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Mycophenolate
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Mycophenolate mofetil- CellCept
I just been prescribed
Mycophenolate
Mofetil on an increasing dose for next month and never taken this before. What is the best way to take this medication to fully work 💊- empty /full stomach? Many thanks 🙏
I just been prescribed
Mycophenolate
Mofetil on an increasing dose for next month and never taken this before. What is the best way to take this medication to fully work 💊- empty /full stomach? Many thanks 🙏
MadT
in
LUPUS UK
3 years ago
Second Dose of Pfizer
I don't know if it makes a difference to how people react, but for comparison I take 2g
Mycophenolate
and 400mg hydroxychloroquine and have longstanding SLE with class IV nephritis.
I don't know if it makes a difference to how people react, but for comparison I take 2g
Mycophenolate
and 400mg hydroxychloroquine and have longstanding SLE with class IV nephritis.
WinterSwimmer
in
LUPUS UK
3 years ago
Mepacrine for Lupus Joint Pain?
I’ve just been given a prescription for mepacrine to add to my drug cocktail of hydroxycloriquine,
mycophenolate
, prednisolone and flecainide. The goal is to get a joint pain flare under control. Anyone have any success with this?
I’ve just been given a prescription for mepacrine to add to my drug cocktail of hydroxycloriquine,
mycophenolate
, prednisolone and flecainide. The goal is to get a joint pain flare under control. Anyone have any success with this?
ShannonB
in
LUPUS UK
3 years ago
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Primary Autoimmune Cerebellar Ataxia (PACA)
They treated 22 PACA patients with an immunosuppressive drug called
Mycophenolate
, which reduces the immune response that causes the ataxia. This treatment is expected to prevent further damage to the cerebellum and salvage any sick cells.
They treated 22 PACA patients with an immunosuppressive drug called
Mycophenolate
, which reduces the immune response that causes the ataxia. This treatment is expected to prevent further damage to the cerebellum and salvage any sick cells.
wobblybee
in
Ataxia UK
3 years ago
Utter exhaustion ..........
Having had all the treatments listed ( started on
mycophenolate
which damaged my lungs and kidneys posing more problems)and in nov 2020 completed 2 infusions of Rituximab..... I am in less pain in joints than I was .....but am a exhausted every day sleeping much of it as I feel Completely drained.
Having had all the treatments listed ( started on
mycophenolate
which damaged my lungs and kidneys posing more problems)and in nov 2020 completed 2 infusions of Rituximab..... I am in less pain in joints than I was .....but am a exhausted every day sleeping much of it as I feel Completely drained.
guineapignot
in
Vasculitis UK
3 years ago
Lupus nephritis - fluid retention?
Hello I'm on 3000mg
Mycophenolate
daily (along with other medication for SLE) and have an appointment with Nephrology towards the end of April.
Hello I'm on 3000mg
Mycophenolate
daily (along with other medication for SLE) and have an appointment with Nephrology towards the end of April.
Laurajoy
in
LUPUS UK
3 years ago
Antibody Testing After Getting the COVID-19 Vaccine: What to Know If You’re Immunocompromised
Even if you’re taking a drug that affects immune system function — like methotrexate, rituximab, or
mycophenolate
— and an antibody test shows a low level of antibodies, it’s not possible to know exactly what that means yet.
Even if you’re taking a drug that affects immune system function — like methotrexate, rituximab, or
mycophenolate
— and an antibody test shows a low level of antibodies, it’s not possible to know exactly what that means yet.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Why do some people have to be so b***** horrible?
I need some steroids (Prednisolone) and my new med (
Mycophenolate
), plus I was promised on Friday by one of the GPs that I would be emailed my latest blood tests as I have a phone consultation with Papworth tomorrow and they need the results.
I need some steroids (Prednisolone) and my new med (
Mycophenolate
), plus I was promised on Friday by one of the GPs that I would be emailed my latest blood tests as I have a phone consultation with Papworth tomorrow and they need the results.
Kimlu
in
Lung Conditions Community Forum
3 years ago
Swelling
I’m on
mycophenolate
, hydroxychlorquine, prednisolone and others at the moment Thanks
I’m on
mycophenolate
, hydroxychlorquine, prednisolone and others at the moment Thanks
Nessa173
in
LUPUS UK
3 years ago
Should You Get the COVID-19 Vaccine During a Disease Flare-Up?
