Post Covid Vasulitis

[M3LZY]

Long Covid Vasculitis. I feel stuck my aorta is sore. Possible intestinal bleeding. I've pushed for a scan which is next Monday. Suspect calf clot today. It seems aggressive. I have no meds, feel left to get on with it. My distolic is high. And my weight is still falling off me. Feeling alone, it's also looking like heart damage as now I've been diagnosed with myocarditis. Feels a constant battle. Any pointers gratefully received.

[Mooka]

I’m so sorry you are going through this feeling alone. I can’t help with your symptoms as I have a different type of vasculitis but I think a lot of us have felt how you do now. You haven’t said if you have a vasculitis specialist. You certainly sound like you need one and they can then tie up with the different departments (well that’s the theory anyway). Can I suggest you give the helpline a call. If you are in the U.K. they will be able to give you details of a specialist to be referred to. I hope you get the help you need soon. Do let us know how your scan goes.

[M3LZY in reply to Mooka]

Thank you so much ❤