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My Cancer Journey Repost
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
JohnInTheMiddle
in
Advanced Prostate Cancer
3 months ago
List of good Genetic Tests in Homologous Recombination Deficiency in PCa and the Mechanisms of Resistance to PARP Inhibitors
I was searching RAD50 and PARPinhibitors and since i am going for a high risk genetic consult i came across this good explanation of different genetic testing. Title of article:
Homologous Recombination Deficiency in Ovarian, Breast, Colorectal, Pancreatic, Non-Small Cell Lung and Prostate Cancers
I was searching RAD50 and PARPinhibitors and since i am going for a high risk genetic consult i came across this good explanation of different genetic testing. Title of article:
Homologous Recombination Deficiency in Ovarian, Breast, Colorectal, Pancreatic, Non-Small Cell Lung and Prostate Cancers
KocoPr
in
Advanced Prostate Cancer
3 months ago
V + O for R/R CLL post FCR
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
skipro
in
CLL Support
3 months ago
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Looking for options after Verzenio.
Spoke with my onc today and she said if Verzenio fails she’s thinking about Afinitor. Said I’m running out of options and IV chemo might not be far off after that. I’ve been on Faslodex, Anastrozole, Ibrance and Verzenio is my 3rd line of treatment. No mutations. I feel like there are many more options
Spoke with my onc today and she said if Verzenio fails she’s thinking about Afinitor. Said I’m running out of options and IV chemo might not be far off after that. I’ve been on Faslodex, Anastrozole, Ibrance and Verzenio is my 3rd line of treatment. No mutations. I feel like there are many more options
Nocillo
in
SHARE Metastatic Breast Cancer
3 months ago
Fear of getting ill (nosophobia)
Hello, does anyone else have the fear of getting ill? It's really crippling me at the moment. The other day I had a huge "floater" in my eye. I have been to the eye doctor and a retina specialist and everything is ok. But I'm still having extremely bad anxiety attacks. I'm finding it difficult to
Hello, does anyone else have the fear of getting ill? It's really crippling me at the moment. The other day I had a huge "floater" in my eye. I have been to the eye doctor and a retina specialist and everything is ok. But I'm still having extremely bad anxiety attacks. I'm finding it difficult to
Tobytime45
in
Anxiety Support
7 months ago
Recommendations for overcoming dizzy episodes?
I have Tinnitus and Pulsatile tinnitus, since summer have had intermittent muffled ears, bit of dizziness. Past 3 weeks have had 24/7 clogged muffled ears like I've got my entire head wrapped in cotton wool and then in a box. What as really hit me hard is the swoosh of dizziness that suddenly hits
I have Tinnitus and Pulsatile tinnitus, since summer have had intermittent muffled ears, bit of dizziness. Past 3 weeks have had 24/7 clogged muffled ears like I've got my entire head wrapped in cotton wool and then in a box. What as really hit me hard is the swoosh of dizziness that suddenly hits
hollyrain
in
Tinnitus UK
7 months ago
Looking for medical oncologist at Memorial Sloan Kettering.
I was diagnosed one year ago with two very small tumors, one on each lobe. Gleason 6, grade group one. Less than 5% involvement in each tumor. Decipher of 0.28, which suggests low aggressiveness. PSA has remained 0.7 for a many years. Although I think Fox Chase Cancer center in Philadelphia is a fine
I was diagnosed one year ago with two very small tumors, one on each lobe. Gleason 6, grade group one. Less than 5% involvement in each tumor. Decipher of 0.28, which suggests low aggressiveness. PSA has remained 0.7 for a many years. Although I think Fox Chase Cancer center in Philadelphia is a fine
bubularich
in
Prostate Cancer Network
3 months ago
Experience/Opinions on: Pembrolizumab + Lenvatinib for NEPC/SCPC
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
skiingfiend
in
Advanced Prostate Cancer
3 months ago
delivery day: Body’s ‘message in a bottle’ delivers targeted cancer treatment
“Researchers at Karolinska Institutet in Sweden have succeeded in delivering targeted cancer treatment via small membrane bubbles that our cells use to communicate. A new study published in Nature Biomedical Engineering shows that the treatment reduces tumour growth and improves survival in mice.”
“Researchers at Karolinska Institutet in Sweden have succeeded in delivering targeted cancer treatment via small membrane bubbles that our cells use to communicate. A new study published in Nature Biomedical Engineering shows that the treatment reduces tumour growth and improves survival in mice.”
