Mycophenolate and periods: I wonder if anyone has... - LUPUS UK

LUPUS UK

32,248 members28,608 posts

Mycophenolate and periods

flap7 profile image
2 Replies

I wonder if anyone has experienced a change in their cycle after starting mycophenolate. I have had troublesome periods for years, more so in the last two years as disease activity increased prior to diagnosis. I've had 6 months of depo provera injections which helped initially for a few weeks but I've been bleeding every day since March. I began Myfenax four weeks ago and for the last week, my period has finally stopped. As I haven't had a clear week like this for years, I'm really happy but wondering if this is the MMF at work? I had queried abnormal bleeding with my rheumy as another aspect of SLE but she was dismissive, putting it down to my age; I am 46 so she feels that it's 'normal' (she's great otherwise). This is clearly not normal so I'd be grateful for any input, thanks.

Written by
flap7 profile image
flap7
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Melba1 profile image
Melba1

I’ve found quite a few lupus drugs have mucked up my periods. After rituximab I had them every 2-3 weeks for a while then on methotrexate they seem to come whenever they choose - 1-4 weeks and very heavy. It does menstrual dysfunction in the list of side effects for methotrexate but not sure for MMF. Maybe check with GP? Not sure rheumys want to talk periods with us, my Male rheumy looked a bit embarrassed when I asked!

flap7 profile image
flap7 in reply toMelba1

Thanks Melba1, the unpredictability is a real pain, isn't it? I know rheumys can be a strange lot but I guess it's not their 'area'. However as lupus can affect any area of the body, I don't see why the womb is excluded. It has been an issue for me for years which is why I'm wondering if Mycophenolate has actually settled things down. In that case lupus may have been the culprit all along. My GP is going through a list of interventions; next stop gynae consult.

Not what you're looking for?

You may also like...

Mycophenolate and feeling awful after a month -- normal??

Hi everyone, I've been taking my generous concoction of meds seemingly a-ok, until now. I started...
panda2 profile image

Mycophenolate update after Rheumy appt

Hi all, It's the wee hours of the morning. Can't sleep -- but that's another story. I saw my...
panda2 profile image

Mycophenolate intolerant

I posted a couple of days ago wondering if some of my recent symptoms were the result of a reaction...
whisperit profile image

Advice on Mycophenolate pls

Hello everyone! Been a while since I posted and both hydroxy & gabentin have been a huge help,...
MissFG profile image

Mycophenolate

Hi. I'm new to the group. I was diagnosed 6 weeks ago with Lupus Nephritis, the membrane of my...
Sofi2610 profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.