AIH/PBC

[Rupeedoo]

I am intolerant of the drugs azathioprine and mycophenolate, as I am intolerant of drugs containing thiopurines. I am 72 and have been told I am too old for tacrolimus. I am currently on prednisone. I want to come of these as I feel really unwell with various symptoms. What treatments are there left for me

[BritishLiverTrust3 Administrator British Liver Trust]

Dear Rupeesdoo,

If you are in the UK and would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

[Fides]

I hate prednisolone, it gives me horrible vivid dreams and nightmares as well as making me delusional. My team were actually quite pleased to take me off it as apparently it can become very addictive.

When my Kidneys started to fail because of the anti rejection medication they reduced my Adoport and increased my Mycophenolate, at first this was very successful, but when we tried to further increase the Mycophenolate to reduce the Adoport further, I immediately noticed it started making me heavily confused and I became drowsey. I actually found it was affecting my driving ability so had to get them to restore the Adoport dosage and go back to old does of Mycophenolate.