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GCA - kidney problem
Hi All warriors. Diagnosed with GCA July, 2023. Put on 60 mg now tapered down to l7mg (Dec. 2023). All symptoms under control at this time. My last blood work showed my Creatinine at 104 and GFR at 45. This showed a mild to moderate decrease in kidney function. As a result I had a kidney/bladder
Hi All warriors. Diagnosed with GCA July, 2023. Put on 60 mg now tapered down to l7mg (Dec. 2023). All symptoms under control at this time. My last blood work showed my Creatinine at 104 and GFR at 45. This showed a mild to moderate decrease in kidney function. As a result I had a kidney/bladder
Groda
in
PMRGCAuk
6 months ago
Some good news
I was told on the fifth of December that my ultrasound scan had picked up three small suspicious lesions, and that what they saw was suggestive of cirrhosis, portal vein hypertension and varices. I immediately quit alcohol, eating cannabis and otc sleeping remedies. I radically changed my diet and began
I was told on the fifth of December that my ultrasound scan had picked up three small suspicious lesions, and that what they saw was suggestive of cirrhosis, portal vein hypertension and varices. I immediately quit alcohol, eating cannabis and otc sleeping remedies. I radically changed my diet and began
Ruthless247
in
British Liver Trust
6 months ago
Prolactin high
Been seeing an Endocrinologist privately as after 45 week wait still no appointment on the nhs. After a couple of blood test was tested for prolactin and it came up high Serum prolactin level 1117 mIU/L. Does anyone else make have this issue is it connected to thyroxine? Now back with GP as can’t afford
Been seeing an Endocrinologist privately as after 45 week wait still no appointment on the nhs. After a couple of blood test was tested for prolactin and it came up high Serum prolactin level 1117 mIU/L. Does anyone else make have this issue is it connected to thyroxine? Now back with GP as can’t afford
Jimmy69
in
Thyroid UK
6 months ago
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levothyroxine
Diagnosed eight weeks ago underactive thyroid even though I had no symptoms. 25mg given and 12 days later reduced to 12.5 as I was so ill. 4 weeks later I was bedridden, severe headaches and unable to urinate so took myself off them as Surgery would not respond. Informed Surgery what I had done they
Diagnosed eight weeks ago underactive thyroid even though I had no symptoms. 25mg given and 12 days later reduced to 12.5 as I was so ill. 4 weeks later I was bedridden, severe headaches and unable to urinate so took myself off them as Surgery would not respond. Informed Surgery what I had done they
Sunny-time
in
Thyroid UK
1 month ago
Antibody blood test
Hello I hope everyone is well. I was diagnosed with hashimotos about 9 weeks ago and have been on levothyroxine 50mg, blood test due at 12 weeks. Have also been taking vit d and ferroglobin. I have awful upper back, neck and foot pain. Currently under physio. Doctor did blood tests for rheumatoid arthritis
Hello I hope everyone is well. I was diagnosed with hashimotos about 9 weeks ago and have been on levothyroxine 50mg, blood test due at 12 weeks. Have also been taking vit d and ferroglobin. I have awful upper back, neck and foot pain. Currently under physio. Doctor did blood tests for rheumatoid arthritis
Nattycake
in
Thyroid UK
1 month ago
IBD symptoms with no diagnosis
I was just diagnosed with IBS 6 months ago, before my 40th birthday. It started with persistent constipation, bloating and cramping that led to a colonoscopy. Since my mother has Crohn's, I expected the same diagnoses, but instead I got an all clear from the GI doctors. The months that followed put my
I was just diagnosed with IBS 6 months ago, before my 40th birthday. It started with persistent constipation, bloating and cramping that led to a colonoscopy. Since my mother has Crohn's, I expected the same diagnoses, but instead I got an all clear from the GI doctors. The months that followed put my
JQLA
in
IBS Network
6 months ago
Darolutamide failing after 2 years. Any success if I switch to Xandi or Zytiga or do I need to move to Pluvicto.
Dx 2018. PSA 16. Been on Orgovyx. Started Second line (Darolutamide) two years ago when PSA started to rise. PSA rose over the [u]last 5 months[/u] from 0.021 (August) to 0.48 I had a few bone mets and several lymph nodes when dx. Trying to find other treatments since I'm running out of Standard
Dx 2018. PSA 16. Been on Orgovyx. Started Second line (Darolutamide) two years ago when PSA started to rise. PSA rose over the [u]last 5 months[/u] from 0.021 (August) to 0.48 I had a few bone mets and several lymph nodes when dx. Trying to find other treatments since I'm running out of Standard
Longterm101
in
Advanced Prostate Cancer
6 months ago
Overall Survival With [177]Lu-PSMA-617 vs Cabazitaxel in Metastatic Castration-Resistant Prostate Cancer
The Lancet Oncology TAKE-HOME MESSAGE TheraP was a phase II trial that compared the efficacy of radioligand therapy with 177Lu-PSMA-617 with that of cabazitaxel in patients with metastatic castration-resistant prostate cancer who had previously received docetaxel. After a median follow-up of 35.7 months
The Lancet Oncology TAKE-HOME MESSAGE TheraP was a phase II trial that compared the efficacy of radioligand therapy with 177Lu-PSMA-617 with that of cabazitaxel in patients with metastatic castration-resistant prostate cancer who had previously received docetaxel. After a median follow-up of 35.7 months
Magnus1964
in
Advanced Prostate Cancer
6 months ago
Criteria for "my ADT has stopped working and we have to move to another"
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
jackwfrench
in
Advanced Prostate Cancer
6 months ago
Parkinson’s and vagal nerve stimulation, promising human studies.
