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Dreaded Itch!
Hi, I was diagnosed with PBC 4 years ago and am a non-responder to Urso. I have taken Cholestryamine light, Gabapentin, Sertraline, Rifampicin, Fenofibrate and Naltrexone for my unbearable itching, with no relief. I recently have taken part and finished a trial at QEH Birmingham for pruritus, called
Hi, I was diagnosed with PBC 4 years ago and am a non-responder to Urso. I have taken Cholestryamine light, Gabapentin, Sertraline, Rifampicin, Fenofibrate and Naltrexone for my unbearable itching, with no relief. I recently have taken part and finished a trial at QEH Birmingham for pruritus, called
Hidden
in
PBC Foundation
5 years ago
Ropinerole
My meeting with Dr. Winkleman went pretty much how I expected. I knew it would mainly be med changes. One of which is ropinerole which I've been on for many years. Augmented last summer and along with my PCP we tried various meds . Ended up back on ropinirole along with lyrica 150 and lyrica 75 and
My meeting with Dr. Winkleman went pretty much how I expected. I knew it would mainly be med changes. One of which is ropinerole which I've been on for many years. Augmented last summer and along with my PCP we tried various meds . Ended up back on ropinirole along with lyrica 150 and lyrica 75 and
tweedy66
in
Restless Legs Syndrome
5 years ago
Has anyone tried Wellbutrin / bupropion and has it helped?
I have OCD, but cannot take SSRIs. Even SNRIs probably won't be good as I have thrombocytopenia and am pretty sure it has the same mechanism on certain aspects so could cause bleeding for me (which SSRIs did). I am not on anything now, but still sometimes think it would help whilst I am learning all
I have OCD, but cannot take SSRIs. Even SNRIs probably won't be good as I have thrombocytopenia and am pretty sure it has the same mechanism on certain aspects so could cause bleeding for me (which SSRIs did). I am not on anything now, but still sometimes think it would help whilst I am learning all
Cellothere
in
OCD-UK
5 years ago
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Meeting with Dr. Winkleman at Mass General !
Last summer I unfortunately had the experience of augmentation after many years on ropinirole. And even more unfortunately I had had both hips replaced....fortunately not at the same time! But still....3 months apart. This did not fare well with my RLS. Augmentation I believe is very "evil"....just recently
Last summer I unfortunately had the experience of augmentation after many years on ropinirole. And even more unfortunately I had had both hips replaced....fortunately not at the same time! But still....3 months apart. This did not fare well with my RLS. Augmentation I believe is very "evil"....just recently
sparkey1958
in
Restless Legs Syndrome
5 years ago
Samantha Lebsock, PharmD - 22nd May 2019
Samantha Lebsock, PharmD - 22nd May 2019 Samantha received her Bachelors in Human Biology and her Doctorate of Pharmacy from The University of Montana. She left the small city behind with her husband Nick and moved to Denver, Colorado. Samantha started working at Belmar Pharmacy in 2014. She quickly
Samantha Lebsock, PharmD - 22nd May 2019 Samantha received her Bachelors in Human Biology and her Doctorate of Pharmacy from The University of Montana. She left the small city behind with her husband Nick and moved to Denver, Colorado. Samantha started working at Belmar Pharmacy in 2014. She quickly
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
LDN and Cancer
Has anybody heard of "LDN" MY "OD" told me, LDN has been shown to increase your Immune System and help to attack some forms of cancer. LDN is short for Low Dose Naltrexone. Naltrexone is a drug that was approved by the FDA in 1985 to treat opiate dependencies. It is marketed under the trade names ‘Revia
Has anybody heard of "LDN" MY "OD" told me, LDN has been shown to increase your Immune System and help to attack some forms of cancer. LDN is short for Low Dose Naltrexone. Naltrexone is a drug that was approved by the FDA in 1985 to treat opiate dependencies. It is marketed under the trade names ‘Revia
gsheltonone
in
Advanced Prostate Cancer
5 years ago
I want to get off and get pregnant 😬
I’ve been on meds for like 10 years. Basically the same meds, tweaking them from time to time. Currently I am on Wellbutrin 300, Lexapro, Lamictal, Naltrexone, Topamax, and Birth Control lol awesome... I was divorced, then happy to stay on meds and be by myself for the rest of my life lol, and I have
I’ve been on meds for like 10 years. Basically the same meds, tweaking them from time to time. Currently I am on Wellbutrin 300, Lexapro, Lamictal, Naltrexone, Topamax, and Birth Control lol awesome... I was divorced, then happy to stay on meds and be by myself for the rest of my life lol, and I have
TLJ828
in
CHADD's Adult ADHD Support
5 years ago
LDN low dose naltrexone and PMR
Does anyone have any experience of this? A friend with ME has sent me a bit of information/links for this drug so I have had a bit of a read. It is suggested for PMR but there appears to be only anecdotal evidence. I’m unsure whether it is a treatment instead of prednisolone or alongside? Is it worth
Does anyone have any experience of this? A friend with ME has sent me a bit of information/links for this drug so I have had a bit of a read. It is suggested for PMR but there appears to be only anecdotal evidence. I’m unsure whether it is a treatment instead of prednisolone or alongside? Is it worth
Lochy
in
PMRGCAuk
5 years ago
"Unspecified Attention Disorder"-- is this "real" ADHD?
