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Experiences with
Mycophenolate
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Uncomfortable Bladder /infections
He seemed pleasant but made no impact at all by saying just stay in
Mycophenolate
and return in six months! He also said it wasn't really necessary to have monthly blood tests and every two months will do. I feel there's nobody there now that can help or in fact is interested - what to do?
He seemed pleasant but made no impact at all by saying just stay in
Mycophenolate
and return in six months! He also said it wasn't really necessary to have monthly blood tests and every two months will do. I feel there's nobody there now that can help or in fact is interested - what to do?
Jetxav
in
NRAS
6 years ago
Mycophenolate
Hi everybody I may be prescribed
mycophenolate
soon. The side effects sound awful. I'd like to know the experience you've had with it. The respiratory doctor seemed to think I should be getting some treatment for my lungs.
Hi everybody I may be prescribed
mycophenolate
soon. The side effects sound awful. I'd like to know the experience you've had with it. The respiratory doctor seemed to think I should be getting some treatment for my lungs.
Phyll
in
Lung Conditions Community Forum
6 years ago
Pro-biotic
I've been on
mycophenolate
since July. Rhumotologist is going try and take me off them at the end of the month. I'm hoping I can do without them. I'm also on hydroxychoroquine (maximum dose I can have for my weight). Long story short I have had a terrible 7 months I've been very anxious.
I've been on
mycophenolate
since July. Rhumotologist is going try and take me off them at the end of the month. I'm hoping I can do without them. I'm also on hydroxychoroquine (maximum dose I can have for my weight). Long story short I have had a terrible 7 months I've been very anxious.
nutler
in
LUPUS UK
6 years ago
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Taking mycophenolate mofetil abroad
Hi everyone my son Fin is going to Spain in a week. Does anyone know if there is any issue with taking MMF a) on a plane and b) into Spain? None of my family have ever travelled with medication so I am new to this! Thanks and Happy Easter to you all!
Hi everyone my son Fin is going to Spain in a week. Does anyone know if there is any issue with taking MMF a) on a plane and b) into Spain? None of my family have ever travelled with medication so I am new to this! Thanks and Happy Easter to you all!
Deegraham
in
LUPUS UK
6 years ago
Does my daughter have ana negative neurophyschiatric SLE? Cyclophosamide side effects?
She started
Mycophenolate
Mofetil in October 2017 but had another relapse in January 2018 and has been in hospital for most of this year. She is currently having further plasmatheresis following methlprednisolo in January 2018.
She started
Mycophenolate
Mofetil in October 2017 but had another relapse in January 2018 and has been in hospital for most of this year. She is currently having further plasmatheresis following methlprednisolo in January 2018.
Vickysmum
in
LUPUS UK
6 years ago
Prednisolone & Mycophenolate withdrawal symptoms - severe night sweats and hot flushes. Is this withdrawal symptoms?
Please can anyone advice me if they got terrible night sweats, and hot flushes through the day, when withdrawing from Prednisolone, and how long it will take to improve. I have been reducing by 1mg a month. Now on 8&1/2mg. Please help.
Please can anyone advice me if they got terrible night sweats, and hot flushes through the day, when withdrawing from Prednisolone, and how long it will take to improve. I have been reducing by 1mg a month. Now on 8&1/2mg. Please help.
lindyloo25
in
PMRGCAuk
6 years ago
Has Acid reflux caused my lung disease?
Was diagnosed with hypersensitivity pneumonitis several months ago now, and been on a course of
mycophenolate
mofetil which over a two month period has increased every two weeks: As 50% of my lungs are damaged.
Was diagnosed with hypersensitivity pneumonitis several months ago now, and been on a course of
mycophenolate
mofetil which over a two month period has increased every two weeks: As 50% of my lungs are damaged.
Hidden
in
Lung Conditions Community Forum
6 years ago
Is this a Relapse?
Diagnosed with MPA Wegeners in Oct 2015 and put onto Prednisolone and
Mycophenolate
. Prednisolone was reduced and stopped by early 2017 but continued on MMF 2 x 500mg morning and 2 x 500mg evenings. After bloods being monitored monthly and stable results for all the rest of 2017.
Diagnosed with MPA Wegeners in Oct 2015 and put onto Prednisolone and
Mycophenolate
. Prednisolone was reduced and stopped by early 2017 but continued on MMF 2 x 500mg morning and 2 x 500mg evenings. After bloods being monitored monthly and stable results for all the rest of 2017.
tisme2
in
Vasculitis UK
6 years ago
Help
Started on
mycophenolate
yesterday and about 5 hours after 2nd dose I was violently sick. I did on and off through the night and now have strained muscles. Some diahorrea now as well. Anyone else had this reaction?
Started on
mycophenolate
yesterday and about 5 hours after 2nd dose I was violently sick. I did on and off through the night and now have strained muscles. Some diahorrea now as well. Anyone else had this reaction?
janann
in
LUPUS UK
6 years ago
Conflicting Blood test results
My lungs are really bad and it seems like all my doctors, rheumatology and thoracic, both are really good, Are unsure about treatment if
mycophenolate
doesn't stabilise me.
My lungs are really bad and it seems like all my doctors, rheumatology and thoracic, both are really good, Are unsure about treatment if
mycophenolate
doesn't stabilise me.