Maxone73
in
Advanced Prostate Cancer
3 months ago
Recurence
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
PaumicB123
in
My Ovacome
3 months ago
Improvement
Hello friends, I recently had myself a Stroke, the ambulance and emergency depth staff were exceptional at their jobs and I was only in the Edinburgh Royal Infirmary for 3 days. I'm home now with almost no signs that I had a stroke due to the Medical Staff doing such a great job. I immediately had my
Hello friends, I recently had myself a Stroke, the ambulance and emergency depth staff were exceptional at their jobs and I was only in the Edinburgh Royal Infirmary for 3 days. I'm home now with almost no signs that I had a stroke due to the Medical Staff doing such a great job. I immediately had my
ArchieCatPurr
in
MPN Voice
7 months ago
Orbital Floor Depomedrone Injection
Hi All Has anyone had any experience of the above for TED? Been offered this or intravenous Methyldprednisolone. Thyroid Eye specialist has given me a week to make my mind up as to which way I would like to go. There are 3 options, the 2 I’ve just stated or do nothing and risk permanent bulging eyes
Hi All Has anyone had any experience of the above for TED? Been offered this or intravenous Methyldprednisolone. Thyroid Eye specialist has given me a week to make my mind up as to which way I would like to go. There are 3 options, the 2 I’ve just stated or do nothing and risk permanent bulging eyes
BlueSkiesAbove
in
Thyroid UK
7 months ago
My blood sugar is 254mg/dl after 1 hour of lunch
I had a lunch at 1 pm. It included one bowl (100gm) of white rice, sambar, a small cup of potato fry, another cup of vegetables, and 200ml of buttermilk. I took metformin 500mg before lunch and went for a 2km walk inside my office. Took a random blood sugar at 2:30 pm and was shocked to see the reading
I had a lunch at 1 pm. It included one bowl (100gm) of white rice, sambar, a small cup of potato fry, another cup of vegetables, and 200ml of buttermilk. I took metformin 500mg before lunch and went for a 2km walk inside my office. Took a random blood sugar at 2:30 pm and was shocked to see the reading
secretsubject
in
Diabetes India
7 months ago
BLA for Subcutaneous Nivolumab Accepted by the FDA for Advanced/Metastatic Solid Tumors
A biologics license application (BLA) has been accepted by the FDA seeking approval of nivolumab (Opdivo) co-formulated with Halozyme’s proprietary recombinant human hyaluronidase (rHuPH20; subcutaneous nivolumab) for adult patients with solid tumors eligible for previously approved nivolumab indications
A biologics license application (BLA) has been accepted by the FDA seeking approval of nivolumab (Opdivo) co-formulated with Halozyme’s proprietary recombinant human hyaluronidase (rHuPH20; subcutaneous nivolumab) for adult patients with solid tumors eligible for previously approved nivolumab indications
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
Progress report
Oh what a fun week I have had. Those of you that followed the tooth saga will be pleased to hear I am nearly at the finishing line and had the fitting for the implant, another 2 weeks and I will have the new tooth. It wasn’t particularly pleasant but it’s done. My next exiting trip was to have a scan
Oh what a fun week I have had. Those of you that followed the tooth saga will be pleased to hear I am nearly at the finishing line and had the fitting for the implant, another 2 weeks and I will have the new tooth. It wasn’t particularly pleasant but it’s done. My next exiting trip was to have a scan
EdithWales
in
PMRGCAuk
11 months ago
Skull met!
I am receiving radiation on a skull med on my left side, just passed my optical nerve area. I am wondering if I should have another MRI after the fifth or sixth radiation treatment to see if the med has been eliminated or should they continue on with the complete 10 treatments? any suggestions would
I am receiving radiation on a skull med on my left side, just passed my optical nerve area. I am wondering if I should have another MRI after the fifth or sixth radiation treatment to see if the med has been eliminated or should they continue on with the complete 10 treatments? any suggestions would
docbulldog
in
Advanced Prostate Cancer
3 months ago
Well, three years in…..
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
FulThrotl
in
Advanced Prostate Cancer
3 months ago
Tapering problem
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Raewynne
in
PMRGCAuk
7 months ago
Companies that test liver biospy tissue to see what immunotherapy, parp inhibitors or ATK inhibitors would work?
as above, so far pca Adenocarcinoma in liver biopsy tissue…. Anyone have a list?
as above, so far pca Adenocarcinoma in liver biopsy tissue…. Anyone have a list?
Shorehousejam
in
Advanced Prostate Cancer
3 months ago
Worsening back pain after treatment?
I’ve had back pain before, and even had surgery to relieve it, but this is different. I’ve brought this up with my RO and my plain oncologist, but wanted to see if anyone here has experienced this. Next week I’ll be talking to my GP. A reminder of my DX: Gleason 9, spread to local lymph nodes. Treated
I’ve had back pain before, and even had surgery to relieve it, but this is different. I’ve brought this up with my RO and my plain oncologist, but wanted to see if anyone here has experienced this. Next week I’ll be talking to my GP. A reminder of my DX: Gleason 9, spread to local lymph nodes. Treated
Jpburns
in
Advanced Prostate Cancer
3 months ago
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