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Mycophenolate
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John Hopkins Medicine organ transplant/covid vaccine study results in mid March2021:few if any antibodies made
The study noted two antirejection medications that cause 5 times less likely for the body to make antibodies enough for protection and my spouse takes one of these antirejection meds (
mycophenolate
called "Cellcept"). My heart sank after reading this.
The study noted two antirejection medications that cause 5 times less likely for the body to make antibodies enough for protection and my spouse takes one of these antirejection meds (
mycophenolate
called "Cellcept"). My heart sank after reading this.
Gardner-NY
in
Kidney Transplant
3 years ago
My AE experience over 4 years.
I was released as an outpatient quite quickly I guess and have spent the last 4 years taking
mycophenolate
and tegretol because of the seizures I had. I have no recollection of my time in hospital or about 3 months prior either, along with some minor gaps in longer term memories.
I was released as an outpatient quite quickly I guess and have spent the last 4 years taking
mycophenolate
and tegretol because of the seizures I had. I have no recollection of my time in hospital or about 3 months prior either, along with some minor gaps in longer term memories.
Superlefty
in
Encephalitis Society
3 years ago
I'm Vaxxed!
Info for the curious or doubtful: I'm 61, have SLE and lupus nephritis and take
mycophenolate
and hydroxychloroquine. I had the Pfizer vaccine, which was painless.
Info for the curious or doubtful: I'm 61, have SLE and lupus nephritis and take
mycophenolate
and hydroxychloroquine. I had the Pfizer vaccine, which was painless.
WinterSwimmer
in
LUPUS UK
3 years ago
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1st covid vaccine booked
Hi I am currently taking
mycophenolate
and prednisolone I was diagnosed in November. I am booked in for my 1st covid vaccine on Monday 1st February. Has anyone had the vaccine that are taking immune suppressions? If so did you experience any side affects?
Hi I am currently taking
mycophenolate
and prednisolone I was diagnosed in November. I am booked in for my 1st covid vaccine on Monday 1st February. Has anyone had the vaccine that are taking immune suppressions? If so did you experience any side affects?
Readyteddy
in
Vasculitis UK
3 years ago
How to excercise with Dermatomyositis
I am currently on
Mycophenolate
and am slowly weaning off Prednisone. I am also Type 1 diabetic and have been for 41 years. I want to ask how people exercise with this condition without being in pain for days later making it not worth it!
I am currently on
Mycophenolate
and am slowly weaning off Prednisone. I am also Type 1 diabetic and have been for 41 years. I want to ask how people exercise with this condition without being in pain for days later making it not worth it!
JoanneMinnie
in
Myositis UK
3 years ago
Covid Vaccine
Lupus, Fibromyalgia and take
mycophenolate
and hydroxy. So pleased to have got it. Hope this helps anyone who is about to get theirs M x Oh and a picture of my cat Waffles in the snow a week ago, so majestic ❤️
Lupus, Fibromyalgia and take
mycophenolate
and hydroxy. So pleased to have got it. Hope this helps anyone who is about to get theirs M x Oh and a picture of my cat Waffles in the snow a week ago, so majestic ❤️
Maddymay65
in
LUPUS UK
3 years ago
Vaccine, ILD & immune suppressants
I am on highest dose of
mycophenolate
. Thanks
I am on highest dose of
mycophenolate
. Thanks
momo17
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
COVID VACCINE
I heard a scientist on the news saying one of them was a live vaccine which I cannot have because I am taking
Mycophenolate
.
I heard a scientist on the news saying one of them was a live vaccine which I cannot have because I am taking
Mycophenolate
.
Carolanne
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
My Vaccine Worries
I managed to stop Pred after about 5 years while I was still on
mycophenolate
but PMR struck with a vengeance soon afterwards and the journey started all over again.
I managed to stop Pred after about 5 years while I was still on
mycophenolate
but PMR struck with a vengeance soon afterwards and the journey started all over again.
joyce69
in
PMRGCAuk
3 years ago
Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology
This applies to: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi
This applies to: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Advise re GCA blurry vision
For the last few weeks my eyesight has become very blurry, I have seen my rheumatologist and he now wants me to take
mycophenolate
mofetil as well, at no point did he suggest I up the pred, I’m worried as my eyesight is getting worse daily.
For the last few weeks my eyesight has become very blurry, I have seen my rheumatologist and he now wants me to take
mycophenolate
mofetil as well, at no point did he suggest I up the pred, I’m worried as my eyesight is getting worse daily.
