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Peripheral Neuropathy in Parkinson's disease.How to deal with this pain in the Hands and feet.PLEASE HELP!
Hi Fellow Parkies, I am 6years post PD diagnosis and a non tremor dominant YOPD. Does anyone expperience tingling pain and numbness in the hands and feet mostly at night? This pain makes it difficult for me to fall asleep. If so please what have you been doing to relieve this pain?
Hi Fellow Parkies, I am 6years post PD diagnosis and a non tremor dominant YOPD. Does anyone expperience tingling pain and numbness in the hands and feet mostly at night? This pain makes it difficult for me to fall asleep. If so please what have you been doing to relieve this pain?
OREOLU
in
Cure Parkinson's
2 years ago
Homocysteine levels after injecting
Homocysteine Your Value 8.1 umol/L Standard Range <15 umol/L Good morning all. My homocysteine levels look pretty good. Right? I'm wondering if that is because I've been injecting daily? I wonder if i should have tested after withholding injections for 72 hours? I'm actually feeling pretty
Homocysteine Your Value 8.1 umol/L Standard Range <15 umol/L Good morning all. My homocysteine levels look pretty good. Right? I'm wondering if that is because I've been injecting daily? I wonder if i should have tested after withholding injections for 72 hours? I'm actually feeling pretty
EllaNore
in
Pernicious Anaemia Society
2 years ago
Parkinson
I now have Parkinson as well as restless legs ,am on Levodopa 100mg/5Omg at 11.OO am -3.00pm -7.OOpm -11.OOpm capsules only last 3-4 hours waken at 3.OOam in morning with restless legs on and off till getting up at 8.OOam for breakfast . Consultant phoning this week to see how I am getting on she will
I now have Parkinson as well as restless legs ,am on Levodopa 100mg/5Omg at 11.OO am -3.00pm -7.OOpm -11.OOpm capsules only last 3-4 hours waken at 3.OOam in morning with restless legs on and off till getting up at 8.OOam for breakfast . Consultant phoning this week to see how I am getting on she will
auldreekie18
in
Restless Legs Syndrome
2 years ago
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Thiamine......a missing piece in the puzzle?
Hi all As we know thiamine is very much a hotly debated topic in many of the communities (not just Parkinson's) and one of (if not THE) the main reasons is to do with dosing and the various B1 derivatives. I've been doing some heavy research myself in the last few weeks and decided to go back to the
Hi all As we know thiamine is very much a hotly debated topic in many of the communities (not just Parkinson's) and one of (if not THE) the main reasons is to do with dosing and the various B1 derivatives. I've been doing some heavy research myself in the last few weeks and decided to go back to the
SWesterner
in
Cure Parkinson's
2 years ago
RLS between 8 and 9 pm
My RLS affects me between 8 and 9 pm most nights. I feel fortunate that it doesn’t keep me up all night. I do have lower back and hip problems that bother me when lying down and keep me up which I need to go see about. I have neuropathy in my feet and am not diabetic. Going to a neurologist next
My RLS affects me between 8 and 9 pm most nights. I feel fortunate that it doesn’t keep me up all night. I do have lower back and hip problems that bother me when lying down and keep me up which I need to go see about. I have neuropathy in my feet and am not diabetic. Going to a neurologist next
Yarn1985
in
Restless Legs Syndrome
2 years ago
sub-cutaneous vs. intra-muscular
I am going to check in again here about sub-cutaneous vs. intramuscular injections. My PCP is insisting I need todo IM injecting (“hydroxy should always be IM”) but here I find many do sub-cutaneous and I think I would be very scared to do IM. My husband could probably do it but it still scares me.
I am going to check in again here about sub-cutaneous vs. intramuscular injections. My PCP is insisting I need todo IM injecting (“hydroxy should always be IM”) but here I find many do sub-cutaneous and I think I would be very scared to do IM. My husband could probably do it but it still scares me.