You should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics
You should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine
The ACR guidance states that you should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide
The ACR guidance states that you should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Itching skin
I take
mycophenolate
& adaport .
I take
mycophenolate
& adaport .
chicago17
in
Kidney Transplant Patient Support
3 years ago
Covid vaccine with active EGPA
I am in benralizumab and newly introduced
mycophenolate
. The former takes out the eosinophils and the latter the T cells. I have just finished IV steroids I wonder if anyone else had any post Covid vaccine reaction?
I am in benralizumab and newly introduced
mycophenolate
. The former takes out the eosinophils and the latter the T cells. I have just finished IV steroids I wonder if anyone else had any post Covid vaccine reaction?
ElaineRH
in
Vasculitis UK
3 years ago
Reaction to vaccine?
On
mycophenolate
, prednisolone and nefedipine among other things. Due to get vaccinated for covid on Tuesday. I’m aware it might not be so effective for me but just starting to worry a bit about side effects with my already compromised immune system.
On
mycophenolate
, prednisolone and nefedipine among other things. Due to get vaccinated for covid on Tuesday. I’m aware it might not be so effective for me but just starting to worry a bit about side effects with my already compromised immune system.
momo17
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
John Hopkins Medicine organ transplant/covid vaccine study results in mid March2021:few if any antibodies made
The study noted two antirejection medications that cause 5 times less likely for the body to make antibodies enough for protection and my spouse takes one of these antirejection meds (
mycophenolate
called "Cellcept"). My heart sank after reading this.
The study noted two antirejection medications that cause 5 times less likely for the body to make antibodies enough for protection and my spouse takes one of these antirejection meds (
mycophenolate
called "Cellcept"). My heart sank after reading this.
Gardner-NY
in
Kidney Transplant
3 years ago
I'm Vaxxed!
Info for the curious or doubtful: I'm 61, have SLE and lupus nephritis and take
mycophenolate
and hydroxychloroquine. I had the Pfizer vaccine, which was painless.
Info for the curious or doubtful: I'm 61, have SLE and lupus nephritis and take
mycophenolate
and hydroxychloroquine. I had the Pfizer vaccine, which was painless.
WinterSwimmer
in
LUPUS UK
3 years ago
My AE experience over 4 years.
I was released as an outpatient quite quickly I guess and have spent the last 4 years taking
mycophenolate
and tegretol because of the seizures I had. I have no recollection of my time in hospital or about 3 months prior either, along with some minor gaps in longer term memories.
I was released as an outpatient quite quickly I guess and have spent the last 4 years taking
mycophenolate
and tegretol because of the seizures I had. I have no recollection of my time in hospital or about 3 months prior either, along with some minor gaps in longer term memories.
Superlefty
in
Encephalitis Society
3 years ago
1st covid vaccine booked
Hi I am currently taking
mycophenolate
and prednisolone I was diagnosed in November. I am booked in for my 1st covid vaccine on Monday 1st February. Has anyone had the vaccine that are taking immune suppressions? If so did you experience any side affects?
Hi I am currently taking
mycophenolate
and prednisolone I was diagnosed in November. I am booked in for my 1st covid vaccine on Monday 1st February. Has anyone had the vaccine that are taking immune suppressions? If so did you experience any side affects?
Readyteddy
in
Vasculitis UK
3 years ago
How to excercise with Dermatomyositis
I am currently on
Mycophenolate
and am slowly weaning off Prednisone. I am also Type 1 diabetic and have been for 41 years. I want to ask how people exercise with this condition without being in pain for days later making it not worth it!
I am currently on
Mycophenolate
and am slowly weaning off Prednisone. I am also Type 1 diabetic and have been for 41 years. I want to ask how people exercise with this condition without being in pain for days later making it not worth it!
JoanneMinnie
in
Myositis UK
3 years ago
Covid Vaccine
Lupus, Fibromyalgia and take
mycophenolate
and hydroxy. So pleased to have got it. Hope this helps anyone who is about to get theirs M x Oh and a picture of my cat Waffles in the snow a week ago, so majestic ❤️
Lupus, Fibromyalgia and take
mycophenolate
and hydroxy. So pleased to have got it. Hope this helps anyone who is about to get theirs M x Oh and a picture of my cat Waffles in the snow a week ago, so majestic ❤️
Maddymay65
in
LUPUS UK
3 years ago
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