Hi all, In brief, I sought treatment for depressive episodes about a year ago, and after a few months meeting with the psychiatrist, an ADHD packet, etc, he gave a diagnosis of "Unspecified Attention Deficit Disorder; Unspecified Depressive Disorder", and started me on Methylphenidate. I now take the
Hi all, In brief, I sought treatment for depressive episodes about a year ago, and after a few months meeting with the psychiatrist, an ADHD packet, etc, he gave a diagnosis of "Unspecified Attention Deficit Disorder; Unspecified Depressive Disorder", and started me on Methylphenidate. I now take the
Jadfre
in
CHADD's Adult ADHD Support
5 years ago
New Here
Hello to all I was hoping for some general advice Diagnosed with under active thyroid 18 months ago which since starting treatment I remain feeling less than 100% even though my bloods are what’s classed as normal I also have Polycystic ovarian syndrome diagnosed just over six months ago I currently
Hello to all I was hoping for some general advice Diagnosed with under active thyroid 18 months ago which since starting treatment I remain feeling less than 100% even though my bloods are what’s classed as normal I also have Polycystic ovarian syndrome diagnosed just over six months ago I currently
Fox78
in
Fibromyalgia Action UK
5 years ago
Is there anyway to reduce my antibodies?
I have high antibodies for both Hasimotos and graves. Does anyone know if you get them lowered? Has anyone tried Naltrexone?
I have high antibodies for both Hasimotos and graves. Does anyone know if you get them lowered? Has anyone tried Naltrexone?
Nat1972
in
Thyroid UK
5 years ago
Low dose naltrexone for Sjogren's?
Just wondering if anybody here has taken or knows anything about low-dose naltrexone in treating Sjogren's sydrome? I read an interesting case report recently and have also heard anecdotal success stories in it's use - https://ldnresearchtrust.org/sites/default/files/sjogrens%20publication.pdf I am currently
Just wondering if anybody here has taken or knows anything about low-dose naltrexone in treating Sjogren's sydrome? I read an interesting case report recently and have also heard anecdotal success stories in it's use - https://ldnresearchtrust.org/sites/default/files/sjogrens%20publication.pdf I am currently
jen7730
in
The Australian Sjögren's Syndrome Association
5 years ago
Low heart rate 2 months after Pacemaker and AV node ablation
I have ME and also had Paroxysmal Atrial Fibrillation. [Fast irregular heart rate} Last December I got a pacemaker and my AV node was destroyed so I am dependent on a pacemaker. My resting hearrate settled at about 70 after the pacemaker. I started with Low dose naltrexone [LDN] 2 months ago and am
I have ME and also had Paroxysmal Atrial Fibrillation. [Fast irregular heart rate} Last December I got a pacemaker and my AV node was destroyed so I am dependent on a pacemaker. My resting hearrate settled at about 70 after the pacemaker. I started with Low dose naltrexone [LDN] 2 months ago and am
Bettiehough
in
AF Association
5 years ago
Low Dose Naltrexone anyone?
