high temperatures?

[Sanddeckchairs]

Diagnosed with AIH in 2018, only real symptom was terrible fatigue. Fibrosis 5-6 but compensated. On Mycophenolate still, pred for 4 years, now discontinued. Generally well until 3weeks ago, I got a kidney infection after a UTI. One IV dose of antibiotics and 3 oral doses later. I feel back to normal but my temperature won’t go down, 37-5* - 38.5*. I don’t know what my normal temperature is and as one of many liver functions is influencing body temperature, do we generally run higher than people without liver disease? I would really value people’s experience. Thank you.

[BritishLiverTrust12 Moderator British Liver Trust]

Hello Sanddeckchairs,

If you are in the UK and would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays).

Best wishes ,

British Liver Trust

[Franno76]

hi. What is discontinued? I’m on both of those?

[AyrshireK in reply to Franno76]

Poster just means they've stopped taking these particular meds not that the medications have been discontinued.

[Sanddeckchairs]

Hello, sorry I wasn’t clear. I was on large doses of Prednisolone once diagnosed and stayed on it for almost 4 years. Eventually the dose was slowly reduced and finally stopped. I had no issues after stopping taking the Prednisolone. My concern now is my raised temperature and can that be the norm for people with liver disease? Thank you. Deb.

[Caravan149]

Hi was diagnosed at roughly the same time as yourself and have been the same medication. My diagnosis came a bit later than yours and I already had cirrhosis. Compensated and like yourself I suffer with fatigue when well. Recently I had an operation and ended up with a uti and sepsis. My temperature shot up along with other problems this infection causes. I was very lucky my symptoms were mild but my temperature was (towards the end of my recovery ) the most stubborn to control. The hospital wouldn’t let me go home until it was back to 37 degrees. Not sure if this reply helps. I can’t comment medically but they told me that the high temp was part of the infection. Hope you find the answer. All the best

[Sanddeckchairs in reply to Caravan149]

Thank you and good luck. Antibiotics course has now finished so more bloods etc on Tuesday to see what’s happening. Deb.