2013mayo
in
PMRGCAuk
3 years ago
I'm new here
I am 7 mo in on a Prednisone/
Mycophenolate
(MMF) regimen that started at 40 mg/d Pred and 2000 mg/d MMF and now at 5mg/1000 mg/d for past 6 weeks.
I am 7 mo in on a Prednisone/
Mycophenolate
(MMF) regimen that started at 40 mg/d Pred and 2000 mg/d MMF and now at 5mg/1000 mg/d for past 6 weeks.
Hidden
in
C3 Glomerulopathy
3 years ago
Ceptava Mycophenolic acid
Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Willow1414
in
LUPUS UK
3 years ago
DLE (lupus)
I am on
mycophenolate
and steroids. I spoke to my drs and they checked my records and said that because of my age I am still 7th in the order for the covid vaccination? Is this correct I am 62. I have never received a shielding letter?
I am on
mycophenolate
and steroids. I spoke to my drs and they checked my records and said that because of my age I am still 7th in the order for the covid vaccination? Is this correct I am 62. I have never received a shielding letter?
Jadelee28
in
LUPUS UK
3 years ago
Newbie with possible vasculitis
I've been started on tacrolimus and prednisolone for my AIH, but they want to change the tacrolimus to
mycophenolate
instead as this is better for vasculitis they said. My hives, headaches, joint pain and nerve weakness has all eased since I was restarted on the prednisolone at 20mg.
I've been started on tacrolimus and prednisolone for my AIH, but they want to change the tacrolimus to
mycophenolate
instead as this is better for vasculitis they said. My hives, headaches, joint pain and nerve weakness has all eased since I was restarted on the prednisolone at 20mg.
MotherGothel
in
Vasculitis UK
3 years ago
Muscle weakness/shakes - vasculitis or steroids?
Diagnosed with GPA in August, on prednisolone and
Mycophenolate
. No organ issues, sinus pain and muscle loss in arms and legs. Was building up levels of exercise and regaining strength, but went backwards after reducing pred from 30mg to 25mg (started at 45mg).
Diagnosed with GPA in August, on prednisolone and
Mycophenolate
. No organ issues, sinus pain and muscle loss in arms and legs. Was building up levels of exercise and regaining strength, but went backwards after reducing pred from 30mg to 25mg (started at 45mg).
Sparkypatrick
in
Vasculitis UK
3 years ago
Very Interesting Article on the Use of Mycophenolate / Steroids as First Line Treatment for ITP
The following is a very interesting recent article about the use of
Mycophenolate
Mofetil in combination with Corticosteroids as a first line treatment for ITP .... https://www.hematologyadvisor.com/home/conference-coverage/ash-2020/treating-itp-with-first-line-combination-
mycophenolate
-corticosteroid
The following is a very interesting recent article about the use of
Mycophenolate
Mofetil in combination with Corticosteroids as a first line treatment for ITP .... https://www.hematologyadvisor.com/home/conference-coverage/ash-2020/treating-itp-with-first-line-combination-
mycophenolate
-corticosteroid
Anthonyh7
in
ITP Support Association
3 years ago
Advice on new condition
It's still a mystery, I was on a high does of prednisolone which is being taper down and I also started
mycophenolate
about 8 weeks ago. I'm very scared of relapses and I'm still hoping it's an allergy. I'm moving house in a few weeks to get away from the pigeons.
It's still a mystery, I was on a high does of prednisolone which is being taper down and I also started
mycophenolate
about 8 weeks ago. I'm very scared of relapses and I'm still hoping it's an allergy. I'm moving house in a few weeks to get away from the pigeons.
Readyteddy
in
Vasculitis UK
3 years ago
Lefludomide and mycophenolate for GCA treatment
Is there anybody on prednisone and lefludomide and
mycophenolate
?
Is there anybody on prednisone and lefludomide and
mycophenolate
?
Manihiki
in
PMRGCAuk
3 years ago
Query?
I have AIH/PBC and take 1000mg
mycophenolate
and 3 mg of bud. Daily can any one tell me what venerable group I fall in? Just thinking about the vaccine time which I can’t wait to get!
I have AIH/PBC and take 1000mg
mycophenolate
and 3 mg of bud. Daily can any one tell me what venerable group I fall in? Just thinking about the vaccine time which I can’t wait to get!
Suecong
in
British Liver Trust
3 years ago
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