Hi, I was just wondering if anyone has tried Low Dose Naltrexone for PBC? there are so many clinical trials happening for all sorts of autoimmune diseases with LDN and many responding so well. I am asking as the fatigue and itching is driving me crazy. I am a full-time mother to a gorgeous little boy
Hi, I was just wondering if anyone has tried Low Dose Naltrexone for PBC? there are so many clinical trials happening for all sorts of autoimmune diseases with LDN and many responding so well. I am asking as the fatigue and itching is driving me crazy. I am a full-time mother to a gorgeous little boy
KiwiPBC
in
PBC Foundation
5 years ago
Could it be hormones?
I feel like I've experienced a HUGE increase in anxiety and panic. It used to be that I would have episodes of panic (tears, quickened pulse) that could be directly traced to a cause (usually involving social anxiety). Out of nowhere I think I started experiencing panic attacks. On a random day in mid-January
I feel like I've experienced a HUGE increase in anxiety and panic. It used to be that I would have episodes of panic (tears, quickened pulse) that could be directly traced to a cause (usually involving social anxiety). Out of nowhere I think I started experiencing panic attacks. On a random day in mid-January
written
in
Anxiety and Depression Support
5 years ago
Sebastian Denison, RPh, FAARM (candidate), received his BSc in Pharmacy at the University of British Columbia.
Sebastian Denison, RPh, FAARM (candidate), received his BSc in Pharmacy at the University of British Columbia. He worked at Northmount Pharmacy in North Vancouver for 11 years, specializing in HRT, veterinary, pain and sports compounding. He also was the Manager of Pharmacy Operations with the 2010 Vancouver
Sebastian Denison, RPh, FAARM (candidate), received his BSc in Pharmacy at the University of British Columbia. He worked at Northmount Pharmacy in North Vancouver for 11 years, specializing in HRT, veterinary, pain and sports compounding. He also was the Manager of Pharmacy Operations with the 2010 Vancouver
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
Allergy to the sun
I have been diagnosed with solar urticaria and have tried all sunscreena, all combinations of antihistamines and Xolair injections, (which worked for a short time then quit working.) Has anyone tried PUVA (photosensitivity treatments) or low dose naltrexone? All I can do is wear many layers of clothes
I have been diagnosed with solar urticaria and have tried all sunscreena, all combinations of antihistamines and Xolair injections, (which worked for a short time then quit working.) Has anyone tried PUVA (photosensitivity treatments) or low dose naltrexone? All I can do is wear many layers of clothes
skinnylynne
in
MY SKIN
5 years ago
Message from Dr Sarah Zielsdorf - Please can you help and share?
Message from Dr Sarah Zielsdorf - Please can you help and share? The Institute For Personal Development, Department of Functional Medicine is doing a survey with intention to publish data on thyroid treatment options and Low Dose Naltrexone (LDN) with regard to patient outcomes and preferences at the
Message from Dr Sarah Zielsdorf - Please can you help and share? The Institute For Personal Development, Department of Functional Medicine is doing a survey with intention to publish data on thyroid treatment options and Low Dose Naltrexone (LDN) with regard to patient outcomes and preferences at the
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
Can LDN help my son, diagnosed with oligoarticular JIA?
My son is a year and 10 months old and he was diagnosed with oligoarticular JIA last December. He is taking prednisone and methotrexate and I want him off them as soon as I can, but I'm looking for something that will work so he doesn't suffer with the swelling and pain he had before diagnosis. I'm trying
My son is a year and 10 months old and he was diagnosed with oligoarticular JIA last December. He is taking prednisone and methotrexate and I want him off them as soon as I can, but I'm looking for something that will work so he doesn't suffer with the swelling and pain he had before diagnosis. I'm trying
Clairelouise1982
in
LDN Research Trust
5 years ago
Feeling significantly better on ldn
Out of desperation, I started a new therapy, low dose naltrexone. This is used in high amounts to reduce opioid cravings. Apparently it can be used in much smaller doses to treat chronic pain. It binds to the opioid receptors, and creates natural endorphins. I was skeptical, but OMG it works!!!! Last
Out of desperation, I started a new therapy, low dose naltrexone. This is used in high amounts to reduce opioid cravings. Apparently it can be used in much smaller doses to treat chronic pain. It binds to the opioid receptors, and creates natural endorphins. I was skeptical, but OMG it works!!!! Last
Justdrea81
in
Functional Neurological Disorder - FND Hope
5 years ago
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