EiCa
in
Pernicious Anaemia Society
2 years ago
2nd recurrence 😢
Nov 17 3c HGSOC, BRACA2, surgery, chemo, immunotherapy trial, failed trial, 1st recurrence, chemo followed by Niraparib since April 2019 with no side effects at all, CA124 9-13. Was convinced I was ‘the one’ it was going to work for but in May CA125 went up by 3. Nurse wasn’t concerned, I knew!! Then
Nov 17 3c HGSOC, BRACA2, surgery, chemo, immunotherapy trial, failed trial, 1st recurrence, chemo followed by Niraparib since April 2019 with no side effects at all, CA124 9-13. Was convinced I was ‘the one’ it was going to work for but in May CA125 went up by 3. Nurse wasn’t concerned, I knew!! Then
Doglover1410
in
My Ovacome
2 years ago
Peripheral Neuropathy PN Activist
PN at Mayo Clinic offers better care and definition - see Peripheral Neuropathy. John Hopkins Medicine https://www.hopkinsmedicine.org/health/conditions-and-diseases/peripheral-neuropathy Peripheral Neuropathy | Johns Hopkins Medicinereports “Usually a peripheral neuropathy can’t be cured, but you
PN at Mayo Clinic offers better care and definition - see Peripheral Neuropathy. John Hopkins Medicine https://www.hopkinsmedicine.org/health/conditions-and-diseases/peripheral-neuropathy Peripheral Neuropathy | Johns Hopkins Medicinereports “Usually a peripheral neuropathy can’t be cured, but you
CIPN
in
Neuropathy Support
2 years ago
Interactions between vitamin b12 and vitamin b6 tablets.
Hello everyone, I am currently on cyanocobalamin injections, can I also take vitamin b6 tablets? Response from experienced persons please.
Hello everyone, I am currently on cyanocobalamin injections, can I also take vitamin b6 tablets? Response from experienced persons please.
Agala
in
Pernicious Anaemia Society
2 years ago
2nd Ablation inside 6 months tomorrow
hi all I had a failed Cryoblation in March and now back in tomorrow for an RF ablation . im naturally just as nervous as the 1st time and wish I could have full anaesthetic rather than just sedation again but hey ho time to man up and get on with it lol . fingers crossed it works this time and
hi all I had a failed Cryoblation in March and now back in tomorrow for an RF ablation . im naturally just as nervous as the 1st time and wish I could have full anaesthetic rather than just sedation again but hey ho time to man up and get on with it lol . fingers crossed it works this time and
mjm1971
in
AF Association
2 years ago
Nerve pain in foot
Hi I had an ankle injury 8 months ago and I still have nerve pain, toes are curled under, not as bad but it it getting me down, I cant walk far, i have a risk assessment for work and worried I cant stand for too long, any advice please
Hi I had an ankle injury 8 months ago and I still have nerve pain, toes are curled under, not as bad but it it getting me down, I cant walk far, i have a risk assessment for work and worried I cant stand for too long, any advice please
Hidden
in
Pain Concern
2 years ago
A PRACTICAL GUIDE TO UNDERSTANDING KAPLAN-MEIER CURVES
If you don't want to get a headache or confused (like me) don't read this post. I read it because I'm a masochist. And the reason I put it here is because I'm a sadist.👹👹 On the topic - most of us who like to read publications and dig deeper (according to our capabilities) constantly encounter data
If you don't want to get a headache or confused (like me) don't read this post. I read it because I'm a masochist. And the reason I put it here is because I'm a sadist.👹👹 On the topic - most of us who like to read publications and dig deeper (according to our capabilities) constantly encounter data
Yalokin
in
CLL Support
2 years ago
B12-supplement causing restlessness, brain fog, anhedonia and sexual dysfunction
Hi! I made a post a while ago about reaction to B12. I still keep reacting badly. I dont understand what is happening and How.I keep getting restless and have bad sleep. Also get bad brain fog, concentration and anhedonia. The new symtom is sexual dysfunction.I had taken small doses B12 because of
Hi! I made a post a while ago about reaction to B12. I still keep reacting badly. I dont understand what is happening and How.I keep getting restless and have bad sleep. Also get bad brain fog, concentration and anhedonia. The new symtom is sexual dysfunction.I had taken small doses B12 because of
Sofa00
in
Pernicious Anaemia Society
2 years ago
Man Lost Ability to Walk After Taking Too Many Vitamin B6 Supplements
A man in Australia lost his ability to walk after consuming 70 times the recommended daily dose of vitamin B6, ABC Radio Melbourne reported. But 50 milligrams is much higher than the standard dose recommendation in both Australia and the US, which is 1.7 milligrams of vitamin B6 per day for men over