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
MMF Withdrawals or not
Diagnosed with MPA wegners with CKD 3 years ago and having been on prednisolone with
mycophenolate
over the last two years, then tapered off the pred, and now since mid January have also stopped taking the
mycophenolate
because all my blood tests showed as stable over the last year.
Diagnosed with MPA wegners with CKD 3 years ago and having been on prednisolone with
mycophenolate
over the last two years, then tapered off the pred, and now since mid January have also stopped taking the
mycophenolate
because all my blood tests showed as stable over the last year.
tisme2
in
Vasculitis UK
6 years ago
Medications
Is anyone on these medications and how are you coping with them prednisolone Lansoprazole Hydroxychloroquine
Mycophenolate
Ramipril
Is anyone on these medications and how are you coping with them prednisolone Lansoprazole Hydroxychloroquine
Mycophenolate
Ramipril
Tash1987
in
LUPUS UK
6 years ago
Flare
I had to stop taking
mycophenolate
mofetil last week, due to side effects (acutely sore joints and feeling yuch and not really working for me that well). Started on 40 mgs prednisilone daily until I see my rheumatologist in 3 weeks time. Had a flare up over the weekend.
I had to stop taking
mycophenolate
mofetil last week, due to side effects (acutely sore joints and feeling yuch and not really working for me that well). Started on 40 mgs prednisilone daily until I see my rheumatologist in 3 weeks time. Had a flare up over the weekend.
Mmrr
in
NRAS
6 years ago
Mycophenolate and loss of appetite...?
Hi does anyone else suffer with this as a side effect of
mycophenolate
? I was on it and had no appetite at all for several weeks was only eating biscuits had about 3 proper meals in a 6 week period.
Hi does anyone else suffer with this as a side effect of
mycophenolate
? I was on it and had no appetite at all for several weeks was only eating biscuits had about 3 proper meals in a 6 week period.
Sara_A
in
LUPUS UK
6 years ago
Booster injections
Hi I am currently taking
mycophenolate
but have been advised to stop it for at least 2 weeks as i am going abroad in 3 weeks and having booster injections next Tues. Had anyone else been advised to do this when going abroad and having vacinations?
Hi I am currently taking
mycophenolate
but have been advised to stop it for at least 2 weeks as i am going abroad in 3 weeks and having booster injections next Tues. Had anyone else been advised to do this when going abroad and having vacinations?
NSV69
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Finally starting treatment mycophenolate mofetil
They are starting me on the immunosuppressant
mycophenolate
mofetil and putting me back on steroids and monitoring for 4 months. I'm very happy I'm finally moving forward with treatment.
They are starting me on the immunosuppressant
mycophenolate
mofetil and putting me back on steroids and monitoring for 4 months. I'm very happy I'm finally moving forward with treatment.
ange726
in
LUPUS UK
6 years ago
Filling in PIP form
Hi Everyone New here just received forms for pip, totally lost on how to fill it in, my condition is NSIP a lung disease, just completed chemo to suppress this condition and going onto
Mycophenolate
, which acts the same as chemo to stop this disease progression?
Hi Everyone New here just received forms for pip, totally lost on how to fill it in, my condition is NSIP a lung disease, just completed chemo to suppress this condition and going onto
Mycophenolate
, which acts the same as chemo to stop this disease progression?
TBush
in
Fibromyalgia Action UK
6 years ago
Diarrhea and mycophenolate
Hi, my son has Mpa from March 2017 and he takes prednisone,
mycophenolate
(myfortic) and ramipril. He's doing well apart from diarrhea caused by
mycophenolate
. He had to stop mmf for a week and he became almost costipated.
Hi, my son has Mpa from March 2017 and he takes prednisone,
mycophenolate
(myfortic) and ramipril. He's doing well apart from diarrhea caused by
mycophenolate
. He had to stop mmf for a week and he became almost costipated.
Wizzi
in
Vasculitis UK
6 years ago
Has my daughter got cerebral vasculitis? Google 'Girl with mystery illness' photos & illness description were in newspapers Nov 2016
Vicky's had antibiotics, steroids, immunoglobulin, plasmatherasis, rituximab and been on
Mycophenolate
Mofetil since Oct 17, with methlprednisolo intravenous steroids last week, the rash is not disappearing, however, speech has improved, consultants are not sure what to do next.
Vicky's had antibiotics, steroids, immunoglobulin, plasmatherasis, rituximab and been on
Mycophenolate
Mofetil since Oct 17, with methlprednisolo intravenous steroids last week, the rash is not disappearing, however, speech has improved, consultants are not sure what to do next.
Vickysmum
in
Vasculitis UK
6 years ago
Mycophenolate
My Rheumatologist has suggested that I start taking
Mycophenolate
and I have an appointment to see a nurse specialist to explain how to take it. My question is has anyone out there taken this and how did they get on? I would really welcome your experience! Many thanks Viv
My Rheumatologist has suggested that I start taking
Mycophenolate
and I have an appointment to see a nurse specialist to explain how to take it. My question is has anyone out there taken this and how did they get on? I would really welcome your experience! Many thanks Viv
Misty2552017
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
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