Covid Vaccine: I got called for my vaccine on... - LUPUS UK

LUPUS UK

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Covid Vaccine

Maddymay65
Maddymay65

I got called for my vaccine on Wednesday and had it last night. Glad to report no real ill effects apart from a sore arm and feeling a bit warm. I have S. Lupus, Fibromyalgia and take mycophenolate and hydroxy. So pleased to have got it. Hope this helps anyone who is about to get theirs M x

Oh and a picture of my cat Waffles in the snow a week ago, so majestic ❤️

35 Replies

It can't be said often enough - those are the signs it is doing what it is meant to: making antibodies ...

What a gorgeous cat you have - beautiful picture in the snow ❄️ I must admit I have been worried about having the vaccine but it’s really helping with more and more people on here saying theve had the vaccine with no ill effects so Thankyou for that x

Maddymay65
Maddymay65 in reply to svfarmer

Thank you Waffles does pose so for his photos 😊, day 2 by the way and I feel fine, so pleased and pleased I can post and reassure. 😊stay safe M x

It's good to hear you've had the vaccine and have no real ill effects. My sister had hers a couple of days ago and is much the same. Take care and don't forget to carry on shielding for now. Love your cat. Meg 🤗 xx

Hey Maddy. Got mine today too. Feel clammy, nauseous and bit tired but still able to function. Which one did you get? I got Moderna.

Love the name Waffles! So cute.

I got the Oxford, I feel a bit nauseous too just doing its thing I think, take care, stay safe M x

Cat was supposed to be called Freddy my son changed it and have to admit he suits it haha M x

That’s very reassuring, Do you know which one you had.

Maddymay65
Maddymay65 in reply to Ncut

I had the Oxford, I made sure to ask wanted to know and I was given paperwork on it anyway by doctors and a card reminding me I will still need a second, take care stay safe M x

Ncut
Ncut in reply to Maddymay65

Thanks so much.👍

I'm still waiting for mine, though have been told by my consultant that I must have the Oxfird one, have any anyone else been told this?

bookish
bookish in reply to Teanau22

Did the consultant give you any idea why, just out of interest? Best wishes

Teanau22
Teanau22 in reply to bookish

Hi Bookish, she said that in the trials for Oxford all types of people had been included, autoimmune people also and the directive they have received was that we had to have Oxford.

bookish
bookish in reply to Teanau22

Thank you, that's really helpful. Best wishes to you x

That's great news.... lovely photo 😀

That’s so good to know, I can’t wait, my hubby lost another friend to covid last night, a fit healthy man, was in hospital for four days and died, didn’t break the rules and now his wife has it, they don’t know how they have caught it. Rollout these vaccines quickly please., I’m getting scared.

Maddymay65
Maddymay65 in reply to Lizard28

So sorry to hear about your friends, it's a difficult time, just try and stay safe ans hopefully it won't be long before you are offered a vaccine and/or this virus starts to die out. M x

Lizard28
Lizard28 in reply to Maddymay65

Thank you so much. Take care xx

Love Waffles and photo, xx

Glad it went ok but now I’m confused as I’ve got mine next week and I said I particularly want the Pfizer one simply because the Oxford one is made from live and not as much protection as the Pfizer one. Can anyone advise please I’m on Azathioprine and Prednisone have been for nearly 40 years. I finally agreed to have the flu jab this year and it sent me into a flare. Many thanks in advance xx

Maddymay65
Maddymay65 in reply to Sherryb28

Hi, I don't think the Oxford vaccine is live, I have checked and cannot find any info that says that it is . I think the Pfizer and Oxford are both good to be honest. I will keep on checking though. Take care M x

Sherryb28
Sherryb28 in reply to Maddymay65

That’s very kind of you thank you, all I know it’s not live but came from Chimpanzees live 🤔. Not really sure on the science aspect. Look forward to seeing what you find out xx

Wendy39
Wendy39 in reply to Sherryb28

As far as I am aware none of the vaccines being administered in the UK are live. You are right, lupus patients should not receive live vaccines. But the Pfizer and Oxford Astra Zeneca are not live. Best wishes. Wendy

Sherryb28
Sherryb28 in reply to Wendy39

Thank you Wendy I’m dreading it coz moving house on Friday then vaccination on Sunday and I live on my own. But I’m grateful to be given the opportunity of a vaccine with this dreadful virus xx

Wendy39
Wendy39 in reply to Sherryb28

I know what you mean, we’re all a little apprehensive about it. This whole situation is new and very frightening. I am nervous as well, but will definitely be having the vaccine. Ultimately I’d rather take my chances with that, than Covid. Take care.

Paul_Howard
Paul_HowardAdministrator in reply to Sherryb28

Hi Sherryb28,

I just want to clarify a few things that you have said.

The Oxford/AstraZeneca vaccine is not considered to be a 'live' vaccine - it cannot cause someone to contract COVID-19 and is safe for people who are immunosuppressed. The confusion and spread of misinformation is because the vaccine uses an adenovirus vector, although it is modified and shown to be unable to replicate in humans.

There is currently not sufficient evidence to suggest that the Pfizer/BioNTech vaccine provides better protection that the Oxford/AstraZeneca vaccine. There have been no clinical trials directly comparing them . In trials of the vaccines, efficacy against symptomatic disease seemed higher for the Pfizer/BioNTech vaccine than for the Oxford/AstraZeneca vaccine. However, differences in study setting, study design, study population (age, ethnicity, social demographics, etc), and efficacy endpoints may account for some of the observed differences. All the approved vaccines give very high protection against severe disease, which is the primary aim of the first phase of the programme, and both vaccines have good safety profiles.

More information about lupus and COVID-19 vaccination can be found on our website here - lupusuk.org.uk/covid19-vacc...

Thank you Paul for giving me the information so basically I can have either. Could you please tell me having the first dose which one has greater protection? Thank you in advance

Paul_Howard
Paul_HowardAdministrator in reply to Sherryb28

Hi Sherryb28,

I'm not aware of any currently published evidence comparing the relative efficacy of the first dose between the different vaccines. As it says within our article, any of the available vaccines have good safety profiles and rates of protection. The JCVI does not currently recommend one vaccine over another.

Ok thank you Paul I really appreciate it 😊

Oh, another wonderful photo. That should be framed and on a calendar, etc. So very handsome and the whole scene is purr-fect!

Healing hugs!

I’m just updating my previous reply. I spoke to my sister again today and both her and her husband did get some side effects, such as high temperature and a few other things but they are both fine now. When she checked they were all common symptoms of the vaccine and absolutely nothing to worry about.

Wendy39
Wendy39 in reply to Meg52

Thank you so much for posting this, it’s really helpful and reassuring. Best wishes. Wendy

I had a call on Friday and received the Oxford vaccine on Saturday at the Excel centre in London. I managed to contact my consultant to make sure he was OK with this the day before. He impressed upon me the need for immunosuppressive patients to receive it. I’ve had no side effects apart from a sore, ‘heavy’ arm. For all that are concerned about receiving the vaccine, try emailing your consultants. X

That’s giving me good news I’m getting mine on the 28th definitely having mine

I've been looking around and wondering if I'm in group 6? I'm 23, healthy, but have lupus and am on mycophenylate and hydroxy... Not sure if I should chase the rheumatologist or GP for info? It's been incredibly tough to reach either of them in any case though... Thoughts would be grand :)

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