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Mycophenolate
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mycophenolate
Hi everyone. I’m about to start this meditation I’m currently on 23mg steroids plus loads other meds. I have long standing pleural/pericardial effusion’s caused by Serositis. My daughter asked for advice from rheumatologist yesterday but just got a leaflet shoved at her. I am on Lowe dose antibiotics
Hi everyone. I’m about to start this meditation I’m currently on 23mg steroids plus loads other meds. I have long standing pleural/pericardial effusion’s caused by Serositis. My daughter asked for advice from rheumatologist yesterday but just got a leaflet shoved at her. I am on Lowe dose antibiotics
Numptybrain
in
Lung Conditions Community Forum
2 months ago
stopping mycophenolate starting azathropine - any experience/ tips?
Did you feel worse when coming off
mycophenolate
before the azathropine kicks in? My Dr said next step was biologics but as I’ve only tried
mycophenolate
I can’t be prescribed them till I try azathropine. So I’m really hoping it helps!
Did you feel worse when coming off
mycophenolate
before the azathropine kicks in? My Dr said next step was biologics but as I’ve only tried
mycophenolate
I can’t be prescribed them till I try azathropine. So I’m really hoping it helps!
Beau2016
in
LUPUS UK
3 months ago
Poly Myalgia Rheumatica
I have scleroderma for past 12 + years and been on
mycophenolate
for 10 years for lung fibrosis I have now been diagnosed with PMR and in chronic pain doctors not sure about prescribing steroids which would get rid of pain because I’m on
mycophenolate
.
I have scleroderma for past 12 + years and been on
mycophenolate
for 10 years for lung fibrosis I have now been diagnosed with PMR and in chronic pain doctors not sure about prescribing steroids which would get rid of pain because I’m on
mycophenolate
.
Carolanne
in
Scleroderma & Raynaud's UK (SRUK)
11 days ago
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Cogan's syndrome
I'm on
Mycophenolate
but think I'm becoming less tolerant to it. I feel sedated weak and nauseous. Has anyone else had this?
I'm on
Mycophenolate
but think I'm becoming less tolerant to it. I feel sedated weak and nauseous. Has anyone else had this?
Popple18
in
Vasculitis UK
19 days ago
Mycophenolate Mofetil Anyone?
He appeared satisfied that I was on long term 5.5 Prednisolone (I had previously run into trouble at 5mg) but his follow up letter indicated a plan to offer me
Mycophenolate
Mofetil as a DMARD to get me off steroids. Has anyone had experience of this treatment ?
He appeared satisfied that I was on long term 5.5 Prednisolone (I had previously run into trouble at 5mg) but his follow up letter indicated a plan to offer me
Mycophenolate
Mofetil as a DMARD to get me off steroids. Has anyone had experience of this treatment ?
Katiecatweazel
in
PMRGCAuk
4 months ago
skin bruising from prednisone
I am on 5mg/daily prednisone after my kidney transplant 4 years ago, in addition to tacrolimus and
mycophenolate
. The prednisone causes my skin to thin so much that the slightest touch creates a nasty purple bruise.
I am on 5mg/daily prednisone after my kidney transplant 4 years ago, in addition to tacrolimus and
mycophenolate
. The prednisone causes my skin to thin so much that the slightest touch creates a nasty purple bruise.
EricaTO
in
Kidney Transplant
21 hours ago
AIH/PBC
I am intolerant of the drugs azathioprine and
mycophenolate
, as I am intolerant of drugs containing thiopurines. I am 72 and have been told I am too old for tacrolimus. I am currently on prednisone. I want to come of these as I feel really unwell with various symptoms.
I am intolerant of the drugs azathioprine and
mycophenolate
, as I am intolerant of drugs containing thiopurines. I am 72 and have been told I am too old for tacrolimus. I am currently on prednisone. I want to come of these as I feel really unwell with various symptoms.
Rupeedoo
in
British Liver Trust
3 months ago
in remission and stable
I am still on 3mg budesonide,
mycophenolate
and urso and numerous other tablets, unfortunately I am getting a lot of IBS does anyone else suffer with this numerous times and do they have any self help tips? Thanks
I am still on 3mg budesonide,
mycophenolate
and urso and numerous other tablets, unfortunately I am getting a lot of IBS does anyone else suffer with this numerous times and do they have any self help tips? Thanks
Suecong
in
British Liver Trust
3 months ago
Starting methotrexate tips
Hi I posted last week about decision to stop
Mycophenolate
after 12 months and switch to Azathioprine, unfortunately blood tests found I'm not suitable so now the plan is to start Methotrexate next month. Just wondering if anyone had any tips to manage side effects?
Hi I posted last week about decision to stop
Mycophenolate
after 12 months and switch to Azathioprine, unfortunately blood tests found I'm not suitable so now the plan is to start Methotrexate next month. Just wondering if anyone had any tips to manage side effects?
