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Experiences with
Myocarditis
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Feeling defeated
How on earth am I continuing to feel worse with
myocarditis
after this long?! Been to gp who just said I looked alright . Constant feeling of weakness with chest pain & claminess.
How on earth am I continuing to feel worse with
myocarditis
after this long?! Been to gp who just said I looked alright . Constant feeling of weakness with chest pain & claminess.
Helly75
in
British Heart Foundation
3 years ago
Candesarten Help.
I am a 33 year old male with post vaccine
myocarditis
. Since starting the candesarten I have started to have chest pain and upper stomach pain. Also getting a feeling of a lump in throat with a squeezing sensation that comes and goes.
I am a 33 year old male with post vaccine
myocarditis
. Since starting the candesarten I have started to have chest pain and upper stomach pain. Also getting a feeling of a lump in throat with a squeezing sensation that comes and goes.
Terrywill12
in
British Heart Foundation
3 years ago
Myopericarditis
Hi all, I was diagnosed with
myocarditis
and pericarditis in May this year and am now in my 6th month of recovery. I have felt very alone with my diagnosis as no one I know ( including me) had ever heard of the condition.
Hi all, I was diagnosed with
myocarditis
and pericarditis in May this year and am now in my 6th month of recovery. I have felt very alone with my diagnosis as no one I know ( including me) had ever heard of the condition.
MazzieP
in
British Heart Foundation
3 years ago
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Heart palpitations since vaccine. Myocarditis?
Myocarditis
? I had my second moderna vaccine 21/9/21. I was flu like a couple of days, then heart palpitations started. I wake a few times in the night gasping for breath or with my heart one pound like it's missed a beat. I can't run, workout or yoga anymore.
Myocarditis
? I had my second moderna vaccine 21/9/21. I was flu like a couple of days, then heart palpitations started. I wake a few times in the night gasping for breath or with my heart one pound like it's missed a beat. I can't run, workout or yoga anymore.
Heidi00
in
British Heart Foundation
3 years ago
Another day spent in A&E
Had an echo of sorts & sent home with steroids that I dont want to take ,
myocarditis
sucks so much 😞
Had an echo of sorts & sent home with steroids that I dont want to take ,
myocarditis
sucks so much 😞
Helly75
in
British Heart Foundation
3 years ago
Major Israeli study: Risk of heart inflammation after COVID shots is very small
“There is a great concern about the benefit-to-risk ratio of younger individuals in the context of
myocarditis
,” Fauci said.
“There is a great concern about the benefit-to-risk ratio of younger individuals in the context of
myocarditis
,” Fauci said.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Myocarditis
Good evening all my does angina and
myocarditis
come as one ?
Good evening all my does angina and
myocarditis
come as one ?
Treeclimber62
in
British Heart Foundation
3 years ago
Pfizer vaccine and Myocarditis
Hello, I'm currently at the 20th week of my pregnancy and i've received my 2nd covid jab (Pfizer) couple of days ago ( which I was advised by my midwife) and I'm having some really disturbing things happening to me ever since such as chest pain , eye pain, body aches, sever headaches, especially when
Hello, I'm currently at the 20th week of my pregnancy and i've received my 2nd covid jab (Pfizer) couple of days ago ( which I was advised by my midwife) and I'm having some really disturbing things happening to me ever since such as chest pain , eye pain, body aches, sever headaches, especially when
Bella0906
in
British Heart Foundation
3 years ago
Off Pred - cortisol level high - feeling awful
😅 ( I also have the complication of post vaccine
myocarditis
/ pericarditis / which is improved thankfully ) Thanks in advance
😅 ( I also have the complication of post vaccine
myocarditis
/ pericarditis / which is improved thankfully ) Thanks in advance
Ballywilliam
in
PMRGCAuk
3 years ago
could this be myocarditis?
Does this sound like
myocarditis
symptoms? I am going to push for an mri but does this have to be done with contrast?
