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Experiences with
Mycophenolate
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Looking for advice please
I have tried and been on a combination of Methotrexate,
mycophenolate
, hydroxychloroquin (maximum dose), prednisolone, IV Epoprostenol infusion, amlopodene, sildenafil (maximum dose) and currently cannabis oil. I have yet to find an effective medication that combats all of the symptoms.
I have tried and been on a combination of Methotrexate,
mycophenolate
, hydroxychloroquin (maximum dose), prednisolone, IV Epoprostenol infusion, amlopodene, sildenafil (maximum dose) and currently cannabis oil. I have yet to find an effective medication that combats all of the symptoms.
Lisagill
in
LUPUS UK
6 years ago
HP
I take 3000 mg of CellCept /
Mycophenolate
daily which is the max. 15 MG Prednisone, assorted puffers and pills all from Mayo recommendation.
I take 3000 mg of CellCept /
Mycophenolate
daily which is the max. 15 MG Prednisone, assorted puffers and pills all from Mayo recommendation.
C0life18
in
Asthma Community Forum
6 years ago
Headaches aps and sle
So I know it’s not that and the only thing that’s changed recently is my steroid dose and
mycophenolate
had been increased as I’ve suffered a flare this last 6 wks and still off work from it. Any ideas as I’m getting so drained so quickly and I also get the headache in the night or wake with it.
So I know it’s not that and the only thing that’s changed recently is my steroid dose and
mycophenolate
had been increased as I’ve suffered a flare this last 6 wks and still off work from it. Any ideas as I’m getting so drained so quickly and I also get the headache in the night or wake with it.
Sara_A
in
LUPUS UK
6 years ago
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Your experiences of Mycophenolate
Are you taking this drug? I have high hopes when I start it within the next month for my interstitial lung disease. I also hope it will help improve my crippling osteoarthritis of my spine. I would love to hear your experiences, good or bad. Thank you. Jayne
Are you taking this drug? I have high hopes when I start it within the next month for my interstitial lung disease. I also hope it will help improve my crippling osteoarthritis of my spine. I would love to hear your experiences, good or bad. Thank you. Jayne
GingerCatJayne
in
Lung Conditions Community Forum
6 years ago
mycophenolate
has anyone had
mycophenolate
suggested as a medication after a course of steroids to do with immflamation/sjogrens disease. x
has anyone had
mycophenolate
suggested as a medication after a course of steroids to do with immflamation/sjogrens disease. x
Mandypandy1969
in
Fibromyalgia Action UK
6 years ago
idiopathic cerebellar ataxia
Sheffield where I am being treated tried
mycophenolate
in January but I couldn't handle it . jt made me sick and I was told there is nothing else. have you been there I sometimes feel whats the use. let me know how you feel
Sheffield where I am being treated tried
mycophenolate
in January but I couldn't handle it . jt made me sick and I was told there is nothing else. have you been there I sometimes feel whats the use. let me know how you feel
patsyday
in
Ataxia UK
6 years ago
Dribbling/steroids/mycophenolate
I don't like the sound of the
mycophenolate
and neither does my mum. I have also been increased on gabapentin to 500mg 3 X a day from 400mg a day.
I don't like the sound of the
mycophenolate
and neither does my mum. I have also been increased on gabapentin to 500mg 3 X a day from 400mg a day.
Mandypandy1969
in
Fibromyalgia Action UK
6 years ago
lupus or/and fibromialgia?
I was told by rheumy to keep a pain diary and if the steroids helped that he would put me on
mycophenolate
which I don't like the sound of with the side effects. I am just wondering if it could be both lupus and fibromialgia.
I was told by rheumy to keep a pain diary and if the steroids helped that he would put me on
mycophenolate
which I don't like the sound of with the side effects. I am just wondering if it could be both lupus and fibromialgia.
Mandypandy1969
in
LUPUS UK
6 years ago
The good and the bad of taking steroids
It looks as though taking the immune suppresent drug
Mycophenolate
has turned a benign sore on my cheek to a low level skin cancer (very treatable accoring to my doctor ) Ah well if all this what it takes to keep me alive so be it.
It looks as though taking the immune suppresent drug
Mycophenolate
has turned a benign sore on my cheek to a low level skin cancer (very treatable accoring to my doctor ) Ah well if all this what it takes to keep me alive so be it.
Anneinoxon
in
Lung Conditions Community Forum
6 years ago
Aortitis, now might have to start cyclophosphamide
I didnt realise that
mycophenolate
was the strongest immunosuppressant, as informed by my consultant.