RESULTS: PD patients showed instable gait with insufficient range of motion during usual walking. [u]
Active taVNS improved gait characteristics including step length, stride velocity, stride length, and step length variability compared with sham taVNS after completion of the 7-day therapy.
[/u]
RESULTS: PD patients showed instable gait with insufficient range of motion during usual walking. [u]
Active taVNS improved gait characteristics including step length, stride velocity, stride length, and step length variability compared with sham taVNS after completion of the 7-day therapy.
[/u]
House2
in
Cure Parkinson's
6 months ago
CD20 Therapies (Ocrevus, Kesimpta, etc.) and potentially serious dental problems
This was an interesting post on the MS-blog. You have to get past the Dustin Hoffman in Marathon Man reference (which was a memorable scene!) to get down to the nitty gritty of why dental hygiene and regular checkups are so critical when when you're on certain MS therapies. https://multiple-sclerosis-research.org
This was an interesting post on the MS-blog. You have to get past the Dustin Hoffman in Marathon Man reference (which was a memorable scene!) to get down to the nitty gritty of why dental hygiene and regular checkups are so critical when when you're on certain MS therapies. https://multiple-sclerosis-research.org
CatsandCars
in
My MSAA Community
1 month ago
Difference in levels-stress?
I've been on leventhyroxine for years for underactive thyroid. Had yearly check muddle of Feb. TSH 2.09. Had full bloods for something else (WRS) and levels are 0.36 by middle if April. I'm wondering if stress can cause TSH to go up or down? Dr. Says this is in normal range for lab- but normal
I've been on leventhyroxine for years for underactive thyroid. Had yearly check muddle of Feb. TSH 2.09. Had full bloods for something else (WRS) and levels are 0.36 by middle if April. I'm wondering if stress can cause TSH to go up or down? Dr. Says this is in normal range for lab- but normal
Itsallaboutcheese
in
Thyroid UK
1 month ago
rheumatoid arthritis
Has anyone had an operation on elbow from rheumatoid arthritis? Did it help?
Has anyone had an operation on elbow from rheumatoid arthritis? Did it help?
65_women
in
NRAS
2 months ago
Thyroid or menopause - which to sort first?
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
Heappestre
in
Thyroid UK
2 months ago
PA and Sjogren’s
I posted a few days ago about dry mouth and eyes, but since then my early sjogrens bloodwork has come back positive. I am terrified! Is there anyone else who has AIG/PA and also sjogrens? I feel desperately in need of some hope and guidance…in particular I’m wondering if injections have helped with SS
I posted a few days ago about dry mouth and eyes, but since then my early sjogrens bloodwork has come back positive. I am terrified! Is there anyone else who has AIG/PA and also sjogrens? I feel desperately in need of some hope and guidance…in particular I’m wondering if injections have helped with SS
Lhood08
in
Pernicious Anaemia Society
2 months ago
Is Baclofen part of asthma treatment?
I was taken off Montelukast by my Asthma specialist after more than twenty years. Baclofen was given but I had to stop taking it after two weeks because my cough didn't get better. My GP asked me to stop. I couldn't get in touch with my specialist. Should I restart the Baclofen?
I was taken off Montelukast by my Asthma specialist after more than twenty years. Baclofen was given but I had to stop taking it after two weeks because my cough didn't get better. My GP asked me to stop. I couldn't get in touch with my specialist. Should I restart the Baclofen?
Ossing
in
Asthma Community Forum
6 months ago
Lyme disease
Reply to Steve n. Yes have Lyme . Diagnosed with ME so sadly no treatment. Very interested to hear about new treatment.
Reply to Steve n. Yes have Lyme . Diagnosed with ME so sadly no treatment. Very interested to hear about new treatment.
Shelley1234567
in
Pernicious Anaemia Society
6 months ago
Updated Lupus and the Skin booklet available now
We are proud to launch an updated version of our Lupus and the Skin information booklet. It is now available online and in hard copy from National Office. You can find more information about how the booklet was updated here: https://lupusuk.org.uk/updated-lupus-and-the-skin-booklet-available-now/ or
We are proud to launch an updated version of our Lupus and the Skin information booklet. It is now available online and in hard copy from National Office. You can find more information about how the booklet was updated here: https://lupusuk.org.uk/updated-lupus-and-the-skin-booklet-available-now/ or
Debbie_kinsey
Administrator
in
LUPUS UK
2 months ago
TIA in March
Hi, l recently had a mild TIA while in Cyprus where l live the treatment l received was excellent but the Neuroligist has prescribed Atvorstatin which l have found out shouldn’t be taken if you have an underactive Thyroid he dismissed this. Should l see my GP whilst l am in UK
Hi, l recently had a mild TIA while in Cyprus where l live the treatment l received was excellent but the Neuroligist has prescribed Atvorstatin which l have found out shouldn’t be taken if you have an underactive Thyroid he dismissed this. Should l see my GP whilst l am in UK
Tillybuds
in
Thyroid UK
2 months ago
Generic TCZ---is it available in the UK?
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
Grammy80
in
PMRGCAuk
2 months ago
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