since they needed to intubate my throat is sore for days but my ears-especially the right one are achy. I was debating why aching now; pollen count is moderate,and my jaw
Monday I had the procedure under general anesthesia-safely and successfully. The did give IV cortef at the start of the procedure. Since they needed to intubate my throat is sore for days but my ears-especially the right one are achy. I was debating why aching now; pollen count is moderate,and my jaw
Karenjaninaz
in
PMRGCAuk
5 months ago
Moving on to Provenge/Sipuleucel-t
We met with my husband's onc yesterday to discuss the next move since the 3 years of Abiraraterone/prednisone has run its course. His psa numbers are now around 2.0 (up from a low of .04) and psma scan indicates that bone met volume is quite low. A recent lab biopsy didn't reveal much... The good doc
We met with my husband's onc yesterday to discuss the next move since the 3 years of Abiraraterone/prednisone has run its course. His psa numbers are now around 2.0 (up from a low of .04) and psma scan indicates that bone met volume is quite low. A recent lab biopsy didn't reveal much... The good doc
Lavender22
in
Advanced Prostate Cancer
5 months ago
Nearing the end.......maybe.
I've spent the last 17 weeks extremely slowly reducing my prednisone dose from .5 mg to zero. I'm so close after 8 years, but am always mindful of PMRpro's mantra, "the lowest EFFECTIVE dose". Filling my pill box for next week I realized that there's only one more .5 mg dose for the next 2 weeks and
I've spent the last 17 weeks extremely slowly reducing my prednisone dose from .5 mg to zero. I'm so close after 8 years, but am always mindful of PMRpro's mantra, "the lowest EFFECTIVE dose". Filling my pill box for next week I realized that there's only one more .5 mg dose for the next 2 weeks and
Raven1955
in
PMRGCAuk
5 months ago
Bursitis - more questions
Having been an avid reader of this amazing forum for the last 18 months, I am convinced that a lot of the pain I was suffering before starting on Prednisolone was due to bursitis. I had 13 months of symptoms which included, I’m now sure, bursitis in my hips, shoulders and knees. I started on 15 mg
Having been an avid reader of this amazing forum for the last 18 months, I am convinced that a lot of the pain I was suffering before starting on Prednisolone was due to bursitis. I had 13 months of symptoms which included, I’m now sure, bursitis in my hips, shoulders and knees. I started on 15 mg
Sukydee
in
PMRGCAuk
9 months ago
Pred again
Hi I have been diagnosed with PMR again and put back on prednisone I really did not want to go back on the steroids I had a awful time 2 years ago when I was put on them, I gained 3 stone I just could not stop eating!!! We talked through everything with my consultant and I agreed to go on 10mg and
Hi I have been diagnosed with PMR again and put back on prednisone I really did not want to go back on the steroids I had a awful time 2 years ago when I was put on them, I gained 3 stone I just could not stop eating!!! We talked through everything with my consultant and I agreed to go on 10mg and
24paula
in
PMRGCAuk
5 months ago
Hello
Hello everyone I am newly diagnosed with PMR and trying to get used to the idea that I have it Would welcome any tips on managing Prednisone side effects 😁
Hello everyone I am newly diagnosed with PMR and trying to get used to the idea that I have it Would welcome any tips on managing Prednisone side effects 😁
Sussexsindydoll
in
PMRGCAuk
5 months ago
Appropriate Treatment
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
154Eleventh
in
Advanced Prostate Cancer
5 months ago
Much Better
Despite no inflammatory markers my GP believed I did indeed have PMR. I have never felt so well after 3 weeks on 15 mgs of prednisone. I'm beginning my tapering. My situation is a bit complicated as I have both MS and CMT so I thought my problems might have been neurological. I didn't know I felt so
Despite no inflammatory markers my GP believed I did indeed have PMR. I have never felt so well after 3 weeks on 15 mgs of prednisone. I'm beginning my tapering. My situation is a bit complicated as I have both MS and CMT so I thought my problems might have been neurological. I didn't know I felt so
FreeWolf
in
PMRGCAuk
5 months ago
Has the recommended delivery of Prednisolone for asthma changed over the last 10 years?