I didnt realise that
mycophenolate
was the strongest immunosuppressant, as informed by my consultant.
Suzycat
in
Vasculitis UK
6 years ago
Stopping Limited SSc meds temporarily
I’ve been googling and see if you can stop
Mycophenolate
and Hydroxychloroquine suddenly and it looks like you can. The effects of Hydroxy seem to stay in your system for some time but not so sure about
Mycophenolate
.
I’ve been googling and see if you can stop
Mycophenolate
and Hydroxychloroquine suddenly and it looks like you can. The effects of Hydroxy seem to stay in your system for some time but not so sure about
Mycophenolate
.
ECGordon
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Ataxia medication
Hi is anyone on a medication called CellCept
mycophenolate
mofeti?
Hi is anyone on a medication called CellCept
mycophenolate
mofeti?
boxerattims
in
Ataxia UK
6 years ago
Sjogren's and Breast Cancer.
As I was having Chemo I had to stop taking
Mycophenolate
which was fine.
As I was having Chemo I had to stop taking
Mycophenolate
which was fine.
bones-bones
in
LUPUS UK
6 years ago
Mycophenolate and pregnancy
To the ladies taking
mycophenolate
, does this medication make it harder to become pregnant
To the ladies taking
mycophenolate
, does this medication make it harder to become pregnant
Tash1987
in
LUPUS UK
6 years ago
Mycophenolate mophetil
Iam a scleroderma patient and I started
mycophenolate
2 days ago. Is it possible that it causes abdominal pain? Of course it is very soon to talk side effects, but I would like to know if anyone had this experience. Also I find it hard to swallow the pills. Had anyone had the sirop instead ?
Iam a scleroderma patient and I started
mycophenolate
2 days ago. Is it possible that it causes abdominal pain? Of course it is very soon to talk side effects, but I would like to know if anyone had this experience. Also I find it hard to swallow the pills. Had anyone had the sirop instead ?
boome
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Improve your condition
If taking
mycophenolate
- try to take 5/6 tablets daily as research has shown this can stabilise your condition and in some cases improve it. 4.
If taking
mycophenolate
- try to take 5/6 tablets daily as research has shown this can stabilise your condition and in some cases improve it. 4.
NSV69
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Mycophenolate Mofetil–Induced Neutropenic Sepsis
Hi all, on the 18th June, I went to me GP for a routine checkup, and he was not happy with my breathing. He referred my, as a precaution direct to the local combined assessment centre for tests etc, and he wanted to rule out a blood clot on my Lung. I blamed it on my anti rejection meds Advagraf and
Hi all, on the 18th June, I went to me GP for a routine checkup, and he was not happy with my breathing. He referred my, as a precaution direct to the local combined assessment centre for tests etc, and he wanted to rule out a blood clot on my Lung. I blamed it on my anti rejection meds Advagraf and
George_2017
in
British Liver Trust
6 years ago
Mycophenolate and periods
I wonder if anyone has experienced a change in their cycle after starting
mycophenolate
. I have had troublesome periods for years, more so in the last two years as disease activity increased prior to diagnosis.
I wonder if anyone has experienced a change in their cycle after starting
mycophenolate
. I have had troublesome periods for years, more so in the last two years as disease activity increased prior to diagnosis.
flap7
in
LUPUS UK
6 years ago
Shingles jab
Hi All, I’ve been on
Mycophenolate
for almost 6 months and have been offered the shingles jab by my GP. I checked with my Rheumatologist and he said to go ahead. On checking the information leaflet about taking
Mycophenolate
, it says to avoid anything with a live vaccine.
Hi All, I’ve been on
Mycophenolate
for almost 6 months and have been offered the shingles jab by my GP. I checked with my Rheumatologist and he said to go ahead. On checking the information leaflet about taking
Mycophenolate
, it says to avoid anything with a live vaccine.
Misty2552017
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Mycophenolate update after Rheumy appt
I saw my Rheumatologist earlier today to review my experience on
Mycophenolate
. I was feeling quite bright as I'd had encouraging results since a few weeks after starting it. My sun sensitivity went way down, which was the biggest and best surprise. The fatigue seemed to dry up -- amazing.
I saw my Rheumatologist earlier today to review my experience on
Mycophenolate
. I was feeling quite bright as I'd had encouraging results since a few weeks after starting it. My sun sensitivity went way down, which was the biggest and best surprise. The fatigue seemed to dry up -- amazing.
panda2
in
LUPUS UK
6 years ago
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