Beau2016
in
LUPUS UK
2 months ago
Imnusupressants Post Transplant
He is currently on 3mg Tacrolimus x 2, 1000mg
mycophenolate
x 2, 5mg pred. Thanks Ewife
He is currently on 3mg Tacrolimus x 2, 1000mg
mycophenolate
x 2, 5mg pred. Thanks Ewife
Ewife
in
British Liver Trust
3 months ago
Definitive diagnosis of GCA after 7 years
I was on prednisone and lefludomide and
mycophenolate
were added in as steroid sparers which finally bought down the CRPs.
I was on prednisone and lefludomide and
mycophenolate
were added in as steroid sparers which finally bought down the CRPs.
Manihiki
in
PMRGCAuk
2 months ago
Update
Hi everyone, I’m on a steroid taper of 10/5 daily so will be on 5 mg when I start
Mycophenolate
on 20th of this month, I’m starting on a low dose gradually increasing.
Hi everyone, I’m on a steroid taper of 10/5 daily so will be on 5 mg when I start
Mycophenolate
on 20th of this month, I’m starting on a low dose gradually increasing.
Numptybrain
in
PMRGCAuk
1 month ago
leg trouble
hi Paula hear I was diagnosed 4 years ago with vascullituse of the lung it seems to be under control at min with retuxiban and prednisone I was on
Mycophenolate
to but after a year I had to come of it as it wasn’t suiting me.
hi Paula hear I was diagnosed 4 years ago with vascullituse of the lung it seems to be under control at min with retuxiban and prednisone I was on
Mycophenolate
to but after a year I had to come of it as it wasn’t suiting me.
Tellyblue
in
Vasculitis UK
4 months ago
Cogan's syndrome
Methotrexate only worked for a few months and now
Mycophenolate
is becoming less effective. I want to try Rituximab and the Wahl Protocol.
Methotrexate only worked for a few months and now
Mycophenolate
is becoming less effective. I want to try Rituximab and the Wahl Protocol.
Popple18
in
Vasculitis UK
19 days ago
EGPA x Skin nodules
Hello, I am new to this forum and my husband has EGPA, diagnosed in 2019.He's currently prescribed
mycophenolate
, pred 15mg x has nucala injections once a month.
Hello, I am new to this forum and my husband has EGPA, diagnosed in 2019.He's currently prescribed
mycophenolate
, pred 15mg x has nucala injections once a month.
Beaniebabe
in
Vasculitis UK
21 days ago
Methotrexate and Prednisolone GPA
I have been on methotrexate and prednisolone for nearly three years for Vasculitis GPA along with blood thinners and statins etc, was also on
Mycophenolate
for first 2 years. I have been told Rituximab not suitable for me.
I have been on methotrexate and prednisolone for nearly three years for Vasculitis GPA along with blood thinners and statins etc, was also on
Mycophenolate
for first 2 years. I have been told Rituximab not suitable for me.
Wyllow
in
Vasculitis UK
4 months ago
decisions, decisions, help !!!
He also requested that I have an MRI scan of my cervical spine, He has given me two booklets to read with a view to starting another drug, I already take Hydroxychloroquine, the drugs are
Mycophenolate
and Azathioprine I have read these booklets over and over and the side effects frighten me.
He also requested that I have an MRI scan of my cervical spine, He has given me two booklets to read with a view to starting another drug, I already take Hydroxychloroquine, the drugs are
Mycophenolate
and Azathioprine I have read these booklets over and over and the side effects frighten me.
Wonderfullifeandmore
in
NRAS
4 months ago
high temperatures?
On
Mycophenolate
still, pred for 4 years, now discontinued. Generally well until 3weeks ago, I got a kidney infection after a UTI. One IV dose of antibiotics and 3 oral doses later. I feel back to normal but my temperature won’t go down, 37-5* - 38.5*.
On
Mycophenolate
still, pred for 4 years, now discontinued. Generally well until 3weeks ago, I got a kidney infection after a UTI. One IV dose of antibiotics and 3 oral doses later. I feel back to normal but my temperature won’t go down, 37-5* - 38.5*.
Sanddeckchairs
in
British Liver Trust
5 months ago
+100 Days post transplant
I've not had any other issues so I'm now off the
Mycophenolate
and will get a T cell transfusion in a few weeks as an outpatient. I have another BMB next week as Dr's still want the 100 day one as comparative check. Also will stop taking Letermovir when I run out.
I've not had any other issues so I'm now off the
Mycophenolate
and will get a T cell transfusion in a few weeks as an outpatient. I have another BMB next week as Dr's still want the 100 day one as comparative check. Also will stop taking Letermovir when I run out.
Flyingsteamer
in
MPN Voice
3 months ago
NCGS/Celiac disease
The transplant center finally honored my request to switch to Myfortic last July after repeated requests to change from
Mycophenolate
Motifil. However, the switch has not made much of a difference. The abdominal pain I experience mostly post-eating has affected my quality of life.
The transplant center finally honored my request to switch to Myfortic last July after repeated requests to change from
Mycophenolate
Motifil. However, the switch has not made much of a difference. The abdominal pain I experience mostly post-eating has affected my quality of life.
6821green
in
Kidney Transplant
4 months ago
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