Peripheral Neuropathy in Parkinson's disease.How to deal with this pain in the Hands and feet.PLEASE HELP!

[OREOLU]

Hi Fellow Parkies, I am 6years post PD diagnosis and a non tremor dominant YOPD. Does anyone expperience tingling pain and numbness in the hands and feet mostly at night? This pain makes it difficult for me to fall asleep. If so please what have you been doing to relieve this pain?

[deedee777]

For my peripheral neuropathy in my feet, I got a Vibration Plate (the type with hand rails on the sides and front), and use it by standing on it, two to three times a day for a 12-minutes session each time. It has helped the circulation in my feet and entire body, and has lessened the night time discomfort I had with my feet and the rest of my body. This website is where I read that a lot of Parkinson's people are have good results with vibration therapy devices.

[OREOLU in reply to deedee777]

Thanks deedee777.

[deedee777]

I noticed on this website, that people recently were discussing "PWP having Severe Leg Pain", if you press this link, it should bring up the discussion. This in the weblink: healthunlocked.com/cure-par....

Also, on the menu bar, when you are at the top of the latest "Posts" category, if you look to the right-hand column you will see a Search Box that says, "Search Posts on Cure Parkinson's", if you fill in the topics, items, or words, that you are looking for more information, it will bring up all prior discussions on the Cure Parkinson's website, on whatever topics, that you would like more information. Hope this helps.

[HekateMoon in reply to deedee777]

thank you!

[slimweiss]

I just read a book about Low Dose Naltrexone and how it is helping with several diseases including Parkinson's. It's an off label drug and hard to get from a neurologist but naturopaths and functional medicine doctors might prescribe it. Go online to read about it. We are still trying to find someone in San Diego who will order it for us.

[gwendolinej]

Are you having your bloods checked regularly. My husband was checked recently. His B6 was sky high. Coincidentally that night on the tv news was a report saying B6 advice was being adjusted by our TGA in Australia (same as FDA in the US)as overdosing was common. They mentioned neuropathy as one side effect. My husband has neuropathy and has sore feet to the point where he can barely walk. His B6 dose was not high. I’m hoping it is the B6, as it should improve as it drops, which can be very slow apparently.

Just a thought,

Gwendoline

[OREOLU]

Thanks gwendolinej.

I will have it checked right away.

[Esperanto in reply to OREOLU]

Did you indeed have a detailed blood test done on your vitamin levels? I am very curious if that explained the possible relationship between PD (C/L medication) and PN.

[Esperanto in reply to OREOLU]

Still curious… Today I finally got confirmation from a PN specialised neurologist that the meanwhile severe form of peripheral neuropathy was indeed caused by an extreme vitamin B6 deficiency partly due to interaction with PD medication. I had already made that diagnosis myself upon seeing the results of the langer blood test I had done. Supplementation with B6 (P5P) caused PD symptoms to be significantly reduced and with C/L medication halved. The unnecessary damage caused by the PN is unlikely to recover, but because of the extra B6, the neurologist expects the PN process to be slower now. So important to check your blood!

[chartist]

This may interest you :

healthunlocked.com/cure-par...

Art