Does this sound like
myocarditis
symptoms? I am going to push for an mri but does this have to be done with contrast?
hopeful_73
in
British Heart Foundation
3 years ago
Wait 3 months before second dose?
https://www.verywellhealth.com/delaying-second-covid-vaccine-dose-5185308 As far as vaccinations for children and for boys in particular, I just heard an infectious disease physician from John’s Hopkins say that the hospitalizations of boys for
myocarditis
is six times that of their hospitalizations
https://www.verywellhealth.com/delaying-second-covid-vaccine-dose-5185308 As far as vaccinations for children and for boys in particular, I just heard an infectious disease physician from John’s Hopkins say that the hospitalizations of boys for
myocarditis
is six times that of their hospitalizations
Luap001
in
CLL Support
3 years ago
Lupus and Heart Disease: Why You’re at Increased Risk
Myocarditis
This is an inflammation of the heart muscle itself. It often causes a rapid heartbeat and enlargement of the heart.
Myocarditis
This is an inflammation of the heart muscle itself. It often causes a rapid heartbeat and enlargement of the heart.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Cardiologist appointment (update)
They said I've had multiple episodes of
myocarditis
over the last 3 years, which would explain my symptoms. I've spent those 3 years not being believed or being told it's a mental health problem & feeling like I'd gone insane. Today for the first time I felt believed validated & listened to.
They said I've had multiple episodes of
myocarditis
over the last 3 years, which would explain my symptoms. I've spent those 3 years not being believed or being told it's a mental health problem & feeling like I'd gone insane. Today for the first time I felt believed validated & listened to.
Helly75
in
British Heart Foundation
3 years ago
Colchicine with Pfizer shot to mitigate myocarditis risk.
Does anyone know if it’s ok to take colchicine before or after the Covid vaccine? Are there any contraindications? Thanks.
Does anyone know if it’s ok to take colchicine before or after the Covid vaccine? Are there any contraindications? Thanks.
Enasxristos
in
ABDA
3 years ago
Myocarditis
Still having the worst pain after almost 5 months, heart rate & rhythm all over the place ,I cant lay down or seem to settle . Many visits to A&E last time they said I'm wasting time going there. At this point I'm that scared I'm having panic attacks & crying all the time,I dont know what to do
Still having the worst pain after almost 5 months, heart rate & rhythm all over the place ,I cant lay down or seem to settle . Many visits to A&E last time they said I'm wasting time going there. At this point I'm that scared I'm having panic attacks & crying all the time,I dont know what to do
Helly75
in
British Heart Foundation
3 years ago
How long did you wait for MEI results
I had an mri scan last week, to look for possible evidence of
myocarditis
or cardiomyopathy, still not had any results. How long can I expect to wait and do they write with results or call? Thanks
I had an mri scan last week, to look for possible evidence of
myocarditis
or cardiomyopathy, still not had any results. How long can I expect to wait and do they write with results or call? Thanks
Mememe11
in
British Heart Foundation
3 years ago
Pericarditis, Myocarditis, perimyocarditis after pfizer vaccination.
Is there anyone else with post vaccine
Myocarditis
, pericarditis, or perimyocarditis out there? How has your recovery been?
Is there anyone else with post vaccine
Myocarditis
, pericarditis, or perimyocarditis out there? How has your recovery been?
Ruru83
in
British Heart Foundation
3 years ago
Post Covid Vasulitis
Feeling alone, it's also looking like heart damage as now I've been diagnosed with
myocarditis
. Feels a constant battle. Any pointers gratefully received.
Feeling alone, it's also looking like heart damage as now I've been diagnosed with
myocarditis
. Feels a constant battle. Any pointers gratefully received.
M3LZY
in
Vasculitis UK
3 years ago
Just been diagnosed with myocarditis on top of vasculitis. Feeling vulnerable and scared. Anyone else been diagnosed with this. TIA ❤
Myocarditis
with vasculitis
Myocarditis
with vasculitis
M3LZY
in
Vasculitis UK
3 years ago
Myocarditis 6 month recovery is almost up, has anyone gone back to working out regularly?
Morning all! Only just found this forum by accident, wish I’d seen it earlier. Anyway, roughly 6 months ago I was out for a run and without warning experienced severe chest pain. I’m a pretty fit guy, a usual week is playing football twice, a couple of runs and/or gym sessions and my job involves me
Morning all! Only just found this forum by accident, wish I’d seen it earlier. Anyway, roughly 6 months ago I was out for a run and without warning experienced severe chest pain. I’m a pretty fit guy, a usual week is playing football twice, a couple of runs and/or gym sessions and my job involves me
EliotL1984
in
British Heart Foundation
3 years ago
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