Recently suffered a severe exacerbation of asthma with a chest infection. The last time was in 2011 with swine flu. This time the doctor wanted me on 25mg/day of prednisolone for 5 days and then to stop. I requested a lower dose and I went on 10 mg/day. After five days I had improved but when I went
Recently suffered a severe exacerbation of asthma with a chest infection. The last time was in 2011 with swine flu. This time the doctor wanted me on 25mg/day of prednisolone for 5 days and then to stop. I requested a lower dose and I went on 10 mg/day. After five days I had improved but when I went
Tugun
in
Asthma Community Forum
9 months ago
Please help us decide on next treatment
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Simonapo
in
Advanced Prostate Cancer
5 months ago
Noraltavet
I have been using UMARY as a pain suppresent in conjunction with Methotrexate to get off prednisone for my PMR. Has anyone else been using UMARY?
I have been using UMARY as a pain suppresent in conjunction with Methotrexate to get off prednisone for my PMR. Has anyone else been using UMARY?
Veteranvet
in
PMRGCAuk
5 months ago
steroid advice
I have had a very bad cold for over two weeks cough has become unbearable… saw doctor today. Has prescribed prednisolone 30 mgs for 5 days…can I then go straight back to my 2mgs I take daily. I have been given antibiotics as well. thank you all in advance
I have had a very bad cold for over two weeks cough has become unbearable… saw doctor today. Has prescribed prednisolone 30 mgs for 5 days…can I then go straight back to my 2mgs I take daily. I have been given antibiotics as well. thank you all in advance
Reddev
in
PMRGCAuk
9 months ago
GCA question
I am happy to report I am feeling pretty good and down to 5 1/2 mg if prednisone. My question is, does anyone else with GCA get a pain like feeling in their head and a feeling that something is wrong or going to happen. The feeling only lasts several seconds but it is unnerving. I think about a stroke
I am happy to report I am feeling pretty good and down to 5 1/2 mg if prednisone. My question is, does anyone else with GCA get a pain like feeling in their head and a feeling that something is wrong or going to happen. The feeling only lasts several seconds but it is unnerving. I think about a stroke
Plains
in
PMRGCAuk
5 months ago
Taper
Hi everyone …I'm feeling ok but my weight gain is just crazy I’ve managed to go down 1/2mg of prednisone at a time to now 7-1/2 mg have been on that 6 weeks but I’m wondering with all this weight should I try and decrease another 1/2mg or should I work on diet first….appreciate any advice thanks
Hi everyone …I'm feeling ok but my weight gain is just crazy I’ve managed to go down 1/2mg of prednisone at a time to now 7-1/2 mg have been on that 6 weeks but I’m wondering with all this weight should I try and decrease another 1/2mg or should I work on diet first….appreciate any advice thanks
Januzzi
in
PMRGCAuk
5 months ago
Staying on prednisolone
Thank you all for your comments, its good to know you can stay on pred indefinitely . Will talk to my consultant and go from there.
Thank you all for your comments, its good to know you can stay on pred indefinitely . Will talk to my consultant and go from there.
Chocolateluver
in
PMRGCAuk
9 months ago
Tapered to 2 mg
I have now been on 2 mg for a week and was expecting the usual fatigue when I start at a new lower level but instead this time I feel better than I have in months, much more energy. I hope it lasts! Does this typically happen when not so much prednisone going into the body?
I have now been on 2 mg for a week and was expecting the usual fatigue when I start at a new lower level but instead this time I feel better than I have in months, much more energy. I hope it lasts! Does this typically happen when not so much prednisone going into the body?
Paulagcl
in
PMRGCAuk
5 months ago
Jaw locking while tapering for GCA
I am in the process of tapering from 65 mg of Prednisone for GCA. Tonight the right side of my jaw temporarily locked while brushing my teeth. If I am honest, my scalp is becoming a bit tender again, and my tinnitus has increased a notch. I was on the high doses of Prednisone for six weeks, and began
I am in the process of tapering from 65 mg of Prednisone for GCA. Tonight the right side of my jaw temporarily locked while brushing my teeth. If I am honest, my scalp is becoming a bit tender again, and my tinnitus has increased a notch. I was on the high doses of Prednisone for six weeks, and began
Bummed24
in
PMRGCAuk
5 months ago
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