A man in Australia lost his ability to walk after consuming 70 times the recommended daily dose of vitamin B6, ABC Radio Melbourne reported. But 50 milligrams is much higher than the standard dose recommendation in both Australia and the US, which is 1.7 milligrams of vitamin B6 per day for men over
Hidden
in
Cure Parkinson's
2 years ago
Tens Machine
hi everyone I have had sciatica for nearly four weeks, excruciating pain in calf and lower back. Cocodamol, osteopath, physio and GP but no relief. I have ordered a tens machine and wondered if anyone else has used one and if it’s ok to use with AbFib. Thanks
hi everyone I have had sciatica for nearly four weeks, excruciating pain in calf and lower back. Cocodamol, osteopath, physio and GP but no relief. I have ordered a tens machine and wondered if anyone else has used one and if it’s ok to use with AbFib. Thanks
AbbyTabby7
in
AF Association
2 years ago
Switch to Gabapentin from Pregabalin
I am sick and tired of daytime sedation from the 150 mg of pregabalin I take. It successfully treats my PLMD along with careful attention to food/drink triggers and has for three years or so. But it is hard to imagine the rest of my life fighting to stay awake. I have tried gabapentin twice. Both
I am sick and tired of daytime sedation from the 150 mg of pregabalin I take. It successfully treats my PLMD along with careful attention to food/drink triggers and has for three years or so. But it is hard to imagine the rest of my life fighting to stay awake. I have tried gabapentin twice. Both
wantokporo
in
Restless Legs Syndrome
2 years ago
Your thoughts/experiences please about a change to a high dose of Sotalol (120mg twice a day).
I have just had my 32nd bout of AF this year but could not shift this one myself (by cycling up a hill) so went to A+E. Sheffield A+E are always very accommodating, despite being very busy, and said that I had done the right thing to go in. The Cardiolology Depatment, where I am a patient, advised
I have just had my 32nd bout of AF this year but could not shift this one myself (by cycling up a hill) so went to A+E. Sheffield A+E are always very accommodating, despite being very busy, and said that I had done the right thing to go in. The Cardiolology Depatment, where I am a patient, advised
AFCyclist
in
Atrial Fibrillation Support
2 years ago
reduction
Hospital consultant going to decide whether to switch back from Pregabalin to Gabapentin to see if it helps with the pain ,currently o 300mg of Pregabalin and 150mg Tramadol at night so last night cut out 150 mg of Pregabalin had restless legs during night which I can cope with and felt better this morning
Hospital consultant going to decide whether to switch back from Pregabalin to Gabapentin to see if it helps with the pain ,currently o 300mg of Pregabalin and 150mg Tramadol at night so last night cut out 150 mg of Pregabalin had restless legs during night which I can cope with and felt better this morning
auldreekie18
in
Restless Legs Syndrome
2 years ago
I just bought this PEMF therapy mat (pulsed electromagnetic frequency) after learning it treats PD
PEMF is a very interesting therapy that's been around for decades. This is a 2015 study from the NIH https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562205/ [u]"Conclusions"[/u][i]
"Electromagnetic therapy opens a new avenue for PD treatment.
[/i] [i]Each electromagnetic therapy technique described
PEMF is a very interesting therapy that's been around for decades. This is a 2015 study from the NIH https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562205/ [u]"Conclusions"[/u][i]
"Electromagnetic therapy opens a new avenue for PD treatment.
[/i] [i]Each electromagnetic therapy technique described
PDWarrior1900
in
Cure Parkinson's
2 years ago
Clonazepam
Hi I'm still having a rough time with RLS despite my usual gabapentin and temgesic. My doctor has suggested trying clonazepam in combination with my existing medication and I wondered what experience my fellow sufferers had with it. I've tried other benzo sleeping tablets in the past but the RL always
Hi I'm still having a rough time with RLS despite my usual gabapentin and temgesic. My doctor has suggested trying clonazepam in combination with my existing medication and I wondered what experience my fellow sufferers had with it. I've tried other benzo sleeping tablets in the past but the RL always
puzzler1
in
Restless Legs Syndrome
2 years ago
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